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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 14 of 14. This is the beginning of the thread.
Posted by fachad on April 2, 2002, at 11:27:46
Dr. Bob,
Would it be feasible for your site to have "profiles" that people could set up and edit as necessary, something like places like "Yahoo" have?
There could be the basic fields that you use in the registration process, but I think it would really be helpful to have info on current diagnosis, current medications and dosages, years of treatment, med history, etc. Maybe even a text field for whatever a person wanted to put in their profile.
It would be nice to see a post from someone, then to be able to go check their profile, and see what their DX is, what meds they are on, how long they’ve been at this and so on. I don't think it would really violate privacy because people currently post that same info - it's just not centralized and easy to look up, and it's not standardized.
From you research standpoint, you could generate all kinds of stats; percent on PSBers on SSRIs, percent of those on SSRIs on each individual med, most common problems with meds, how often people change regimens, dose increases, typical doses with high and low extremes, number of meds in polypharmacy regimens, common polypharmacy combos etc.
It just seems like it would be something everyone would enjoy and benefit from.
Posted by IsoM on April 2, 2002, at 12:12:42
In reply to Dr. Bob: How About Profiles for Registered Users, posted by fachad on April 2, 2002, at 11:27:46
Posted by Dr. Bob on April 2, 2002, at 20:14:15
In reply to Dr. Bob: How About Profiles for Registered Users, posted by fachad on April 2, 2002, at 11:27:46
> Would it be feasible for your site to have "profiles"
It's already on my to-do list:
http://www.dr-bob.org//babble/admin/20010718/msgs/1962.html
http://www.dr-bob.org//babble/admin/20011216/msgs/2579.htmlWhat do you think about the idea of just linking to Yahoo profiles?
Bob
Posted by IsoM on April 2, 2002, at 21:00:40
In reply to Re: Profiles, posted by Dr. Bob on April 2, 2002, at 20:14:15
"What do you think about the idea of just linking to Yahoo profiles?"
Nope, just won't do. I dislike Yahoo & use it as rarely as possible, Hope that doesn't stop you from using profiles, if others think it a good idea though.
Posted by Dr. Bob on April 2, 2002, at 23:26:19
In reply to Re: Profiles at Yahoo » Dr. Bob, posted by IsoM on April 2, 2002, at 21:00:40
> I dislike Yahoo & use it as rarely as possible
I know there have been problems with their chat rooms, but is there some other reason you dislike them?
Bob
Posted by Zo on April 4, 2002, at 19:34:49
In reply to Re: Profiles, posted by Dr. Bob on April 2, 2002, at 20:14:15
I've set up yahoo groups before. A yahoo "group" is *the* best off-site site to centralize any group's personal information and keep it confidential, password-protected, and with membership by approval only.
You do have to be willing to get a yahoo ID (yahoo has cleaned up its server problems.)
And you have to join the yahoo group, but beyond that, you share only the personal info you choose to. More privacy: the group can be set to NOT appear in yahoo's group listings and group searches.
On a group's front page, there are links to-
Files: This is a great place to upload any creative work for the rest of us to see -- art, music, writing. Sculpture? Dance? A problem. A spreadsheet? I suppose.. .
Photos: . . .which might be fun. Remember, not public! Just need to get your photo onto your computer, and at your command, it gets sucks it up onto the web. Magic.*
Bookmarks (Links) : Great reference, add links of interest, links to articles, links you've posted that are otherwise "lost and forgotten" when PB page is archived.
Database: sets up the Contact List with all your web IDs: Yahoo Messenger, AIM, ICQ, etc. Again, as desired!
Polls: Anyone can start a poll, serious or funny, with results issued to the group or not. Some people create polls that are ongoing: astro sign, Enneagram number, Type, etc. We could find out, Most Popular Drug! Least popular! Most side effects! Disorders, Diagnoses. . .The possiblities are endless.Polls are set to accept anonymous responses or not, and any response at all is, of course, optional.
Members: List of members, who want to be listed, and optional personal info, like, age, general location, email, occupation. ..
Calendar: Enter any event, like CHAT (!) and members are AUTOMATICALLY notified. . and get this: in ADVANCE!
Notification options are always chosen by you: Email or no email, web only. Notifications--of events, new files, new polls etc.--will always appear on the yahoo board (which they call Messages.)
A Yahoo group doesn't have to be used as a board, (tho it might be an interesting place for PB off-topic posts. But then, someone would have to be willing to moderate that. . . I see I am opening another can of worms altogether. One about which I am not prepared to do anything but close the lid. Real tight. Nailing it shut.)
A group needs three or four people with moderator status to set up and maintain the few "behind the scenes" tasks, such as the contacts list.
Every yahoo group has a button, Join This Group." Since membership would be subject to approval, this would be linked to Dr. Bob--I'm sure he wants more to do--or to the Moderators, or in some other way checked for current PB membership.
Sound good? This is not out of the goodness of my heart. I hate floundering.
Zo
Posted by kiddo on April 4, 2002, at 21:23:10
In reply to Profiles? Why we need a yahoo group » Dr. Bob, posted by Zo on April 4, 2002, at 19:34:49
Zo
Dr Bob already set up a Yahoo Groups in November of 2000 I think...I think they were contemplating using the Groups or part of the board as a place for profiles...
Kiddo
Posted by Zo on April 4, 2002, at 21:38:59
In reply to There already is a Yahoo Groups » Zo, posted by kiddo on April 4, 2002, at 21:23:10
Posted by kiddo on April 4, 2002, at 21:51:35
In reply to Yeah, well, it's not set up right or used! (nm), posted by Zo on April 4, 2002, at 21:38:59
Well, it seems to work fine...and we DO use it, we're chatting now. Dr Bob has intentionally disabled some things....
Kiddo
Posted by Zo on April 4, 2002, at 22:41:09
In reply to Re: Yeah, well, it's not set up right or used! » Zo, posted by kiddo on April 4, 2002, at 21:51:35
Posted by kiddo on April 4, 2002, at 22:51:55
In reply to Do you not like the ideas I put out? (nm) » kiddo, posted by Zo on April 4, 2002, at 22:41:09
Posted by Dr. Bob on April 4, 2002, at 23:37:37
In reply to Yeah, well, it's not set up right or used! (nm), posted by Zo on April 4, 2002, at 21:38:59
Chat is used by PB Open, links by PB Tips. But you're right about the other features, they're not.
It's an interesting idea, putting the profiles inside a group to restrict access to them. But PB Open is open, and PB Tips only has a few members, so probably neither of them would be right.
Would restricting access to them really be important? Probably it wouldn't be a good idea to put any sensitive information in them, anyway. Since it would be hard to control what someone with access did with it after they accessed it.
Bob
Posted by Zo on April 5, 2002, at 4:15:24
In reply to Re: Yeah, well, it's not set up right or used!, posted by Dr. Bob on April 4, 2002, at 23:37:37
Hey, I was just trying to honor anybody's concern over privacy with PSYCHIATRIC issues. . .you know?Me, I'm going into the bumpersticker business. See above.
Zo
Posted by Fi on April 12, 2002, at 18:22:09
In reply to Re: Yeah, well, it's not set up right or used!, posted by Dr. Bob on April 4, 2002, at 23:37:37
Not ideal, but just an idea for discussion? Maybe as an interim step till Dr Bob comes up with something better?
If anyone who wanted a profile wrote what they wanted to be in it in a post, say to PBA, specifically called 'profiles'
-Then these posts could be added as 'bookmarks' in a PB tips page which we could call 'profiles'.The disadvantages would include that it would be open to all, not just PB folk. And that someone would need to be responsible for adding the bookmarks.
I'm already a PB Tip-per (I do the crisis/suicide ones), so could probably do the mechanics of this, if people wanted it. On the clear basis that I would have no role in their content-just moving them over and putting your PB name as the description.
As long as people dont keep changing their profiles, that shouldnt be an arduous task. But I dont think Dr Bob should be expected to do it- he's doing plenty already!What do you think?
Fi
This is the end of the thread.
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