Posted by Vincent_QC on December 9, 2011, at 8:48:16
In reply to Re: 1 year later and feel very bad... » Vincent_QC, posted by Phillipa on December 8, 2011, at 22:57:36
Like I wrote Phillipa, I had to take a break, I think we argue about my very good (kidding here) Cardiologist and his explanation about the gastric by-pass related to my heart problems? Anyway, I wanted to see another Cardiologist to have more heart test done, especially the tilt table to see if i'm not having a postural tachycardia syndrome BUT no hospital in Quebec city have a tilt table!!! Will have to go out of the town in a bigger city to have one and the waiting list for that test is more than 1 1/2 year!!! I can't travel for now, even a 5 minutes ride in a car make me sick and terribly anxious.
For the meds, my GP think I absorb them too much and that i'm a too good metabolizer, mean that when I take them, it's like I take 2-3 times the normal dose, who explain the too much side-effects, but again, no test to see if it's the real problem about my med sensitivity...
The intestinal was linked to my gastric by-pass and the hernia repair I had, since they are both abdominal surgery, a lot of adhesion (scar tissue) was present inside my belly and those adhesions were glued to the intestines and the intestinal wall, who slow down the intestinal movement needed to have normal bowel movement... The first surgery I had was to repair the bile tube, empty it of the 6 liter of liquid and fix it correctly. They do another CT-Scan 1 week later because I continue to have pain, nausea and they saw the small intestine obstruction, so they sent me again in the surgery room and they remove all the intestine from the intestinal wall, clean them, fix the small intestine who was also twisted, they look if I had some leak and they remove all the adhesions (scar tissue) I had, apparently I had a lot of those adhesions everywhere in my intestinal wall...
At first I was feeding only with IV food, it was pockets of yellow liquid with protein and vitamins... the maximum time allowed to stay on the IV feeding is 2 week cause of the possible infection problem that can occur because this liquid goes directly in the big arteria near the heart, they instal a PICC line (peripherally inserted central catheter) especially for this purpose and after 2 weeks they start the enteral feeding in the jejunostomy tube who is connected directly into the small intestine. That tube also prevent future small intestine obstruction because he prevent the intestine to twist again... that tube is painful, even after 1 1/2 month and I can't sleep on my belly or laught without being in pain... Also the lack of protein and the malnutrition state have resulted in a big and long wound of 30 cm who became infected, and I had 3 big holes in the wound, 2 of them needed a special machine call V.A.C, a machine who apply negative pressure and make the hole heal faster... I had the VAC machine for 5 weeks, they remove it at home but I still have infection in my wound and 1 big hole who will take a lot of time to heal, that's not very beautifull and it's also painfull...
For the Cardiologist, I wanted to see a new one when I was at the hospital but they say no!!! I hate the public health system for that... Anyway, he his all the time out of the town OR at the university to teach, he never return my phone calls and i'm wating right now to have an appointment for an echocardiogram, to see if my heart is not enlarged or dammaged because of the malnutrition state. All the EKG are normal, they only show tachycardia with sometimes normal sinusale rhytm and sometimes respiratory sinus arrhythmia who is a naturally occurring variation in heart rate that occurs during a breathing cycle... so I Was told by other Docs that it was ok, even if my heart beat was at 240, it was regular and only supraventricular tachycardia OR simple tachycardia... When my heart had a 240 pulse rate, they give a med by injection but I don't remember it's name, but I remember that I was knocked out for almost 8 hours in a row at the emergency...
Hummmm, the funny thing is that here in the Quebec state, we don't have access to our medical folder... BUT when I was at the hospital I had a lot of tests done for my intestine and each time they give to you your entire medical folder in a close blue bag... one time I wait 20 minutes after the person who was suppose to bring me to another departement for a test and I had the time to read my medical folder, and I had access to my PDoc DX... Apparently i'm in the Cluster B axe 2 class... the funny thing is that it's not true at all... i'm not an antisocial person, I have social phobia, that'S not the same thing... i'm more a Cluster C person, mean a lot of anxiety and OCD... google that you will see by yourself... he also wrote that my mom is a control freak, that i'm dependent of my mom, that I have a bad relationship with her, that it's like i'm a kid even at 35 yo.. things like that... I was so angry about the PDoc and what he write... Anyway, I was told by my last Psychologist that I had somatoform disorder, mean that I had a lot of physical symptoms who can't be explain by the regular medecine... and some of those symptoms are also from too much ruminating and the fact that I lost all my personnality and that now my enterire personnality is all about my physical symptoms and my anxiety and that I lost my personnality... things like that... who is true by the way...
Well enough computer for today, had insomnia again last night, sleep barely 3 hours in a row, had to take a Remeron pill (only 3,5 mg) but god I hate taking this med cause I feel a lot more dizzy in the morning and my heart race faster also... The Dalmane who is a hypnotic benzo stop working after 3 weeks on it, so I avoid it now and I also try to not take too often the Valium cause i'm already on the Klonopin and occasionnal Xanax 1 mg day... sometimes I skip the Xanax, i'm not suppose to take it now, I stop it 2 months ago but need it now and was lucky to have 2 big jars (not the good word here) of real Xanax, not generic that I refill at the pharmacy before I stop it... just in case... who show my addiction personnality... anyway...
Feel free to e-mail me, vslippermen@hot...... don't take my e-mails often, every 2-3 days...
Bye
Vincent ;-)
poster:Vincent_QC
thread:1004509
URL: http://www.dr-bob.org/babble/20111208/msgs/1004543.html