Posted by bleauberry on April 9, 2011, at 5:02:09
In reply to Re: value of pain management specialist: experience? » bleauberry, posted by floatingbridge on April 8, 2011, at 22:33:41
Just a couple observations:
>
> For the darn fibromyalgia, a very stress related shell game of shifting symptoms.Fibro is one of the most common names used in misdiagnosis of chronic low level infection such as lyme or others. Many Fibro patients have been improved or cured by treating as if infected. That generally means antibiotic and antifungal, herbals preferred to start and finish, but meds sometimes needed during the middle if more firepower is needed. Herbs are also the easiest safest way to "probe" to see if this is even an issue to pursue lightly or heavily.
>
> Feverish w/o fever, chills, flu-like aches w/o the flu.The above line really jumped out at me. That is highly characteristic of lyme and several other similar type infections. That is not characteristic of Fibro or the other mystery diseases.
>>
> No RA :) Pretty sure no Lymes, so not inclined to go the antibiotic route, but I'm filing it.Unless someone has done some probing and challenge experimenting, there is absolutely no way to know if lyme or lyme-like is involved or not. Even the very best lab tests have high rates of error. Our technology is not there yet, and doctors are not well schooled on the topic. Assuming you don't have an infection is, in my opinion, a monumental catastrophic mistake.
I said it for years and years...."I don't have lyme or anything like that, that only happens to other people." The less we know about a topic, the more inclined we are to think it doesn't apply to us. So imagine my surprise when anti-infection herbs and detox (DMSA and/or ALA) gave me more global improvement than an entire backpack full of meds. That is hard to grasp until one actually experiences it themselves. It's almost impossible to convince someone else it is a huge issue, that is, until they discover it for themselves.
>
> What do you know about guaicfene (sp?). A since dismissed fibromyalgia protocol uses it. Come across anything in your
> studies and experience?I am not familiar with it.
>
> Inflammation. Beginning to address that slowly. Yes. Have hashimoto's anyways. No doc knows what to do about that :( but inflammatory processes involved.For sure the Stephan Buhner Lyme herbs are called for here. Primarily Japanese Knotweed and Stephania Root. Neither are common, so need to be ordered on the internet. Both are common and widely researched in China and Japan.
>
> Told my new gp about LDN, and she read about it and said, let's go. So, nothing but 20mg daily of norco between me and starting. It won't cure me, but it could help.LDN stands a good chance of being a friend for you. The dosing is tricky. While they say 1.5mg to 4.5mg, new things have been discovered. Even much lower doses have been helpful to some. Me for example, I do good on 1/8th of a 1.5mg capsule, but not so good any higher.
>
> Not looking for a cure anymore. Just well enough. :)Yeah me too. I think when so much time passes there will be residual damage that lingers. But something close to a cure is definitely a realistic goal.
>
> Thanks for your time. How have you
> been doing?
>
> fbCompared to 2 years ago, I've made some notable progress. Two days a week I can actually say were pretty good, one or two days fairly bad, and the other days kind of just the usual crap. Such is the pattern of healing....ups and downs, with the ups taking on more frequency over time. The longer the illness has been entrenched, misdiagnosed, or mistreated, the longer the recovery.
poster:bleauberry
thread:982266
URL: http://www.dr-bob.org/babble/20110406/msgs/982322.html