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Re: Trileptal, why do you do this to me?

Posted by qbsbrown on April 5, 2010, at 12:04:01

In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 5, 2010, at 8:33:36

> >Oh yeah, this last years brutal taper, where i had the most rare, severe, and uncommon withdrawal symptoms (perhaps that was MS), going from 30mgs to 17 was brutal. I think there were times where it was 1-2 mgs drops every two weeks.
> >
> > Not sure how i will do it this go round.
> Brian,
> What symptoms have you experienced which are definitely due to MS? You've not said much about the MS.
> I wouldn't expect that reducing by 1mg every two weeks would be brutal unless there was also something else going on. Like you say, this could have been to do with the MS.

Yeah, why the reducing 1mg every 2 weeks was outrageous was beyond me. not being able to leave the apt as i couldn't find my way back. i was in total shock, couldn't barely remember my roomies name. Would sit on the couch in pools of sweat, and do an obsessional habit. couldn't swallow food. Like i mentioned, tried to add an anticonvulsant, in able to slow down a bit, maybe help taper, and leave house, to have them basically give me a breakdown just from things i saw, heard, or someone even saying a word, would give me that existential angst/ugliness etc. My muscle deterioration was incredible, being reduced to nothing. Feeling like i was high, on acid, speed, etc. YES, something else was going on!!!!! Became EXTREMELY chemically sensitive. Tried to add any supplements, if it had any precursor to serotonin, such as tryptophan etc, would make me severely depressed, as SSRIs did/would. Or anything involving dopamine/norep would make me irritable as the psychotropic drugs would. not to mention my experience trying to add trileptal, depakote, tegretol, were horrific memories as well. Reminded me what it was like to see the world through ugly eyes again.

I began to feel like the craziest schizo person around.

Problem is, is that my WD symptoms mimic and are similar to MS symptoms, so what was what?

MS symptoms

vision problems, extreme blurry vision (this has subsided with injections) I'm talking at night, i literally could barely see, car head lights would extend from the ground, all the way to the sky, same as street lights

muscle weakness
muscle loss of tone/deterioration/atrophy
slurred speech/pressured speech (this one lead me to neurologist, along with me being unable to spell simple words)
muscle spasms, random, all day (has subsided with injections, perhaps addition of valium)
I would be up in the middle of the night having to stretch my hamstrings
sometimes issues swallowing
times i get bad chills/shivers
memory issues
male private part issues (my LEAST favorite symptoms, effects 80-90 percent of MS males, thank god for cialis)
would have bad electrical shocks in brain at night (could have been cold turkey, has subsided)
bad tremors in hands, could have been WD
I could not feel sensations in my limbs. EG, I went wandering off in the mountains (not really planning on coming back), only wearing sweats, shoes, jacket, and hat, sludging through snow for hours, i literally could feel NO cold in my legs or feet.

The list could probably go on.

I'm supposed to see the neurolosist on the 13th. don't know what to say. i'm not a big fan of his, just as my PDOC




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