![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 22 to 46 of 46. Go back in thread:
Posted by corafree on July 26, 2006, at 22:10:29
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Kath on July 26, 2006, at 20:42:21
I called the colorectal surgeon's office. Talked to his MA and 'he' called me back.
I said "I'm distended, bloated, hard as a rock, and in pain" and "I'm crying one minute and angry the next"
He said "All I do is colonoscopies and if you are having problems with not taking your meds maybe not do it."
I said "No! Not after all this"
I said "Did you get my c-spine MRIs so that my neck will be positioned properly?"
He said "All I do is colonoscopies and if you are having problems with your spine maybe not do it. I will pay no attention to that."
I said "Can I be 'totally out of it'?"
He said "All I give is Versed and Demerol and your insurance will not cover general so maybe not do it."
I said "No not after all this. See you tomorrow."
He said (or did I hang up on him? :) ;) "okay".
He was SO WAY trying to get out of doing this and as far away from, me/anyone who had emotional or physical problems, as possible. He so NOT needed my business. I would never recommend him to anyone. I can't believe a good doc I know recommended him. Somehow he made a 'first met judgement' and hasn't 'cared' for me since.
But after all this, I better do it.
So I guess if I'm drinking Pepsi it won't be clear? :( Still just like pee'ing but not clear. Have to go buttpee!
Have to take two more Dulcolax tonight!?
How will I go w/ no drink til' 10a tomorrow. I wonder if one ice cube equals 1/2 sip so I could have two ice cubes.
OMG I don't know what I'd have done w/o my friends here. Thank you all very much.
love, cf
Posted by Kath on July 27, 2006, at 16:28:33
In reply to Re: Butt, I'm Really Freakin' Out! :(, posted by corafree on July 26, 2006, at 22:10:29
Holy Croker,
He sounds like quite the ticket!
You can always swish your mouth out with water if it gets really dry & spit it out.
You're in my thoughts.
I can't believe how mean he is & insensitive.
What about your neck though? About the postioning thing?
I send hugs, Kath
Posted by corafree on July 27, 2006, at 19:07:17
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Kath on July 27, 2006, at 16:28:33
My worst fear did come true.
I was given Fentanyl and Versed about one minute because he began the colonoscopy. The meds did nothing!!! If anything, 'I was more awake!
I couldn't watch the TV as I was screaming bloody murder and biting down hard on anything I could find. It was like someone was turning a corkscrew inside me.
My suspicions were right. Knowing that I was on narcotic maintenance, he purposely withheld enough pain med!
After it was over, he stopped by to say, "I told you so!" and "Your colon is longer than most and is spastic, but I'm not prescribing an antispasmodic because you're on Valium."
I feel so sore and so abused.
cf
Posted by Deneb on July 27, 2006, at 21:04:58
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 27, 2006, at 19:07:17
(((((((((((((((corafree))))))))))))))))
I'm so sorry that happened to you! It's over now. I hope you can forget about it.
(((((corafree)))))
Deneb*
Posted by Phillipa on July 27, 2006, at 21:49:14
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Deneb on July 27, 2006, at 21:04:58
Fentanyl is what the anesthesia docs abuse. It didn't take away the pain. Hard to believe. So what's the next move? Sorry Love Phillipa
Posted by corafree on July 28, 2006, at 1:48:33
In reply to Re: Butt, I'm Really Freakin' Out! :(, posted by Phillipa on July 27, 2006, at 21:49:14
Tks Deneb, and Phillipa, "I can't believe Fentanyl didn't work either?! I went in there w/ a horrible migraine and it was every bit as bad, or worse, after the Fentanyl and Versed!" He definitely didn't give me 'enough'!
My daughter wants to file a complaint against the colo-rectal for putting me through so much pain today. She was so upset. She has two little girls, and teaches school, so is very busy. I can't expect her 'to go to bat' for me.
I gotta' tell ya' ... feels like I'm dam*ed if I do and da*ned if I don't.
I can find a way to stay on a narcotic and be free to live w/o pain, but will continue to suffer w/ bowel problems, ... or I can choose to be bedridden w/ pain and probably have less to very little bowel problems.
I called a crisis line when I got home that is called Nurseline (psychiatric), and asked for a nurse experienced in both mental/physical. She promised to call me back after I took a short nap, but didn't.
Seems every time I turn around, I get kicked in the *ss again.
The times I've been inpatient mental health, there was only once that there was any focus on the 'medical side of my health'.
This place had a campus w/ five bldgs/units,.. CARE (a place for people w/o good insurance to be fed, counseled, rest, and recup), teen mental health, adult mental health, detox (Here physical pain mngt was addressed and medical meds could be ordered by on site docs and prescribed.), and an alcohol/drug 15day to 30day program.
Before my father passed away, I wanted to make him proud of me, and 'wormed my way in here' to try and d.c. all meds.
I had begun in detox and requested to go to the 'AA/NA program' as I thought maybe that would help me learn to live with pain. While in this unit I had 'so much pain' I was sometimes unable to sit through an hour long group. I tried so hard, but in the end, even my P there said, "You'll have to be on a narcotic and if you take it as prescribed, you are not in need of NA, or if you want to attend NA meetings, taking your medication as prescribed does not mean you're not clean."
Chronic physical pain is so depressing, and 'I think' when it manifests as a migraine or a cluster headache, it's the worst. I feel if it were lower back pain, it wouldn't be such a bother to 'my thoughts', 'my ability to see and hear', and 'my ability to think clearly'. I dunno'.
There are only a handful of treatment centers in US that focus on both mental illness and chronic pain. They are for the well-insured or wealthy.
Two years ago I was 'not a surgical candidate'.
What I need is a doctor that really cares about pain management. They're next to impossible to find. I've gone through about five in the last five years, that keep sending me back to my PCP to dispense narcotics, which PCPs don't like of course!
I'll try to go to the meetings of the ACPA (American Chronic Pain Association) here and meet people who I'm hoping can point me in a helpful direction. If I can even do that, I'll be doing about as much as I feel capable of right now.
love, cf
Posted by Kath on July 28, 2006, at 8:43:18
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 27, 2006, at 19:07:17
((((((((((((((((((Cora)))))))))))))))))))))))))
You were sore and you WERE abused honey.
I hope that, like here in Ontario, a copy of the 'specialist' results will be sent to your family doctor. I'd phone fam doc & check. Once that's done
OH dear - here I am givine unasked for suggestions.
If it were me, I'd type up - in easy to read point form - the whole thing including 'he said, I said' - what I'd do with it, I'd decide later, but I'd get it down on paper, that way it would be out of my head & available if I decided to do anything with it.
Then I'd make sure the results got to my fam doc & with the diagnosis of spastic colon the fam doc could prescribe.
But, I think you went for a 'I'm of an age where I should get a colo done' didn't you? I know you had bloating or problems near the end, but if you hadn't before, that could easily be from all the prep & the STRESSSSSSSSSSSSS.
If you have spastic colon & no symptoms, you could just read up about it & see what it's about. There are tons of alternative things you can do for pretty-well any ailment or condition. The Board here is a good source of info & I have some excellent books if you (or anyone for that matter) ever wants me to look up something.
I'd certainly give a copy of the 'history' I'd typed to the person who recommended this guy.
I hope your neck came through it OK. I haven't time to read much more as to posts.
Take care & you're in my thoughts Cora
luv, Kath
Posted by corafree on July 28, 2006, at 11:04:11
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Kath on July 28, 2006, at 8:43:18
I'm searching alternative forms of anti-spasmodics now.
My PCP/family doctor, 'doesn't care, or maybe can't care', either. Both the colo-rectal doc and my familydoc/PCP are, 'anti-narcotics w/ re: fear of losing license to practice'.
No, I didn't have the colonoscopy for health maintenance.
I have a c-spine injury that requires narcotic maintenance, which worsened an already existing irritable bowel syndrome. Recently I became so bloated, distended, and sick w/ 'no pooping when on narcotic', and 'way too much pooping when tried to cut down on narcotic'.
I'm chasing 'my tail' .. haha.
I'll do something like you suggested re: write a synopsis of the ordeal, but still feel too sick to do this day.
TkKath, cf
Posted by Kath on July 28, 2006, at 14:30:47
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 28, 2006, at 11:04:11
Hi Cora,
Sounds like you're taking good care of yourself. That's good. I hope there are nuturing things that you can do that will help you (& your 'inner little girl', who is probably feeling pretty darned awful right about now) to feel safe & cared for. Like music you like, candles if you like them, warm bubble baths if you like them, reading a book that you like or watching a video, raiki or massage if you can afford it (stuff like that is so expensive these days that I bet most of us can't afford it).
Maybe the Alternative site would come up with some suggestions regarding anti-spasmodics.
In looking at 2 of my books under Irritable Bowel Syndrome, or Spastica Colon, here are some results:
Alfalfa is mentioned as very important. Also Vitamin B complex 50-100 mg 3x daily with meals & extra Vitamin B12 200 mcg 2x daily. Re the B's it says they're needed for proper muscle tone in the GI tract & B12 is needed for proper absorption of foods, protein synthesis & metabolism of carbs & fats.
Next important, they say is Acidophilus (more below).
They also mention Alo Vera & Garlic & Fibre
Peppermine oil is widely used for IBS 1 0r 2 capsules (0.2 ml/capsule) 3x daily fetween meals. It says that because the amounts needed can cause heartburn, the best formulations are enteric coated to pass intact through the stomach & that this would usually be stated on the labet.
Lactobacillus Acidophilus - the 'friendly' bacteria that's in yogurt. You can buy it in capsule form or powder. It should be in the cooler section in a natural foods store. It should be kept refrigerated. The best kind has FOS in it to encourage the bacteria to grow more 'colonies' or something like that.
Slippery Elm - I've had enormous personal success with using slippery elm packs on my abdomen in times of Crohn's disease flareups. It is exceedingly healing. Ask me if you want details. 28 years ago I had to have 2 sections of bowel removed due to Crohn's disease. Some years later I had a very bad flareup & was terrified that I'd need surgery again. I firmly believe that using slippery elm & mullein helped me get better. Mullein is a tall weed with large flannely leaves & a tall flower spike with yellow flowers on top. Ask me for details about making the 'tea' if you like.
The books also mention L-Glutamine.
They say if you have IBS it's wise to treat your liver as well as your digestive tract, preferably with milk thistle extract (silymarin).
There are additional herbs mentioned & there's a big list of "avoid" stuff: animal fats, butter, all carbonated beverages, coffee & all caffeine, candy, chocolate, all dairy products, fried foods, ice cream, all junk foods, margarine, nuts, orange & grapefruit & juices, pastries, processed foods, seeds, spicy foods, sugar, sugar-free chewing gum, wheat bran & wheat products! YIKES - what does that leave!!!? It says those foods encourage the secretion of mucus by the membranes & therefore prevents the uptake of nutrients.
It says to relieve occasional gas & bloating use charcoal tablets.
Anyway Cora, as I said - I have a TON of reference material if you want any info about any of this or more.
I hope you have a relaxing, restful day & weekend.
Know that my thoughts are with you. luv, Kath
Posted by Jost on July 28, 2006, at 23:14:25
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 28, 2006, at 11:04:11
Hi, Cf.
Your experience sounds awful--totally unacceptable. There should be sanctions for people like that doctor. Seriously.
I was wondering if you'd tried something called Miralax? It's a prescription drug, but is, according to my Signif. O., is one of the most effective treatments so far.
I assume you drink enough water, and do all the other things--
My SigO's brother had the same problem that you've got, at least with the opioids, leading to loss of muscle tone in his digestive tract-- He had chronic pain also, and took very high doses of various drugs at various times, including fentanyl, oxycontin, dilaudid, and many other things.
There are doctors who specialize in treating Opioid Bowel Syndrome, since it's a pretty widespread although under-diagnosed and very undertreated problem. But they do exist. I know you have the complication of Irritable Bowel, so it might be more difficult to find the right approach. Even more reason to try to find someone who knows this area particularly, not just a general gastroenterologist.
My brother-in-law (I consider him that) consulted an MD at Columbia Presbyterian Hospital in NY, who specialized in this problem. She was very helpful, although ultimately, he needed to reduce the painkillers-- not stop them, but be careful to hold them below a certain amount.
I hope you can find ways of monitoring how much you use(totally as a practical thing-- because it does have these effects). I particularly hope you've got help with the emotional aspect, because that's where he got overwhelmed, and I think let the drug use spiral more than it needed to, and just couldn't taper, even though he needed to do that too, for medical reasons.
If there;s a good medical center near where you live, I would really check into that. It could make so much difference. Esp. because the person would understand that you need much greater doses of anesthetics, if you have procedures where you need pain control. Also, people who work with the problem understand the necessity of opioid use-- and can be so much more helpful, and non-judgmental.
There have been drug companies who've worked on more targeted treatments, not yet successfully, but maybe they'll find something.
Just know that you aren't alone with this-- even if people don't talk about it, and your doctor was uneducated, and had all the prejudices.
If I find anything on other treatments, I'll definitely let you know.
Meanwhile, I hope you're feeling a little better, physically and psychically.
Jost
Posted by corafree on July 29, 2006, at 6:39:59
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Kath on July 28, 2006, at 14:30:47
Wow! Thank you very much for the research and sharing what has helped you.
I've printed your alternatives.
One thing that confuses me is fiber ... so often fiber is 'wheat' and yet you shouldn't have wheat.(?)
I've had cravings for 'wheat' in the last 4-5 months. Not sure why. Just can't seem to get enough Triscuits and Wheat Thins! A doc thought celiac dz should be ruled out, butt . . .
After all this ...
I've never been 'so hurt' by a doctor and I've taken on a negative attitude towards all of my doctors, after this experience.
I feel so violated! This experience felt like abuse. I'm so angry. It's going to take something to get past this, maybe time, forgiveness, or filing a complaint; I'm not sure.
(I'm used to abuse so I didn't react as I should have when it happened.)
My daughter was angry. She called me the next day to ask if I was going to file a complaint.
I kind of know how the State Board of Medical Examiners works, and one complaint 'is nothing' on a doc's record. And, this is especially true if he is as successful as this doctor. If I had the 'bucks', I would turn to the law.
Hopefully I can find a natural supplement that will help me. Think I'm still 'in shock' right now. I feel angry at the whole world, and I don't like it. I take it out on the loved ones around me. I feel bad.
It's interesting you picked up on the 'little girl inside', as she is devastated! It's so hard to 'care for her' ... when you go to great lengths to find someone to care and they abuse you.
TksSoMuch, cf
Posted by corafree on July 29, 2006, at 7:17:07
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Jost on July 28, 2006, at 23:14:25
Prejudice is right!
I'd never heard the medical term 'opioid bowel syndrome'! I didn't know there were docs specializing in this.
I have Miralax! I wonder if you wouldn't mind asking your sig-other, ... does it make her upper abdomen, up to ribcage, 'distend a lot' after she takes it?
This is what happens when I take it, and I can't sleep on my side or in a comfortable position. I have to lie flat on my back as the pressure is up so high that my breathing is labored. I'm wondering if this is because I have a colon that is, I think he said ... about a foot longer than normal.
This was 'abuse'! I won't use the actual word that's on my mind. Unfortunately, there are all sorts of reasons fighting back would be nonproductive. I think? When left my ex-abusive husband, I didn't even bring it up!?
I must have pretty low self-esteem to 'just think' it's okay to allow others to treat me this way.(?) It's odd to pinpoint your self-esteem. If someone were to ask me if I liked myself, I'd say 'Yes I like myself a lot, whether you do or not'. I feel prior abuse has 'messed up my thinking'. Ya' know, that 'borderline' confusion.
I had been cutting back on Percocet for about a month prior to this, and that's when 'anything and everything I ate, caused awful pain and d*arrhea'. I'm thinking my insides 'have become accustomed to remaining still'.
Today I took two of the three I am allowed.
My PCP isn't being supportive, so I've found the name of a family doc/PCP out here and made an appt.
I would love to find a pain clinic ... but w/ my insurance?
I'd asked my PCP for another referral to PT at last visit w/ him (I want to find out what sort of exercise equipment I can use w/ a c-spine injury.) and he wrote a referral for 'a chain' of PT centers here. (The last 'chain' of PT I went to didn't have any exercise equipment.) I called, and they don't take my insurance! I'm afraid money is a problem here. Yet, I refuse to bring a man into my life for financial reasons.
Maybe attending the ACPA meetings in Sco*tsdale will be my 'yellow brick road'.
ThanksSoMuch, cf
Posted by Kath on July 29, 2006, at 10:03:00
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 29, 2006, at 6:39:59
Hi Cora Sweetie,
I'm answering between *****marks******* - otherwise I won't remember what I want to reply to.
> Wow! Thank you very much for the research and sharing what has helped you.
>
> I've printed your alternatives.
>
> One thing that confuses me is fiber ... so often fiber is 'wheat' and yet you shouldn't have wheat.(?)**********There are lots of sources of fiber other than wheat. If I were you I'd steer clear of wheat for at least a week & see if it makes a dif. More on that in next paragraph. One book I have, Prescription for Nutritional Healing (an amazing resource for those interested in being proactive in an alternative way with their healthcare) lists the following:
"Fiber: oat bran, flaxseeds, psyllium seeds & Aerobic Bulk Cleanse (ABC) fro Aerobic Life Industries. Take as directed on label. Take SEPARATELY from other supplements & medications. Has both a healing & cleansing effect. Avoid wheat bran, as it may be too irritating. Eat a high-fiber diet including plenty of fruits & vegetables, plus whole grains (especially brown rice) & legumes (example, lentils, peas). Use supplemental fiber. Psyllium powder regulates bowel movements & should be used daily. Also use oat bran & ground flaxseeds daily, on an alternating basis."******> I've had cravings for 'wheat' in the last 4-5 months. Not sure why. Just can't seem to get enough Triscuits and Wheat Thins! A doc thought celiac dz should be ruled out, butt . . .
********LOL - is that extra 't' in the but done with a grin?!
Celiac is gluten intolerance. Gluten is in wheat, rye, barley, oats. I think ruling celiac out is a good idea, however I think they do it by taking a biopsy of the bowel, which is maybe why you added the extra 't'!!!
I have gluten intolerance. It can be a strange condition. In my case, when my Mom began to introduce cereals when I was 9 months old I got sick & so it was diagnosed. I was what they called in those days (I'm 59) a "banana baby" as I was raised on ripe bananas & cottage cheese & skin milk. Until I was 5! Can you imagine only having those foods for ones body to grow & develop? Yikes. Anyway, around 5 they introduced wheat & I ate normally for years. In my early 20's my Mom died of cancer & I had a my Dad was sick with silicosis & I was personal assistant to a deaf-blind woman with MAJOR psycological problems, as one might well imagine! I think it was the stress, but at that point I got sick - bad stomach pains, etc. Of course I thought I had cancer! being me, who thinks EVERYthing is cancer! Anyway, I lived gluten-free for decades. A couple of years ago I discovered an amazing holistic practitioner who my daughter was going to for environmental illness. He asked me if I'd like to be free of celiac! I thought "oh yeah, as if". But I can now eat a piece of pizza or a couple of cookies, etc without problems. I don't "push it" by going overboard. I
> After all this ...
>
> I've never been 'so hurt' by a doctor and I've taken on a negative attitude towards all of my doctors, after this experience.
>
> I feel so violated! This experience felt like abuse. I'm so angry. It's going to take something to get past this, maybe time, forgiveness, or filing a complaint; I'm not sure.
>
> (I'm used to abuse so I didn't react as I should have when it happened.)
>
> My daughter was angry. She called me the next day to ask if I was going to file a complaint.
>
> I kind of know how the State Board of Medical Examiners works, and one complaint 'is nothing' on a doc's record. And, this is especially true if he is as successful as this doctor. If I had the 'bucks', I would turn to the law.
>
> Hopefully I can find a natural supplement that will help me. Think I'm still 'in shock' right now. I feel angry at the whole world, and I don't like it. I take it out on the loved ones around me. I feel bad.
>
> It's interesting you picked up on the 'little girl inside', as she is devastated! It's so hard to 'care for her' ... when you go to great lengths to find someone to care and they abuse you.
>
> TksSoMuch, cf
Posted by Kath on July 29, 2006, at 10:06:51
In reply to Re: Butt, I'm Really Freakin' Out! :( - long » corafree, posted by Kath on July 29, 2006, at 10:03:00
I'll continue Cora
Kath
Posted by Kath on July 29, 2006, at 10:29:45
In reply to Re: Butt, I'm Really Freakin' Out! :( » Kath, posted by corafree on July 29, 2006, at 6:39:59
> I've had cravings for 'wheat' in the last 4-5 months. Not sure why. Just can't seem to get enough Triscuits and Wheat Thins! A doc thought celiac dz should be ruled out, butt . . .
**********Anyway, this guy (I can look up his website if anyone is interested) said that he'd helped numerous people overcome celiac. He said there's only been ONE person who didn't get better. And THIS freaked me out - makes me believe even more than I already do about how powerful our mind/emotions are....the lady who did NOT get better was the President of a Celiac Society in the U.S. What about that eh? If she got better & wasn't gluten intolerant any more WHAT WOULD SHE BE???? Her whole life would be turned around!!!!!!!
Anyway, I've digressed big-time. Your symptoms are certainly the same as celiac. The best way in your case to check it out is just NOT eat gluten. If you're really doing a serious check you'll have to read labels like heck! Wheat is in all kinds of things you might not suspect. It's in a lot of processed foods. If you decide to do this, check all tins & packages. At the very least, I'd suggest cutting out wheat. As I said, gluten is in Wheat, oats, rye & barley. I think that's it. You can get yummy rice crackers Cora. They're a bit more expensive I think, but you can also get brown rice pasta, which my family likes better than regular. If you decide to do it & have ANY questions or need support in it, please feel free to ask me.
I have read & heard in the past, that often if we crave a certain food, it indicates that we are either allergic to it, or have built up an intolerance to it. We can sometimes begin to react to the foods that we eat ALL THE TIME & LOTS OF THEM!!! I guess that rules out tomatoes for me! As well as tea, cheese & lots of stuff!
Anyway, if I were in your situation I think I'd cut out wheat - probably gluten altogether for at least 7 days. I'm sure there's info on this issue on the internet, but I'm here too.*******
> After all this ...
>
> I've never been 'so hurt' by a doctor and I've taken on a negative attitude towards all of my doctors, after this experience.****Of coures - that makes total sense. Esp. for your inner little kid. They are NOT SAFE & they're bigger than her & have all kinds of power!!! Please write her a little note if you feel so inclinded, telling her you hear her & know her pain & that you're also VERY upset at the way you 2 have been treated.*********
>
> I feel so violated! This experience felt like abuse. I'm so angry. It's going to take something to get past this, maybe time, forgiveness, or filing a complaint; I'm not sure.****Cora, it WAS abuse. In my not-very-humble-opinion it was emotional abuse & physical abuse at LEAST. If there's such a thing, it was "a-professional-abusing-his-position-of-power" abuse also. At some point you might write a letter saying exACTly what you wish you'd said to him.....the secret is you know you're not going to actually post it, so you end up saying whatEVER you need to say!!!! I've found this a really good healing tool. I even used it in writing my Dad a letter & he'd been dead for years! LOL I put it in an envelope & wrote his first name on it, sealed it & put it in the post box. And even at that - my heart was racing & it was scarey!! But it really helped.***
> (I'm used to abuse so I didn't react as I should have when it happened.)
******I hope you aren't doing a negative judgement on yourself. "Should have" - 'would have if I hadn't experienced abuse' might be more accurate.******
> My daughter was angry. She called me the next day to ask if I was going to file a complaint.
>
> I kind of know how the State Board of Medical Examiners works, and one complaint 'is nothing' on a doc's record. And, this is especially true if he is as successful as this doctor.*******Nevertheless, you are certainly NOT the first person he's treated with disrespect. If every one of you said that one complaint is nothing, he'd get NO complaints. Who knows how many he has already.********* If I had the 'bucks', I would turn to the law.
>
> Hopefully I can find a natural supplement that will help me. Think I'm still 'in shock' right now. I feel angry at the whole world, and I don't like it. I take it out on the loved ones around me. I feel bad.********Please tell me if I'm being too pushy! I'd suggest you check the Alternative Board. There's a post I started on something called TAT. The website for this method (which if FREE - you do it yourself - & easy & non-traumatic) is: www.tatlife.com*******
>
> It's interesting you picked up on the 'little girl inside', as she is devastated! It's so hard to 'care for her' ... when you go to great lengths to find someone to care and they abuse you.******Oh yeah. Big-you is probably really guilty somewhere inside. Little-you is probably confused & lots of things. Have you ever done any non-dominant-hand writing to your inner child? Ask me if you're interested in knowing about it...or anyone else can also.******
> TksSoMuch, cf
*******You're welcome Cora. I'm such a "babbler" - but I guess that's OK here!!!???
Sometimes I worry that people will think "Oh there's Kath again expounding & acting as if she knows everything. I'm really insecure about that, so please people, tell me if I'm stepping over the boundaries of what is O.K.
love, Kath*****
Posted by Jost on July 29, 2006, at 23:44:32
In reply to Re: Butt, I'm Really Freakin' Out! :( » Jost, posted by corafree on July 29, 2006, at 7:17:07
Cf, My Sig O isn't sure what the exact effect of the Miralax was (this was a brother and they've been out of touch). How long do you have to wait before you're more comfortable after taking it? I can ask more questions.
It occurs to me that if you'd been cutting down on percocet, there could be an adjustment phase, when your body isn't so comfortable, or stable-- your system might be starting to work again, but not smoothly.
It might take time to get to that point where everything is in sync. If an organ, or organ system, with all the chain reactions and processes that go on, has shut down a bit, any change can be initially disruptive. Just like a change of medication, the various things that have to interact in just the right way might not yet be attuned to one another.
It could take longer than you expect to readjust. Give it more time. Especially if you've been very anxious, because that can affect this, too.
---
What you experienced was unacceptable, abusive.
I don't know what would be right for you, but I personally wouldn't go the route of a complaint, at least not one where there's a time-consuming process. That could be more stressful, and ultimately unsatisfying-- And it might not (probably wouldn't) get you what you need, which is peace of mind.
This doctor isn't worth the possible hurt you might experience in the attempt to get the message across-- if you even could-- This guy will walk straight into karma on his own.
Better that you take good care of yourself. That's where to put your mind, if you can-- on doing things for yourself. You're the one who matters.
I'm glad you're going to the ACPA. That could be a really great resource, and support.
And finding a PT-- maybe there's one out there whom you could locate-- would also be worthwhile.
Hope you're feeling a bit better.
Jost
Posted by Kath on July 30, 2006, at 13:29:15
In reply to Re: Butt, I'm Really Freakin' Out! :( » corafree, posted by Jost on July 29, 2006, at 23:44:32
Posted by corafree on July 31, 2006, at 14:01:45
In reply to What's ACPA? (nm), posted by Kath on July 30, 2006, at 13:29:15
Kath, Jost ... I've just gotten back online this Mon a.m. and have to go on an errand. I'm sorry .. 'skimmed over' (You're not sounding like a 'know it all' Kath!) and will respond to all your insight. Isn't there gluten in potatoes? I'm going to look at cereals on my errand. Yes ... I will do something re: the colo experience. Strange thing this a.m. got a call from the doc I've known for the longest period of time here ... an OB-GYN that's really into hormones, celiac, performed first repair that failed, wanted me to see a neuro re: cyst in T-spine(?), etc., and can't be sure, but think he must have heard from the butt doc. He referred me to him and I'd requested a copy of the dictation to be sent to him. Hope he wants to see me to help me as at this point I'm pretty down on docs in gen'. American Chronic Pain Association. Will re-read and get back to yous.
TksLove, cf
Posted by Jost on July 31, 2006, at 18:54:31
In reply to Re: What's ACPA?, posted by corafree on July 31, 2006, at 14:01:45
Take it easy, cf.
Hope you ob-gyn can give you advice, or restore your faith in doctors a little. You definitely should tell her about this guy, because she's making referrals to him. At the least she won't do that in the future.
You sound better today. That's good to hear.
Jost
Posted by Kath on July 31, 2006, at 18:57:43
In reply to Re: What's ACPA?, posted by corafree on July 31, 2006, at 14:01:45
Potatoes - no, not that I know of. Maybe you're thinking of starch.
:-) Kath
Posted by llrrrpp on July 31, 2006, at 22:26:15
In reply to Re: What's ACPA?, posted by corafree on July 31, 2006, at 14:01:45
Hi Cora,
I wasn't keeping up with your story, but I just wanted to say that I'm so sorry you had to go through this. You deserve so much better. I hope that you can find something that helps you, perhaps alternative things, like Kath suggests. At any rate, take care of yourself, and be happy that your experience with this brutal doctor is over.By all means tell your other doctors your terrible experience. If this pompous specialist gets the cold shoulder from his peers it *may* be a better lesson than a black mark in his file.
hugs for your poor insides. Be kind to yourself
-ll
Posted by corafree on August 4, 2006, at 14:51:27
In reply to Re: What's ACPA? » corafree, posted by llrrrpp on July 31, 2006, at 22:26:15
I believe the decrease in med (narc) was a real shocker to my system and agree with you Jost. It coincides with when all these digestion problems got so much worse.
The Miralax doesn't stop 'bloating you up' until the morning (or sometime after I've fallen asleep?). 'If' I was living w/ someone, it would be a nuisance, but I'm not, so using it.
My OB-GYN is also a top doc here that I hooked up w/ 15 years ago and is a male. I'm not sure he'll be too concerned about the butt doc's treatment of me. Maybe a bit.
Nope, butt doc not worth my time. Agree.
Potatoes okay. Ok. Kath .. I've printed out alternative info. My daughter thinks I should try scrap together enough pennies to see a holistic/herbdoc(?) and I do also.
Find a new medical doc; yes I will ultimately.
My current PCP just shook his head like 'don't be silly .. you're not worth all the time and money it takes to diagnose celiac' when I mentioned my GYN wrote it on my referral to the butt doc. Obviously the butt (colo-rectal) doc paid no attn to it either.
Oh, the night before the colo, I called the butt doc w/ my fears re: high pain tolerance and he said 'Your insurance won't cover general anesthesia'. I've since called my insurance and they've told me all he had to do was request it. He hasn't called me since I left there bewildered. I haven't called his office.
Generally, docs take one look at my insurance and either tell me it won't cover something or intimidate me by saying it won't, when it will.
I posted over on meds board about finding an internal med doc instead of a family doc for my PCP. Maybe a woman would be better .. not sure .. once beaten badly by a woman.
I'm back on Percocet as prescribed for now. Until I can 'get some support in cutting down', I can't do it alone.
Now that's my big hurdle. This seems like an impossible request. I say, 'I'll cut back, if you'll hospitalize me'. Will that fly? I don't think so. 'I live alone. I have no one to do errands for me.' Will that fly? I don't think so. So, I'm in a quandry. I won't p/u a man just for this reason. Maybe, going to ACPA meetings is the ticket. I can get this issue addressed. I can't do it alone, so I'll share that at a meeting and see what reactions I get.
The 'cutting down' had insides in constant helter skelter and outsides weeping!
I have the book, Prescription for Natural Healing, though .. 'still unpacked' here.
I'm afraid 'the system has got me' and I'm thinking of looking for a way to struggle free. And, but, of course, asking myself, if I should?
I don't feel very strong this day.
My mind keeps going back and forth, ... but something's happening ... usually this is the way I get somewhere ... 'a lot of personal emotional and psychological drama' and finally there I am ... 'somewhere else'.(?)
I'm a very passionate person.
If it is in my best interests to exit the system, ... I'm struggling w/ my courage.(?) Have I enough to 'ram' my way out of this, or will I roll over and fade to black.
Guess my first move is to answer 'is it in my best interests'.
My occupation has been 'taken over by computers' during the time I've not been working. Hmmm.
Getting here and posting is the most productive thing I've done in days. No one is coming to my door to help me. I have asked for help. She refused. I'm wondering how do I get out of this system and back into life. It's been a constant thought in my mind since the butt experience. One of the reasons he treated me badly is because of 'stigma @ being in this system'.
Who am I? I'm a person recovering from trauma, but for the first time in many years, off of an AD, feeling better, not feeling I need one like I always had before, and only now on Valium. I really did have your major textbook nervous breakdown (very physical) a little over a year ago. What am I? I'm a person labeled
'serio*sly me*tally i*l' to fall into a system where 'you are financially cared for'. When? About five yrs back, I was missing about a day of work a month re: depression or neck/head injury. I was harassed for this and resigned. Where? I went to SSAdmin, applied, and rec'd disability. How? I had 'the map'.(?)So the big ?s are 'should I do this' and 'can I do this'?
One thing is for sure, I couldn't have gotten through this w/o you all. These days I haven't replied, you've been on my mind all the time.
sincehere, cf
Posted by Kath on August 4, 2006, at 21:02:58
In reply to Hope Some Good Will Come, posted by corafree on August 4, 2006, at 14:51:27
Hugs Corafree,
Don't stress about not answering. I think we all post if/when we can. I also find a lot of support here.
> My OB-GYN is also a top doc here that I hooked up w/ 15 years ago and is a male. I'm not sure he'll be too concerned about the butt doc's treatment of me. Maybe a bit.
*****I suspect that professionally doctors simply do NOT say much about each others' performance - or bad performance at least.***
> Nope, butt doc not worth my time. Agree.
>
> Potatoes okay. Ok. Kath .. I've printed out alternative info. My daughter thinks I should try scrap together enough pennies to see a holistic/herbdoc(?) and I do also.******Sometimes a Chinese herbal doctor is less expensive than a holistic doc. Larry Hoover found what I think he said was a good on - but in Toronto! If you are fortunate enough to have a Naturopathic School or Homeopathic School near by, they usually need "patients" for their 3rd or 4th year students. That's who I go to now. Had a homeopathic 'constitutional' done there - amazing results. They charge me $22.50/hour visit. I get it a bit cheaper 'cuz I'm a 'senior' apparently!!!!!!!! :-(((( 59 I guess is considered senior! Oh well. Anyway, it's something to look into. I have no idea where you live. Those type of schools are usually near or in a major city I think. I have to travel about 45 minutes to mine but it's worth it.********
> Find a new medical doc; yes I will ultimately.
>
> My current PCP just shook his head like 'don't be silly .. you're not worth all the time and money it takes to diagnose celiac' when I mentioned my GYN wrote it on my referral to the butt doc. Obviously the butt (colo-rectal) doc paid no attn to it either.***** It might be less invasive (it would be) & just as informative to cut gluten out for 7 days or so, then add a bit back in (1 food with it in) & see what happens. You might also do 'muscle testing'. If you're interested in that, you could ask about it on the Alternative Board. "Over55" knows about it, I believe. I am going away for a week tomorrow, so won't be able to help you on it right now. ********
> I have the book, Prescription for Natural Healing, though .. 'still unpacked' here.*******It's an excellent book. I like that it has all different suggestions under most ailments. The problem with vitamins/minerals/herbs is that they can add up $$$. *******
> Guess my first move is to answer 'is it in my best interests'.
*********that can be pretty hard to figure out sometimes.******
Sorry I don't have any comments about the other things in your post.I'm feeling REALLY tired; was feeling sick earlier so am just doing a quick skim through here.
I send you my hugs Cora, luv, Kath
Posted by corafree on August 4, 2006, at 23:46:17
In reply to Re: Hope Some Good Will Come » corafree, posted by Kath on August 4, 2006, at 21:02:58
Kath .. yes there is a pretty big school that's not too far from me. Where I lived before here, I was just a couple miles from it. I'll call and check that out. That would be a Godsend re: my $ being so tight. It's odd. A girl lived above me at my last condo and she went to school there. She knew I was having probs' w/ depression. She did give me a book to read and she read my astrological points ... a whole bunch in fire, and only one in earth ... scary!? I think she was mainly learning massage techniques, but believe the school is for all different types of alternative therapies. And, I'll keep Chinese herbal medicine @ the forefront of my mind. You've been very helpful.
tks, cf
Posted by Kath on August 12, 2006, at 20:11:55
In reply to Re: Hope Some Good Will Come » Kath, posted by corafree on August 4, 2006, at 23:46:17
Hi Cora,
Glad I've been of some help! Hope it works out that you can go to the school. I really like it because where I go a certified naturopathic doctor is the supervisor, so I get he 'input' at a way more affordable price. Plus I find the students good!
:-) Kath
> Kath .. yes there is a pretty big school that's not too far from me. Where I lived before here, I was just a couple miles from it. I'll call and check that out. That would be a Godsend re: my $ being so tight. It's odd. A girl lived above me at my last condo and she went to school there. She knew I was having probs' w/ depression. She did give me a book to read and she read my astrological points ... a whole bunch in fire, and only one in earth ... scary!? I think she was mainly learning massage techniques, but believe the school is for all different types of alternative therapies. And, I'll keep Chinese herbal medicine @ the forefront of my mind. You've been very helpful.
>
> tks, cf
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