Posted by bleauberry on April 10, 2011, at 5:52:26
In reply to Re: value of pain management specialist: experience? » bleauberry, posted by floatingbridge on April 9, 2011, at 9:20:46
Your symptoms appear consistent with infection. Lyme, who knows? Doesn't matter. Testing? Not worth it. Too expensive and too unreliable. For example, one of the common infections associated with psych symptoms is Bartonella, which is transmitted by cats, ticks, fleas, flies, and dust mites. Tests only target several of the 30+ different mutations. Same problem with the other bugs. They are all masters of deception as well. They trick tests in false negatives frequently. Long story, but fascinating how they have evolved the mechanisms to do that to our immune systems.
Lyme is such a generalized word it is almost not useable. While the primary bug borellia is the one usually thought of, there is babesia, bartonella, and a couple others. All very different but resulting in similar symptoms. Bartonella is the primary suspect however when psych symptoms dominate the clinical picture.
The best testing is probing. Do challenge tests with various substances. Herbs, meds. When something hits you really hard, you know you hit a bullseye. We won't know exactly what the bug is, only that you found something that nails it hard. For me that has turned out to be an otherwise modest benign tea called Pau D'Arco and another called Burdock. People drink these casually just for grins, no big deal, odd flavors, healthy. To me they are like nuclear bombs. The dead giveaway in my case is this....the nuclear bomb does not explode until about 2 days after I've had the tea. Up until then, nothing. That is a clear pattern of a Herxheimer reaction (mass death). Neither are spoken of with any popularity in the Lyme circles, but oh my the antimicrobial potency of these two for me personally, whatever bug mutations I have, is dead on.
There is significant overlap between psychiatric diagnosis, MS, chronic fatigue syndrome, and fibromyalgia. We don't know what the connection is. No one does. But we do know from real world anecdotal evidence that all of them can be majorly impacted with antimicrobial strategies. It is my opinion that a common thread with all of them is stealth chronic hidden infection.
> BB, sorry your good day/cr*p day ratio isn't better. But I know that two good days is also nothing to sneeze at.
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> I have a friend w/ lymes. Kicks her, really does. She presented as BPll for years until an unambiguous lymes test. She can't recall anything except an uneventful tick bite (no rash) ten years ago.
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> My new gp asked me to take this specific lymes test, but since I did a basic one a few years back, and it was out of pocket, declined.
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> I'll speak to her again about it. I just need to pace myself with doctor visits, $. And my taper :)
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> Thanks for telling me about yourself.
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> Did you wiki the guai?
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> fb
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> Oh, the feverish feeling is w/o an actual elevation of temperature. My thermo-regulator thing-a-ma-jig seems to be malfunctioning. Cold in 85 degree weather. Raynaud's like hot/cold extremities.
poster:bleauberry
thread:982266
URL: http://www.dr-bob.org/babble/20110406/msgs/982388.html