Posted by headachequeen on November 5, 2004, at 13:19:21
In reply to no longer wondering, posted by rainy on November 5, 2004, at 13:05:48
> Well, I'm sure not wondering any more Kat, good to have you back. About that nerve pain--was trileptal one of the other meds suggested for treating it? It's sort of a cousin of tegretol. And, relentlessly, (me asking) have you noticed any hairloss on tegretol?
> Your experience has put the fear of at least one of the gods in me--I have taken low potassium levels very lightly.
> rainy
Thanks, rainy, it is good to be back... although I am heading back to bed soon <g>
I am NOT going to sleep though... terrified to do that...
trileptal is not the one my doctor mentioned... it started with n actually but he does not want to introduce any other anti-seizure meds into the mixture right now... actually if the pain were not such a constant and if it were not such a frightening thing for me he would leave it alone ...
but he prescribed an old anti-depressant whose name I can't remember; apparently it works on these nerve things... it is low dosage and I am on 10 mg for a week; if it doesn't work in three days I can go up to 20 mg and I am to see him in two weeks...
I am seeing my orthopaedist on Monday... the ambulance gurneys and the emerge gurney in Ottawa for several hours did a real number on my back and hip; I am going to see if he will do accupuncture and get rid of it that way now that I know it is not related to that disaster of Monday...
that had me really concerned;as for tegretol and hair loss oh yes... there is much more hair loss with it in my experience than with topomax ....
but with the vitamins and the biotin and the specialty shampoos it stopped and then the system seems to adjust. I use a lot of wax and putty and stuff on my hair and I don't seem to lose hair any more than any one else... or my stylist would tell me, believe me!!!!
But at first I did and I thought that Tegretol was going to make me bald...
and it causes nausea... then the tech doing one of the telemetry eeg tests told me that was because I was not taking it with food... same with topomax... take it with a small bit of food a banana or an orange not a huge meal ... and always at the same time and always twelve hours apart, the doses so there is a constant amount in the blood stream
and the time should be a constant... that I learned this week...
eight in the morning and eight at night... then the blood stream meaintains a constant level...
and if anyone else is on both, take the two, two hours apart...
here endeth the lesson <g>
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20041103/msgs/412191.html