Posted by floatingbridge on April 8, 2011, at 22:33:41
In reply to Re: value of pain management specialist: experience?, posted by bleauberry on April 8, 2011, at 16:49:51
BB,
Thanks again for your generous support. I'm widening my treatment scope to include supplements and herbals. You've mentioned knotweed before. I don't believe that's well-known on my coast. I'll ask around. And something called, Boswella, boswalla? Thank you for the herb list.
Is neurontin very different in effect than Lyrica. Lyrica caused me to behave like a maniac. It was awful and didn't help my
pain :( though RADICALLY decreased anxiety, (though created terror ;) ), and thankfully walked me through what could have otherwise been nasty and protracted snri withdrawal.So, I wish and hope re: neurontin because it helps so many, but...?
I do have mechanical issues in the lumbar, so sometimes pain is localized there. That's the bass note. An updated MRI is due and should be ordered soon. A DO with the personal affect of Max Von Sydow in a Swedish flick says if my gp is in a hurry (ummm, what about me?) to order the lumbar MRI now. (What's the wait.) However, whatever the heck he does, it's kinda' really helping. So.... I see him in three weeks.
For the darn fibromyalgia, a very stress related shell game of shifting symptoms. With the lumbar issues, standing provokes pain and fatigue (darn!) so standing or sitting cross legged, swami-style, something I've done my entire life,
will assuredly elicit pain in the entire lower body, hips, and legs. Feet, hands
that ache to the elbow (CT, too).Feverish w/o fever, chills, flu-like aches w/o the flu.
Oh, this is a ridiculous long ramble. What else did I want to tell you?
No RA :) Pretty sure no Lymes, so not inclined to go the antibiotic route, but I'm filing it.
What do you know about guaicfene (sp?). A since dismissed fibromyalgia protocol uses it. Come across anything in your
studies and experience?Inflammation. Beginning to address that slowly. Yes. Have hashimoto's anyways. No doc knows what to do about that :( but inflammatory processes involved.
Told my new gp about LDN, and she read about it and said, let's go. So, nothing but 20mg daily of norco between me and starting. It won't cure me, but it could help.
Not looking for a cure anymore. Just well enough. :)
Thanks for your time. How have you
been doing?fb
*a rose by any name
poster:floatingbridge
thread:982266
URL: http://www.dr-bob.org/babble/20110406/msgs/982299.html