Posted by kara lynne on October 9, 2003, at 14:16:22
In reply to Re: re Fibro » kara lynne, posted by BarbaraCat on October 9, 2003, at 13:06:30
Wow. I haven't even finished the post, but I had to respond. I feel like I'm reading my diary when you describe the physical pain as well as the fear it brings up about survival issues. I also tested positive for those trigger points--although that criteria seemed a little arbitrary to me. I don't think my doctor believed that I was sore in as many of them as I really was. That's the other part of this--I don't tell anyone because it sounds so flaky. My (ex!) boyfriend started to catch on when one day I told him he was holding my hand too hard. I don't think he actually was but I was in so much pain that day I could barely stand it. He brought me some info on guafein...(however you say that ingredient in cough syrup) that had worked for someone else he knew.
-My pain is like a dull gnawing deep pain in the muscles-
This is it exactly, but I also feel it deeply in my bones, almost from the inside out. I know that is also not typical of fibro.
-Along with the pain, I get extremely fatigued, like a toxic waste kind of exhaustion-
!!!!! If I could jump out of the computer wildly nodding my head I would.
-I also have alot of stiffness and periodic clumsiness because my hands can't hold things as well-
I had an MRI because I was complaining about dropping things all the time. The doctor wanted to rule out MS--which he did.That's pretty amazing about your mom. Both that she chose her timing and that you've had those visits. I have very conflicted relationships with my parents; I've always worried about how I'll cope when they die. And they're both getting on--I see it more with each visit.
Thanks again Barbara, I'm going to write more later.
Oh: The positive ANA test. I've been tested and re-tested, but my doctor has told me people can test positive for it and not have lupus. It may also be a result of the colitis.
poster:kara lynne
thread:262093
URL: http://www.dr-bob.org/babble/social/20031002/msgs/267347.html