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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 17 of 17. This is the beginning of the thread.
Posted by Jeroen on October 8, 2008, at 14:00:11
hi, you guys, sulpiride has been stopped
i think over next few days im going to get trough withdrawal, im still on abilifyand after a discussing with the doc, we might add Seroquel (the drug that stopped working) too badly it cured and brought me back to the NORMAL peoplez
Posted by Phillipa on October 8, 2008, at 15:05:20
In reply to sulpiride has been halted, posted by Jeroen on October 8, 2008, at 14:00:11
Jeroen hope the med works for you this time round. Phillipa
Posted by Zyprexa on October 8, 2008, at 15:09:34
In reply to sulpiride has been halted, posted by Jeroen on October 8, 2008, at 14:00:11
I think you should give seroquel a long trial, to see if it works. Find a good dose.
Posted by Jeroen on October 8, 2008, at 15:30:42
In reply to Re: sulpiride has been halted, posted by Zyprexa on October 8, 2008, at 15:09:34
i tried 400 mg of seroquel and it didnt work, doc sais its dosage is enough
800 mg will give me heart attack and seizures for sure
Posted by HyperFocus on October 8, 2008, at 22:54:07
In reply to sulpiride has been halted, posted by Jeroen on October 8, 2008, at 14:00:11
Hi Jereon do you keep a daily journal of what med you took today and how you feel? I've found it critical to me when deciding on different meds to see which ones I feel better or worse with. A lot of times when I feel better it's hard to remember how it was when I felt sick and vice versa. Hope you find one that works man.
Posted by yxibow on October 9, 2008, at 0:46:37
In reply to sulpiride has been halted, posted by Jeroen on October 8, 2008, at 14:00:11
> hi, you guys, sulpiride has been stopped
> i think over next few days im going to get trough withdrawal, im still on abilify
>
> and after a discussing with the doc, we might add Seroquel (the drug that stopped working) too badly it cured and brought me back to the NORMAL peoplezNow I'm a little confused, it seems like you're on at least two antipsychotics at the same time ?
This isn't normally recommended as the outcome can't really be predicted and there may be enhanced side effects. I suppose in some cases it is tried.
As for the Seroquel, I thought you had said 200mg was the maximum you could take.
However this is titrated I think there should be a sufficient resting period between trials as it seems you have gone through quite a variety of medications.
However, I would agree that a sufficient trial, and yes, a journal -- but I wouldn't go back to the day 1, day 2 scrutinizing that I remember before in prior posts -- just an opinion.
That is like taking your temperature and weight every hour on the hour. I'm not trying to be flippant but I think that detracts from medication trials working -- there are psychological components.
I think more an experiential journal, your feelings, outlook, things to increase positivity is a better way of going about it, noting only particularly noticeable side effects if you wish.
-- best wishes
Jay
Posted by Jeroen on October 9, 2008, at 1:25:11
In reply to Re: sulpiride has been halted » Jeroen, posted by yxibow on October 9, 2008, at 0:46:37
after 3 months
Posted by Zyprexa on October 10, 2008, at 14:09:47
In reply to xyibow, posted by Jeroen on October 9, 2008, at 1:25:11
You should give it more time.
Anouther thing I noticed when I took Abilify with the zyprexa. The Abilify canceled out the effects of zyprexa. That might be the same with seroquel.
I would give the trial more time first. And anouther thing when I stoped the abilify, it took a long time of taking the zyprexa before it would work again.
Posted by Jeroen on October 10, 2008, at 14:51:32
In reply to Re: Jeroen, posted by Zyprexa on October 10, 2008, at 14:09:47
well, everyone is different, my stomach reacts to coca cola, burning feeling
did you know coca cola was a med for stomach before it went drink worldwide.
well i am even sensitive to a damn coca cola
Posted by yxibow on October 10, 2008, at 20:07:30
In reply to Re: Jeroen, posted by Jeroen on October 10, 2008, at 14:51:32
> well, everyone is different, my stomach reacts to coca cola, burning feeling
>
> did you know coca cola was a med for stomach before it went drink worldwide.
>
> well i am even sensitive to a damn coca colaYou're probably reacting to the phosphoric acid in it, but its pretty minimal considering the strong hydrochloric acid in your stomach.
A stomach H2 blocker might be of help. Or maybe its just the bubbles that's disturbing you. You wouldn't know unless you tried pure seltzer.
I'm not so sure that coca cola would be a pro-stomach drug where most of your serotonin receptors are unless you're talking about the turn of the century when it did have cocaine in it and probably was promoted for everything. Rather real ginger beer (non alcoholic), a British / Caribbean creation, or just ginger itself (not the processed sushi ginger, I doubt there's much left) is a weak 5HT3 blockade.
I mean anybody can be allergic to something but I have a feeling it could be the caffeine that's stirring your stomach.
Diet caffeine-free coke is the only one made by coca cola that doesn't have caffeine to my knowledge. I drink it anyhow. But there's always sprite or other drinks, some root beers, etc.
But I think this is a sidebar to what I do agree with other posters, a trial of an agent has to be longer than a week, and maybe your receptors have to be given time between changing, I don't know.I know its hard to be patient about having mental illness -- its been many years fighting my own problems, but I'll stop there with transference.
-- Jay
Posted by Jeroen on October 11, 2008, at 5:46:33
In reply to Re: Jeroen » Jeroen, posted by yxibow on October 10, 2008, at 20:07:30
hi, i failed clozapine therapy,
i did react to seroquel in the past as magic bullet, but it stopped working, maybe the XR might be worth a try
sigh, memantine is my last chance combined with it to feel great
Posted by Phillipa on October 11, 2008, at 18:14:45
In reply to clozapine, posted by Jeroen on October 11, 2008, at 5:46:33
Jeroen will you pdoc prescribe that combo for you? Love Phillipa
Posted by Jeroen on October 11, 2008, at 18:16:37
In reply to clozapine, posted by Jeroen on October 11, 2008, at 5:46:33
dont think so philippa :(
Posted by Jeroen on October 11, 2008, at 18:20:37
In reply to clozapine, posted by Jeroen on October 11, 2008, at 5:46:33
dont think so philippa :(
Posted by yxibow on October 11, 2008, at 18:47:33
In reply to clozapine, posted by Jeroen on October 11, 2008, at 5:46:33
> hi, i failed clozapine therapy,
>
> i did react to seroquel in the past as magic bullet, but it stopped working, maybe the XR might be worth a try
>
> sigh, memantine is my last chance combined with it to feel greatThere is no "magic bullet" for most disorders in life -- there are better treatments, as I have learned -- Seroquel works to a better degree for my problems, it also has done things that I can't go back and change.
But for the time being, and that has been a bit longer of a time being than I wanted, it suppresses a severe anxiety disorder whose origin is unknown.
I'm not still quite sure what role the Namenda ( memantine) would play for you -- I mean I think a number of us seek the absolute right drug, but there is no such thing.
Life is imperfect but it doesn't mean that one has to always feel suffering and certainly doesn't mean that one has to blame oneself for where they are.
I know you have been in a hospital for a long time, far longer than I know of any person in this country would ever stay in a hospital, it just isn't a concept, I don't wish to depress you but it would require probably over a million dollars.
On that regards, it may come off sounding Pollyanna to save hope, but that really is the thing -- the key is to find the minimum amount of medications, not sidebars, unless they're necessary, and to give a good trial to them. And hope comes from within, its not something that someone can give you. Its something that you build up with self-esteem.
They're quite powerful drugs, that's a truism, but I and I'm sure other people who have been through neuroleptic experiences know that they are.
There isn't always a "last chance". That's the anxiety I personally feel coming from you, its just an observation -- there are things that maybe your doctors haven't been yet aggressive enough (with plenty of due caution), or have found the right mix.
-- best wishesJay
Posted by Zyprexa on October 14, 2008, at 14:31:38
In reply to Re: clozapine, posted by Jeroen on October 11, 2008, at 18:20:37
Posted by Jeroen on October 14, 2008, at 14:35:41
In reply to What meds are you taking now??? What dose (nm) » Jeroen, posted by Zyprexa on October 14, 2008, at 14:31:38
Abilify 10 mg
but talking to doc tomorrow to add seroquel
This is the end of the thread.
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