Posted by Enigma on August 6, 2010, at 19:16:34
In reply to Re: Nardil is killing me - must find alternative! Help » Enigma, posted by Phillipa on August 4, 2010, at 21:31:50
> Enigma that's quite a story of your life. Well as you said you do still have options. And which do you feel you will start with? I can't imagine online dating. Phillipa
---
(wicked short version - yeah, we say "wicked" up here in New England, since
we're a British colony, it's a use of slang, even the brit's still use)
Get rid of Nardil ASAP
Get Selegeline or better (unknown drug) ASAPIf I had the money, get more serious about VNS
Read more about DBS
---Well, in the short term, I'm still trying to get into see a new doctor, many miles from the one that quite literally ran out of options for me. He said he had no idea where to go with my treatment because we were out of meds he was familiar with. His only option was to go to a doctor 2 hours away from where I live, opposite Boston, in the boondocks of New Hampshire and get admitted to their general psych ward. Then, after an unknown period of time (in days), the doc on staff there would magically become my new shrink, and then treat me from there - with NO word on when I would get out of the ward. So, seriously, he would not take me as an office patient because he isn't accepting new patients, but WOULD if I stayed in the ward first. (WTF???) I was like, uhm, yeah, that sound REALLY promising with about 100 unknowns. NO THANKS.
Ever stay in a general ward? In other words, one that doesn't segregate by types of illness, level of severity, and age? I'm been in both. I almost ripped my head off to get out of the first ward, which was a "general" psych ward. I found the 2nd to actually feel like a prison, like the first, but at least there were suicidal depressives like me there, and bipolars, non of which talked to themselves, drooled, wore 10 pounds of makeup at 89 years of age, etc. They were all near my age, to a degree and we actually had some good conversations, but still, being without freedom to simply surf the web, watch tv, etc, I was dying to get out of there (and dying to get in there HA HA HA HA).
Man, I gotta post of the right board here to see if someone can help me publish my book. Sure there were people with worse lives out there, but not that many, I'll guarantee you that. It's educational too!!
I unfortunately read today, about VNS, that the patients (the most treatment resistance freaks like me) were the least successful with the procedure. I think it said after 6-12 months after the procedure, in this certain study, the people that failed with 6-12 meds (I failed with a LOT more), had no response to the operation. That, uhm, sucks.
My wife was reading about DBS and they were saying things about it such as it only lasting a YEAR. One year? 30k++ for a YEAR of possible, no-guarantee of success treatment of brain surgery. Read that sentence again. At least VNS said it was meant for a lifetime, -minus changing the batteries in the pulse generator. Sadly with VNS, some people don't notice a positive change for up to 2+ years!!! What am I going to do until them?
(Ren and Stimpy: Ren: Show's over man, let's go home. Stimpy: But what are we going to do till then?!?!?!...)
poster:Enigma
thread:955737
URL: http://www.dr-bob.org/babble/20100731/msgs/957576.html