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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 16 of 16. This is the beginning of the thread.
Posted by Maxime on June 5, 2005, at 15:12:18
Okay I am really tired of this. I was feeling good then I wasn't, then I felt a little better and now I don't. Sigh. I would rather just feel bad than all this bouncing around.
I think it's because I lowered my Parnate dosage. I usually take 80 mg and then 100 mg the week before my period. But one day I only 60 mg and I didn't feel any fatigue. So I tried 60 mg again, and once again no fatigue. So I didn't have to use the Dexedrine.
Looks like I will have to back up to 80 mg again.
I have been crying a lot a lot and wanting to cut (gave in one time). It's just that damn fatigue is so bad and I HATE dexedrine. Maybe I should try Provigil? I still haven't tried it. I just hope I don't get bad headaches on it since I am prone to headaches.I wouldn't complain if I got hit by truck right now. After years of struggling like this, I just don't see how I am suppose to continue on forever.
Maxime
Posted by Nickengland on June 5, 2005, at 18:06:29
In reply to Down again, posted by Maxime on June 5, 2005, at 15:12:18
Hi Maxine, sorry to hear you're feeling down again :-(
Do you think maybe you would be better without the Parnate? As you said the lower the dose, the less fatigue and then no need for the dexedrine which you hate.
Sounds like the Parnate is causing your moods to cycle...
How do you think you would feel if took Parnate and dexedrine out of you med regime?
Kind regards
Nick
Posted by Phillipa on June 5, 2005, at 18:49:40
In reply to Re: Down again, posted by Nickengland on June 5, 2005, at 18:06:29
I thought Parnate was your wonder drug? Do you think all you're doing right now is contributing? Fondly, Phillipa
Posted by Maxime on June 5, 2005, at 19:12:53
In reply to Re: Down again, posted by Nickengland on June 5, 2005, at 18:06:29
Hi Nick. Well I would be up a creek with no paddle. You see I have tried every possible med that is available in Canada. At last count I was at 47. So it's Parnate or nothing. I might try combining some desipramine to 60 mg of Parnate but I can't add much because I started to lactate when I reached 75 mg of Desipramine.
So no parnate equals no anti-depressant. I would rather put up with side effects at 80 mg.
Maxime
> Hi Maxine, sorry to hear you're feeling down again :-(
>
> Do you think maybe you would be better without the Parnate? As you said the lower the dose, the less fatigue and then no need for the dexedrine which you hate.
>
> Sounds like the Parnate is causing your moods to cycle...
>
> How do you think you would feel if took Parnate and dexedrine out of you med regime?
>
> Kind regards
>
> Nick
Posted by Maxime on June 5, 2005, at 19:15:51
In reply to Re: Down again, posted by Phillipa on June 5, 2005, at 18:49:40
> I thought Parnate was your wonder drug? Do you think all you're doing right now is contributing? Fondly, Phillipa
No, I am saying I need to be at 80 mg and not 60 mg but I don't like the fatigue I get at 80 mg because I have to take dexedrine to combat it. It's very bad fatigue because I suffer from fatigue to begin with (part of having MS).
What do you mean by "do you think all you're doing now is contributing?". Contributing what to whom or what?
Maxime
Posted by Phillipa on June 5, 2005, at 20:07:22
In reply to Re: Down again » Phillipa, posted by Maxime on June 5, 2005, at 19:15:51
Oops! Forgot about the MS. Fondly, Phillipa
Posted by MidnightBlue on June 5, 2005, at 20:33:01
In reply to Re: Down again » Phillipa, posted by Maxime on June 5, 2005, at 19:15:51
Maxime,
I don't know that much about Parnate, but could you alternate between 60 one day and 80 the next? Or split the difference and try 70?
Just asking--I'm stupid.
MB
Posted by Maxime on June 5, 2005, at 21:32:56
In reply to Re: Down again » Maxime, posted by MidnightBlue on June 5, 2005, at 20:33:01
> Maxime,
>
> I don't know that much about Parnate, but could you alternate between 60 one day and 80 the next? Or split the difference and try 70?
>
> Just asking--I'm stupid.
>
> MBThat is not a stupid question at all. But since Parnate has such a short half life (2 hours) I have to remain consistent with my dosage. It's always been 80-100 mg. I just thought I would see if I still needed the 80 mg since I had been off it and things in my body have changed. Clearly I need
80 mg.I feel so bad tonight that I am suicidal (not a threat just a comment) and I wish I could just disappear ... or maybe have everyone else disappear, I'm not sure on that one. Clearly I am also irritable. :-)
M.
Posted by 4WD on June 5, 2005, at 23:58:52
In reply to Re: Down again » MidnightBlue, posted by Maxime on June 5, 2005, at 21:32:56
> > Maxime,
> >
> > I don't know that much about Parnate, but could you alternate between 60 one day and 80 the next? Or split the difference and try 70?
> >
> > Just asking--I'm stupid.
> >
> > MB
>
> That is not a stupid question at all. But since Parnate has such a short half life (2 hours) I have to remain consistent with my dosage. It's always been 80-100 mg. I just thought I would see if I still needed the 80 mg since I had been off it and things in my body have changed. Clearly I need
> 80 mg.
>
> I feel so bad tonight that I am suicidal (not a threat just a comment) and I wish I could just disappear ... or maybe have everyone else disappear, I'm not sure on that one. Clearly I am also irritable. :-)
>
> M.
Maxime,Is there any chance that not taking the Dexedrine for a few days is causing your very low mood? I mean if you are used to the Dex and then quit taking it, wouldn't you be likely to experience some bad effects from not having it? I used to take amphetamines and I always felt terrible for a while when I'd periodically quit them. And honestly, amphetamines really made my depression much worse in the long run.
I'm just throwing out random theories in hopes of hitting something...
Marsha
Posted by Maxime on June 6, 2005, at 0:01:17
In reply to Re: Down again » Maxime, posted by 4WD on June 5, 2005, at 23:58:52
*sob* I've had enough of this sh*t.
Maxime
Posted by 4WD on June 6, 2005, at 0:22:35
In reply to Re: Down again, posted by Maxime on June 6, 2005, at 0:01:17
> *sob* I've had enough of this sh*t.
>
> MaximeMaxime,
Don't give up. Please. I don't have any med suggestions, I know you've tried so many things. Maybe it would help to know that three weeks ago, I was crawling around in my living room floor, crying and screaming at the ceiling "God, make it stop, make it stop, please make it stop!" And whle I'm not great now, I'm better, much better, most days.
Here's what I did. I marked a date on my calendar for six months from now. On that day, I will reassess. If I was no better by then, I gave myself permission to quit fighting and if I still wanted to die, then I could. But for right now, I'm not going to give up.
Several people on this board have said they were having a very rough time the last few days. Maybe it's the moon or something. Maybe you'll be better in a couple of days. Please hang on.
Marsha
Posted by yesac on June 6, 2005, at 1:16:50
In reply to Down again, posted by Maxime on June 5, 2005, at 15:12:18
I know it sucks. This is what you said to me yesterday, and maybe it's good advice for you too:
"Try to remember that you were starting to feel better for a few days. Hang on to that!"
I don't know a lot about how long you've been on parnate, but it does sound like you were doing better at a higher dose. At least that's something, and hopefully you can somehow tweak things so that you can get a better balance without all the exhaustion. Believe me, I know how much it sucks to constantly be trying to "tweak things" with drugs, constantly trying new drugs, never feeling right, never feeling good enough.
Why do you hate dexedrine so much?
Maybe you could try Provigil, like you said. There are always more ideas, and I realize that might not be a comfort, but hopefully it's enough to keep you going for another day.
I wish there was more I could do. Take care.
Posted by Maxime on June 6, 2005, at 12:08:44
In reply to Re: Down again » Maxime, posted by 4WD on June 5, 2005, at 23:58:52
I have no idea. All I know is that dealing with depression and an ED is hell. One is bad enough, but both is too much.
Maxime
> Maxime,
>
> Is there any chance that not taking the Dexedrine for a few days is causing your very low mood? I mean if you are used to the Dex and then quit taking it, wouldn't you be likely to experience some bad effects from not having it? I used to take amphetamines and I always felt terrible for a while when I'd periodically quit them. And honestly, amphetamines really made my depression much worse in the long run.
>
> I'm just throwing out random theories in hopes of hitting something...
>
> Marsha
>
>
Posted by Phillipa on June 6, 2005, at 16:36:59
In reply to Re: Down again, posted by Maxime on June 6, 2005, at 12:08:44
Did you up your Parnate today? Fondly, Phillipa
Posted by Maxime on June 6, 2005, at 17:45:47
In reply to Re: Down again » Maxime, posted by Phillipa on June 6, 2005, at 16:36:59
> Did you up your Parnate today? Fondly, Phillipa
Yup. It will take a few days at 80 mg to feel better again ... if I do.
Maxime
Posted by Phillipa on June 6, 2005, at 18:31:14
In reply to Re: Down again » Phillipa, posted by Maxime on June 6, 2005, at 17:45:47
I hope you do! Fondly, Phillipa
This is the end of the thread.
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