Posted by headachequeen on November 5, 2004, at 12:49:49
In reply to topamax and balance, posted by rainy on November 1, 2004, at 20:08:28
> He said that Topamax often makes any neorological problem that you already have worse and gives you problems that you didn't have before you took it. He agreed that of course the balance issue was pre Top but he thought it was worse because of the medication. He also said that if I stopped it, and he thought I should and take lithium or something else, "there are lots and lots of drugs out there," my balance, handwriting and "ditziness" would improve.
> I really wish I didn't feel I had to tell doctors everything they want to know.
> rainy
>Interesting, to think of the attitude toward topomax ...
having just spent the past four days in hospitals... 24 hours of them unaware of who I was or where I was or what day I was or anything else...
while they changed several of my medications,and added a few, some for the long haul and some in an effort to stabilise things, Topomax was not touched... the neurological team left it and the dose I was on as it was...
and I found out today as I was being released that the pain above my eye is a nerve and I forget what they said about it ... just relieved it is not related to the epilepsy stuff <s>... that Topomax is the drug of choice for treating it, tegretol the second, and another anti-seizure the third...
...
there were several of them... they kept asking me how many fingers I saw and I had a hard time with that... heck when I came to I had no idea what day it was, so I have no idea how many of THEM there were LOL but all of them approved the Topomax and are looking as a team for alternatives to Tegretol...
At no time did I hear any criticism of it... but I was off tegretol for the whole time I was there and only started back on a lower dose the morning I was to leave; this evening will be my second try at it again with the new drug introduced at bedtime...
so not everyone is against it...
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20041103/msgs/412174.html