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Re: 1 year later and feel very bad... » Phillipa

Posted by Vincent_QC on December 9, 2011, at 21:06:56

In reply to Re: 1 year later and feel very bad... » Vincent_QC, posted by Phillipa on December 9, 2011, at 19:07:05

You know what, I think that I have IBS symptoms with constipation who is related to the anxiety and that the intestinal occlusions occur just like that, with no luck. I still have a lot of pain, nausea and severe constipation and developp a fear of having a bowel movement because of the fast heart ratewhen I strain or the irregular heart beat who happen all the time also when I have a bowel movement... anyway, we will never know what happen really, that's hard to separate the physical symptoms of the anxiety and the physical symptoms who are real and not linked to the anxiety itself...

For the PICC line, I was kinda drugged when they instal it in the upper part of my left arm, I was on Demerol 50mg injection every 4 hours to control the pain from the 2 surgery, since the Demerol is the only one opioid that I can tolerate... In fact I was only taking it to be able to sleep cause at 50 mg it was not really effective for the pain relief... After 12 days on the Demerol, the Doc said it was enough for me and that the Demerol is dangerous because of a metabolite who can give seizure and things like that after 3-4 days... so he change the Demerol for the Dilaudid injection and I only take 1 injection of Dilaudid and I do a major panic attack, the nurse took my bloood pressure and it was very low but the heart rate was around 160... even after 2 hours, so I never take pain medication again after those 12 days... just some tylenol + indomethacin suppositery every 12 hours for the inflamation and pain... the indomethacin was very nice because it was the only med who was able to stop my headache, but it's an old NSAID med and it's dangeroug for the heart, so again they stop the indomethacin after 14 days and put me on a low dose of Naproxen (250 mg) every 12 hours, who was doing nothing for the pain or the headache... I still have terrible rebound headache from the indomethacin... when I leave the hospital after 1 month I ask to have a RX of indomethacin for my headache but the Doc say no and just allow the Naproxen, saying it was safer for the heart... and he said to take it always with the Prevacid who is a proton-pump inhibitor and protect the stomach from bleeding... anyway...

I don't know if the fact that my intestine are short if it's have an effect on the absorbtion of the meds I take, but I think some of them are not well absorb and other are very well absorb, maybe too much (Benzo meds for example)...

The supraventricular tachycardia episodes I had was very scary, they start very fast and whatever you do to slow down the heart beat don't work... My GP teach me some valsalva manoeuvre or vagal manoeuvre to stop the supraventricular tachycardia but nothing work to stop them with the exception of the IV med that I don't remember the name... and just the regular sinusal tachycardia is scary for me, I can't sleep at night because of this or do things like taking a shower or just climb stairs, who is really annoying.. I really don't know what happen with my heart and all those tests I had, especially for the urinary cortisol, noradrenaline, adrenaline and domapine level mean nothing, if my heart rate so fast I need to have a lot of adrenaline in my head or my blood? I had a very low adrenaline level at this test, who seem to be not normal for me...same for the noradrenaline...the dopamine was a little bit high... cortisol low... but blood test proove that the cortisol level are normal, even at midnight... so I really don't get it...

The tilt table test is for POST, you are right... I have a lot of symptoms related to that disease, I have all of them in fact... and strangely POST is related to a low noradrenaline level... weird no? BUT I have tachycardia even in my bed since 3 weeks, so i'm not sure if it's POST or not now OR just a new fear of going to the bed for the whole night because of the enteral feeding machine, the pain and the bloating feeling I have when the liquid enter directly into my small intestine?

Well... I think I develop a lot of simple phobia over this year... never had fear of waking up at night to go to the bathroom or fear to go to sleep... that's crazy no? The constipation make me a lot anxious also, if I don't have 1 bowel movement each day, when I go to the bed at night, I start being very anxious because I fear to wake up in the middle of the night and have a urge needed to have a bowel movement and with the fast heart beat i'm scare to pass out...

Well, it's time to go to the bedroom now... I hate this now... I need to sleep but already have a fast heart rate ad know it will take forever before I fall asleep... will avoid the Remeron for tonight, I still prefer to sleep 4 hours than feel sedated all day long and dizzy and spacy like today...will maybe take the Xanax, will see if I fall asleep fast or not... of after 2 hours I don't sleep I will take it...

We talk later,

Vincent


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URL: http://www.dr-bob.org/babble/20111208/msgs/1004567.html