Psycho-Babble Health Thread 550207

Shown: posts 1 to 21 of 21. This is the beginning of the thread.

 

Why should i let drs abuse me? please help:(

Posted by kerria on September 3, 2005, at 3:24:26


i just came from the painmangemt dr's office. The terrible pain isn't being managed and the dr won't manage it.

He wan'ts me to be in pain to get a correct diagnosis- FOR MONTHS I 've been in pain.

it doesn't feel right to allow my self to live in torture- to allow this dr and others who had an opportunity to help me and didn't help me.
They are making me live in torture, i'm losing my job- i can't work- i try everyday to take meds and it takes hours to try to control the pain but there's still a terrible constant burning.
TEARS.

Some of my parts don't know that they haven't just been beaten up or s.a. It isn't morrally right for me to let myself be tortured i can't keep doing this. Everything is falling apart . i can't do ant thing. All there is is pain. i love my kids. i love my H but he dosn't love me and will divorce me. My kids are learning to hate the monster the pain is making me become. IT HURTS SO MUCH. ALL THE TIME.

Drs make fun of me- she has DID- she has 'pelvic pain.' lol
There somehow isn't a test that shows the source. we've been surgery- taken apart, taken everything out. We had all the tests- bone marrow tests- we are --NO I am dying anywyas- i have an M-protein spike- it will be multiple myeloma if it isn't already- and i will die a painful and terrible death. i want to do the right thing. Is it ok to die now because no one will treat my pain when i'm dying anyways?

It's so hard to live with pain- it's triggering and it HURTS SO MUCH. i'm losing my job because it hurts to much to come in. my life is nothing but torture and i'm not strong enough to live in pain,
i'm so afraid of going to a hospital- that's the worse that can happen- my parts have nothing to ground to and they won't treat my pain at all. i'll scream and scream with no relief.

Please PLEASE don't tell me to call T.
i did anyways- he didn't call back. It's hours later. Thanks T.

we need mercy . God's mercy to stop the agony i've suffered so so so long. enough is enough. No one can ever help me.
Tears, i'm hopeless- psychologically and physically.

How did i get in so much troble.?
Everything is so bad and i want to die.

kerria

 

Re: Why should i let drs abuse me? please help:(

Posted by Racer on September 3, 2005, at 3:24:26

In reply to Why should i let drs abuse me? please help:(, posted by kerria on August 31, 2005, at 16:01:30

>
> >
> How did i get in so much troble.?
> Everything is so bad and i want to die.
>
> kerria

Do you really want to die? Or do you want relief from the pain so that you can live again? Those are two different things, no matter how much the same they may feel right now. (I'm in that sort of space, too, right now, so I'm not intending this to sound shallow or invalidating. Just, maybe I'm not gonna be able to express myself all that well right now.)

I don't know your situation vis a vis your PM doctor, and I know that it can be hard to get to a decent doctor in a lot of areas. Is there another doctor you can see? Or have you simply told this doctor that the pain is so intolerable that you can't hold a job? (By the way, if you really can't work -- start the SSI paperwork NOW. If they make the dx and fix the pain, you can cancel, but it's gonna take forever to process anyway.)

If your current doctor brushes aside your distress, can you find the strength to tell him that this is NOT acceptable -- which it isn't -- and ask him WHEN he intends to do his job? Or ask him to prescribe something for the pain now, whether or not there's an official diagnosis.

And if you're still suffering this much, get out your telephone book and find the nearest Planned Parenthood -- they were always very responsive when I had to get all my health care there. It's easier to get in, much cheaper, and they actually seem to CARE about patients.

Best luck, and I do hope things improve for you.

 

Re: Why should i let drs abuse me? please help:(

Posted by rainbowbrite on September 3, 2005, at 3:24:26

In reply to Why should i let drs abuse me? please help:(, posted by kerria on August 31, 2005, at 16:01:30

(((kerria)))

I dont know your situation but could you try another doctor? Racer is right you probably just want the pain to stop. Have you ever found anything that helped the pain?
Im so sorry kerria

 

Re: Why should i let drs abuse me? please help:(

Posted by Phillipa on September 3, 2005, at 3:24:27

In reply to Re: Why should i let drs abuse me? please help:(, posted by rainbowbrite on August 31, 2005, at 19:06:39

If this is physical pain go to an emergency room. I believe they have to treat it. And the worst that can happen is they'll treat it now and then give you a referral. I'm truly sorry for your pain. That's terrible. Fondly, Phillipa

 

Re: Why should i let drs abuse me? please help:(

Posted by lunesta on September 3, 2005, at 3:24:27

In reply to Why should i let drs abuse me? please help:(, posted by kerria on August 31, 2005, at 16:01:30

multiple myeloma can be stopped or cured by low dose naltrexone. i suggest you look into this. www.lowdosenaltrexone.org

 

Re: Why should i let drs abuse me? please help:( » kerria

Posted by JenStar on September 3, 2005, at 3:24:27

In reply to Why should i let drs abuse me? please help:(, posted by kerria on August 31, 2005, at 16:01:30

oh Kerria,
I'm so sorry things are so awful! (((kerria)))
I don't know anything about myeloma, but are you sure you have it? Is it a hunch or it is definite? If so, hopefully there are treaments that will make the pain go away.

I'm so sorry you're having it so rough.
Is there ANYTHING that helps with the pain at all besides meds? Acupuncture? Alternative treatments? Hypnosis? My friend tried hypnosis to help her lose weight, and it worked! I don't know if it can work on pain at all...but it might be worth a try if you can find a safe and caring practitioner.

Can I ask what medications you're taking right now? And which medication the doctor refuses to give? Does he give a reason when he refuses treatment?

There are many things doctors don't know. if you're feeling real pain, there MUST be a real physical reason. It's NOT "in your head." I agree with the poster who suggested trying another doctor, or planned parenthood.

Don't give up, Kerria! I read some of your posts to other people here on Babble who were hurting, and you write really insightful, thoughtful caring things. We would miss you. Your kids would miss you. I'm sure they do not hate you!

Are you sure your h. is planning divorce? Have you discussed it?

I'm so sorry about all of this.
please keep writing.

JenStar

 

Re: Why should i let drs abuse me? please help:( » JenStar

Posted by Phillipa on September 3, 2005, at 3:24:27

In reply to Re: Why should i let drs abuse me? please help:( » kerria, posted by JenStar on August 31, 2005, at 23:11:57

Myeloma is cancer. The doctor should not practice medicine cause he's not. Gee I hope I'm right about this one. Fondly, Phillipa

 

Re: Why should i let drs abuse me? please help:(

Posted by Phillipa on September 3, 2005, at 3:24:27

In reply to Re: Why should i let drs abuse me? please help:( » JenStar, posted by Phillipa on September 1, 2005, at 0:15:41

Yes it's cancer of the bone marrow. I can't believe a doctor will let you suffer with pain. At a time like this you need all the support you can get. What's wrong with your husband? You need morphine or MS Contin. Fondly, Phillipa

 

Re: Why should i let drs abuse me? please help:(

Posted by kerria on September 3, 2005, at 3:24:27

In reply to Re: Why should i let drs abuse me? please help:( » kerria, posted by JenStar on August 31, 2005, at 23:11:57

everything is so hopeless
Thank you for posting Racer, Rainbowbrite, Phillipa, Lunesta and JenStar.

Thank you. i need to be out of pain but it's not possible. i've been to SO MANY drs, i have a bad reputation now. They don't understand DID- and think that i have psychological pain. This has been going on for almost two years.

incidentally- i applied for S.S disability when i found out that i had DID five years ago because i couldn't afford the treatment for it. Then all the physical problems started happening. Still i haven't received it.

About two years ago i started having severe pelvic pain- i think might be related to a chemical spill i had at work but there's no way possible prove it. The back of my suit became ripped and a chemical leaked in and the same region i have pain in is the area that was exposed. i wasn't able to change for about an hour as i drove home. i love the place i work at.i don't know for sure if that chemical spill was involved but so many physical problems happened beginning that year.

i started having the severe pelvic pain.
First i went to a gyn dr who did surgery to find cause.
Then had a colonoscopy.
Then my GP found too much protein in my blood- and also that my thyroid wasn't working anymore.
a hematologist did bone marrow biopsy and there are cloned immuniogloblins. If the level gets higher it would be multiple myeloma. Also they found that the marrow isn't working well- not making enough cells.
It's not serious enough now to start treatment.
But i have all this PAIN.
The hematologist says that is not the reason for pain.
These and other drs- i ent to the Mayo clinic even - and all kinds of tests were done and cause of the severe pain isn't apparant to any drs there so they think it's psychological.

It's constant pain. My T has been able to help with smallet migraines but the terrbly severe ones i still have to go to the hospital with.

The pelvic pain is too sharp and constant to be helped by anything except pain medicine, a nerve block is so difficult for my parts inside to handle doing but helped for two days.

This pain management dr will give morphine temporarily now- but morphine leaves me in pain and sedated . i was on oxycontin and it took my pain away- or was at a tolerable level but this dr won't give it anymore because i don't have a 'diagnosis'

The pain is too severe to live in.

my H wants to divorce me and talks about it a few times a week. At every disagreement.

There are so many problems.

it hurts so much.

When i went to the er when i first started the morphine and it wasn't working the ER dr treated me so terrible because he talked about my mental disorder being the cause of the pain and talked to the pain management dr on the phone who described how i didn't have a diagnosis.

i may not have a diagnosis but i have severe pain every day - all day and all night aand thie morphine isn't taking the pain away.

No dr will believe me.

It's too hard to live in pain with not anyone to believe me or help and i'm so tired of going to so many drs. It's so hard to have parts also- i can't get inside agreement. Thanks so much for trying to understand. tears. it's so hard to live with that also- no one understands - every day my family that i love is angry with me for things that i can't help doing . they don't understand separate parts.

Everything is too hard,
the untreated pain, the drs and the horrible way they treat me- my T doesn't even call me back.
i'm so tired of living in all the pain- but the physical pain is unbearably hard. It's impossible, If take enough morphine to get out of pain it is so sedating that i sleep and life isn't worth living.

My family doesn't understand. My relationships are getting worse and worse. i can't do all the things that i love to do. hike and backpack, or do anything at all around my house. All i do is hurt.

kerria:(

 

Re: Why should i let drs abuse me? please help:(

Posted by kerria on September 3, 2005, at 3:24:27

In reply to Re: Why should i let drs abuse me? please help:(, posted by kerria on September 1, 2005, at 2:24:00

There is one more dr that offered to treat me- out of the blue- a gyn oncologist that i saw a few weeks ago. i almost forgot.

If i can try to hol on a little ;onger to see if he could help.

Everything is so difficult. The misunderstanding and accusations of drs- that i'm a druggie- that i have psychological pain, it's all such a triggering nightmare.
Another thing morphine does is keep me up all night.
Everything is so so hard. i hope i can hold on.

i wonder why my T didn't call me back. i almost never call him and he knows how hard everything is.
Sometimes i think that he thinks i shouldn't make it- i know that the pain management dr would prefer i not survive- it's scary to have drs that don't care. Everything is so scary and painful . i wish i could not ever have to see them again.

thanks for listening,
kerria

 

Possibly triggering advice » kerria

Posted by Racer on September 3, 2005, at 3:28:32

In reply to Re: Why should i let drs abuse me? please help:(, posted by kerria on September 1, 2005, at 2:55:43

That's just a warning, and I hope this isn't triggering. I do have a lot to say about all this, though, having experienced horrible health care myself.

First of all, keep in mind that DID can be a pretty controversial diagnosis, and even a lot of pdocs don't really understand it. The less you bring it up with the other docs, the better. Why? Well, let's think about the doctors from a psychological point of view: if they can't figure out what's going on, they're going to look for a way to blame the patient -- and ANY psychiatric diagnosis is perfect for that. "Gee, Doc, my leg has hurt ever since I was hit by a car. Could it maybe be broken?" "Well, it could be, and an x-ray would tell for sure -- but we won't bother with that because you have depression so that's probably causing your pain." (OK, that's a little extreme, but most of us have experienced something similarly ridiculous.) The best thing you can do while you're in the doctor's office is to force him to stay on the subject of your pain, without allowing him to lead you onto the tangent of your psych dx. "Yes, Doctor, I do have [insert any and all psych dx here] -- but that still doesn't adequately explain my pain." "Yes, Doc, there is such a thing as psychosomatic pain, but that doesn't explain the abnormal lab results and my pain." Just bring him back to the main point, over and over, without expressing yourself defensively -- this is something to practice with your therapist first -- and maybe he'll finally get the point. The only alternative I can think of to this is a two-by-four to get his attention, which is the old joke about training a mule, but that isn't legal in most states...

Secondly, see if you can find any of the newer pain management papers online and print them out. The basic idea is that pain MUST be managed, because otherwise it primes the nerves to be hyperresponsive and that creates chronic pain and neuropathy and all sorts of other things. What area of the country are you? If you're in a small community, find the nearest largish city and see a doctor there. The teaching hospitals, for all that they can be great, can also be the most stuck in the middle ages as far as pain management is concerned. The training doctors will be older, and still have that "less is more" approach to pain, while a doctor who has been in practice for a while and continues to read articles, etc, will maybe be more up to date about this. I know taht there was a PBS show called Medical Answers that did a two or three part series on pain management a while back. You could see if you can get transcripts of that.

Your husband's attitude is certainly making all this worse. Can you get him to attend marriage counseling with you? Or at least get him to go in to your therapy sessions once or twice to talk about how damaging his threats are to you? How his threats are making your whole situation worse, and maybe if he were a bit supportive -- at least not threatening you constantly -- things would maybe be a bit better for all of you?

Also, see if you can amend that SSI application to reflect your current physical condition as well as the psych problems.

I hope that something in here helps.

One of the worst things about all this is that you ahve to be so much more on top of everything and so much more capable that most of us are normally, all at the same time you're most vulnerable and least able to do it all yourself. Sucks a lot, huh?

Good luck.

 

Re: Why should i let drs abuse me? please help:( » kerria

Posted by Emme on September 3, 2005, at 3:28:32

In reply to Why should i let drs abuse me? please help:(, posted by kerria on August 31, 2005, at 16:01:30

I'm so sorry you are in constant pain. Racer has many excellent points. I like her advice about consistently drawing the doc's attention back to the main issue, which is your woefully undertreated pain. Be like a dripping faucet - keep making your point.

I've found the calmly and matter-of-factly stated phrase "That is not acceptable" to be very useful when I've needed results and wasn't getting them.

I don't know where you live. I know someone whose chronic pain is aggressively managed at Johns Hopkins. It has enabled her to work, shop, do ordinary things. Go to the best pain management center you can possibly get yourself to.

Someone suggested accupuncture....I've never tried it, but you've got nothing to lose by giving it a go. Some insurance covers it.

Have you considered getting a lawyer to handle your SSI case?

We're throwing a lot of suggestions at you. Can you gather enough focus to try to tackle just one? I really hope you get a ray of hope.

emme


 

Re: Possibly triggering advice » Racer

Posted by kerria on September 3, 2005, at 3:28:32

In reply to Possibly triggering advice » kerria, posted by Racer on September 1, 2005, at 13:03:08

Hi Racer,

Thank you so much for responding- i'm so much in need of a way to think about everything- the way i think now doesn't leave room for hope.

i never told the pain management dr my diagnosis of DID. i think that he found out because he asked to speak to my psychiatrist- a while ago- but it's my speculation- it may not be true. i just don't understand why he's treating me so terribly.

i was referred to this pain Dr through my GP, and maybe there was something sent from him but i never told him that i had DID either. (NOW i remeber- my med charts from the MAYO clinic and other drs are FILLED with sayings about me

"She appeared anxious and pale, a thin build- and focused on medication to 'get out of pain." All kinds of unfair and derogatory statements fill my medical records.

i never told anyone in the world IRL- except when filing for disability and my H found out when i had to go inpatient once.

:( i can't help what this dr already knows but i never have discussed my mental health issues with him - only responded to questions that he asked me- as, yesterday - he asked if i was taking an antidepressant (i was crying when he told me i couldn't have the medicine that gets me out of pain).

It was my goal never to let anyone think i had any psych history- even anxiety or depression. i always write or check 'no' on the health history intake forms. i used to be a dental assistant and i know how the dentist talked about persons who checked 'yes' about having any kind of mental condition. There is no way to get fair treatment for pain especially with a pain control dr.

This dr claims that the government- the DEA , is giving him a hard time because the direct cause of pain is not understood in a diagnosis.

He wants to treat someone with 'terminal ovarian cancer, ' etc.

Racer- i do talk to this dr like you said, focusing on the pain but he wants the cancer diagnosis- nothing less than that will do i think. It bothers him that i have a psych dx. i had the conversation about "It's not psychsomatic pain. " with him. he sees my elevated blood pressure. He's treated many persons in pain and knows i'm in pain. he doesn't want to be involved in the trouble to treat me. Maybe the DEA is throwing extra forms his way and i'm not worth the trouble.

It's so horrific what he puts me through every two weeks now- i can't manage it anymore. i know he makes it hurtful and humiliating on purpose and that's against patient rights.

i have no patient rights because i don't have a diagnosis that decribes cancer pain, etc.

i hope to be treated by another dr- a gyn oncologist that offered to treat me. i have to wait and trust that he will help me.

it's so hard to struggle with so much- it feels like i'm not going to make it. i called T yesterday in crisis and T didn't call back. There's no support from anywhere.

H isn't interested in seeing T with me. He helps me get the medicine and that's it. He doesn't belive in DID or treatment although he sees my parts.

i'm very much worse since my dx was told to me. We struggled before but not like now.
My life has gone so down hill. Therapy for DID hasn't made me better - i'm a lot worse now than i was five years ago- before i had therapy. i'm sorry about ever getting therapy and that anyone knows i have DID. Not one good thing came because of that. There's no end to the heartache,

i told T that today and he became so defensive- as if i was blaming him- he said quickly in anger "You were like that before i met you."

The whole DID therapy , treatment- or whatever you call it has made me so much worse. i wish there were a way to get back the last five years and FORGET. Really forget everything. It didn't work for me and it made important people like teachers and drs treat me so unfairly. Nothing good was gained at all. Now i'm marked forever.

Sorry to vent- i just had this all out today with T. It really bothered me how he's so so defensive and it's MY life that's ruined and it's ME that has untreated pain- not him.

What the heck does T have to be so defensive about? i just don't get it.

My H is threatening to leave and defensive of his schedule- he doesn't see my great need as being that important.

Yes, it sucks but that's what's going on. Still, having him come next time will prevent much of the abusive statements of the dr. No Dr will say things like that or treat my pain as unimportant in front of family members.

Everything is so hard. i wish i could leave this life without having to die.

thanks for trying to understand, it means so much now. No one listens mostly, anywhere and it's so hard to be in this place.

Take care,
kerria

 

Re: Why should i let drs abuse me? please help:(

Posted by kerria on September 3, 2005, at 3:28:32

In reply to Re: Why should i let drs abuse me? please help:( » kerria, posted by Emme on September 1, 2005, at 13:37:58

Thank you, Emme, so much for your responding to me in this struggle.

tears.

Yes, i've had a lawyer. It's almost five years since i filed for disability.

i want to forget everything about having DID, i just need to get pain control. i do say i'm in terrible pain and try to reason with dr - who gives meds that don't work- actually they do work badly- not cover pain and leave me dangerously sedated.
At least it's something or i'd be screaming.

The dr just keeps saying in response to my desription of pain "You don't have a diagnosis."

There are so many tests that i've had - so many- abnormalities are found but the drs don't see how it can cause the pain that it does. They write that in my records and the dr reads it back to me.

We get no where with this dr.

I'm afraid that these records will follow me to what ever place, hospital, university hospital that i go next.

i went to Johns Hopkins gyn pelvic pain and hematology clinic i went to the Un of MD (hematology) hospital. I went to the Mayo Clinic(hematology, gyn and pain medicine).

By now- almost a fifth of all the drs in the US and Holland have heard of me or have my name in their system.

It's scary. i wish i could get a new identity to get away from the medical records. Drs have written horrible things about me- because they see that i 'say' i have pain but there appears 'no reason'. To them it means hypochondia or drug-seeking. What else could it be?

But my pain hurts so much and is real every minute of every day. Sorry they can't find why.

Thanks for trying to encourage me. i so need to have a new identity.

Take care,
kerria

 

GRRRRRRRR!!! » kerria

Posted by Racer on September 3, 2005, at 3:32:20

In reply to Re: Possibly triggering advice » Racer, posted by kerria on September 1, 2005, at 22:32:22

OK, in the interest of avoiding a block, I'm not going to offer my opinion about doctors like you're describing.

About ten years ago, my mother got sick and I took her to the ER where she was admitted for tests. The next morning, the surgeon came in to look her over and order tests. That was about 6:45 AM. Mind you, they couldn't give her anything for the pain, because that could mask symptoms or keep them from making the proper diagnosis.

About 4:30 PM, I finally tackled a nurse to tell her that it was PAST time that Mother had something to help her, and that all the tests had been done long before. It took me continuing to make noise before anything happened. (Eventually it was surgery, without any painkillers coming before hand.) It happens, and it's not right. That story will come as close as I will to offering my opinion...

Back to you, though:

OK, so you haven't been the one to bring up your dx with the dr... Even better...

Check out your state's website, find your way to the medical licensing board for your state, download the forms for a complaint against this clown, fill them out, and send them in. It may not help your pain, but -- trust me -- it still feels good...

From what you're saying, it sounds as though you already know what drug you want? And I'm guessing it's Schedule II? (I think that's it, whatever they need the three part form to write a scrip for.) That might be part of the problem, which just makes this harder... Hmmm...

{pondering}

OK, so aside from the ob/gyn whom you'll be seeing soon, what else can you do? Have you discussed this problem with your pdoc? Maybe another professional could get a response where you can't. If your pdoc were, for example, to contact this [expletive deleted] doctor and say something like, "I can't get a handle on her depression or anxiety when she's in so much pain -- DO YOUR JOB so that I can do mine." That might help a lot.

And, I really hope this doesn't offend you, but it kinda sounds to me that you maybe could be doing yourself a favor by looking for another therapist. If your current T doesn't respond to crisis calls, gets defensive and angry at you, and you're feeling this far adrift after a session? That doesn't sound the best therapeutic alliance, you know?

Whatever you think of anything written here, I do hope things get better for you very quickly. The pain alone would make most of the rest of life virtually impossible, I'd think. When do you see the ob/gyn? Soon, I hope.

Best luck.

 

Re: GRRRRRRRR!!! » Racer

Posted by Phillipa on September 3, 2005, at 3:32:20

In reply to GRRRRRRRR!!! » kerria, posted by Racer on September 2, 2005, at 20:46:56

Excellent response as usual. You're the greatest Racer! Fondly, Phillipa

 

Re: Why should i let drs abuse me? please help:( » kerria

Posted by Emme on September 3, 2005, at 6:42:18

In reply to Re: Why should i let drs abuse me? please help:(, posted by kerria on September 1, 2005, at 22:55:28

> Thank you, Emme, so much for your responding to me in this struggle.

I hear(read) how completely frustrated and desperate you are.

> Yes, i've had a lawyer. It's almost five years since i filed for disability.

Wow. 5 yrs. Was this lawyer any good? Also, has your situation worsened enough to strengthen your case?

> i do say i'm in terrible pain and try to reason with dr - who gives meds that don't work- actually they do work badly- not cover pain and leave me dangerously sedated.
> At least it's something or i'd be screaming.
>
> The dr just keeps saying in response to my desription of pain "You don't have a diagnosis."

That is totally unconscionable.

> There are so many tests that i've had - so many- abnormalities are found but the drs don't see how it can cause the pain that it does. They write that in my records and the dr reads it back to me.
>
> We get no where with this dr.
> I'm afraid that these records will follow me to what ever place, hospital, university hospital that i go next.
>
> i went to Johns Hopkins.... went to the Un of MD .... I went to the Mayo Clinic(hematology, gyn and pain medicine).

It sounds like you've done all the sensible things when you meet with them. It does sound very scary.

> ..... i wish i could get a new identity to get away from the medical records. Drs have written horrible things about me- because they see that i 'say' i have pain but there appears 'no reason'. To them it means hypochondia or drug-seeking. What else could it be?

> Thanks for trying to encourage me. i so need to have a new identity.

I'm sorry I don't have more concrete ideas. You need someone to believe you and something to go your way. I do hope the new doctor your mentioned in your other post can help you.

m.e.

 

Re: Why should i let drs abuse me? please help:(

Posted by Phillipa on September 3, 2005, at 17:59:11

In reply to Re: Why should i let drs abuse me? please help:( » kerria, posted by Emme on September 3, 2005, at 6:42:18

I do too. Fondly, Phillipa

 

Re: GRRRRRRRR!!! » Racer

Posted by kerria on October 14, 2005, at 12:59:37

In reply to GRRRRRRRR!!! » kerria, posted by Racer on September 2, 2005, at 20:46:56

Thank you so much, Racer, for your thoughts.
i was away from the forums for a while and away on vacation- now i found your post. i'm so Sorry that it took so long.

Anyways, i saw the Gyn who sent me to another Gyn/oncologist who offered to treat me - to maintain me on pain medicine if i could find no one else. i'm so thankful, that's how i have medicine now. Then he sent me to a dr who specializes in pelvic pain who finally diagnosed my condition and i know now that i have pudendal neuropathy/ compression of the pudendal nerve.

To treat it-
There is a rare surgery that not too many drs do,

there is a nerve block- the new dr sent me to the same group of drs - that the one that i went to before (oh no!)

there is physical therapy and a special seat to make to use to keep from putting pressure on the nerve when i sit

and i can take medicines, with a diagnosis finally.

Now it's so hard to go back to that pain management dr- i didn't send in complaint forms but it's too hard to trust this dr again- probably i should make an appt with another person at his practice?

i hate going back there after everything but at least i have a diagnosis and am not wandering in the dark not knowing what the pain is from.

((((((((Racer)))))))Thank you so much for being there when things were so hard before the diagnosis.
now i can tell this dr what i have but i think see another dr at that office for the nerve block. That is probably a good idea although i'm scared.

Take care,
kerria

 

Re: Why should i let drs abuse me? please help:( » Emme

Posted by kerria on October 14, 2005, at 13:06:29

In reply to Re: Why should i let drs abuse me? please help:( » kerria, posted by Emme on September 3, 2005, at 6:42:18

Thank you so much, (((((m.e.)))))safe hugs.

finally i know that i have pudendal nerve problem and can have treatment. To think of being out of pain sometime exceeds my greatest imagination. i hope that i can find something that works. At least i know what's wrong.

Take care,
kerria

 

Re: Why should i let drs abuse me? please help:( » Phillipa

Posted by kerria on October 14, 2005, at 13:08:23

In reply to Re: Why should i let drs abuse me? please help:(, posted by Phillipa on September 3, 2005, at 17:59:11

Thank you so much, (((((Phillipa)))))safe hugs.

God is in His heaven!


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