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Re: What makes a dx official? » thuso

Posted by alexandra_k on July 5, 2005, at 19:26:34

In reply to Re: What makes a dx official? » alexandra_k, posted by thuso on July 5, 2005, at 19:12:42

A dx is just a DESCRIPTION of a cluster of symptoms. It doesn't explain the symptoms. It just describes them.

> Right now a large majority of adults who say they have AS are self dxed, not by a professional. I'm not one to call myself something based on how I read symptoms since I have very little or no experience to be able to compare myself with other similar people.

Ok. What are the symptoms you are finding problematic? I can understand if people want a dx if they need a dx to get help with their symptoms.

> There actually are some benefits to having the AS dx official. I'm an enigma to people (especially friends and family), and being able to explain to them why I am the way I am would be a heck of a lot easier if I had a name for it.

I don't see how. I don't see how a dx offers you an explanation. It just redescribes the problem.

>And it would be helpful to me because then I could work with someone on my weaknesses and tailor it to the way an AS brain is wired.

??? You need to find out what is helpful to you and to the way your brain is wired. I don't see how it is helpful to consider your brain MUST be wired a certain way because you have a dx or MUST NOT BE wired a certain way because you don't have the dx. Clinicians should assess YOU not make assumptions about you on the basis of dx. It is true that most do not extend that courtesy. :-(

>It would also be helpful if any of my kids exhibit similar symptoms because then I'll have a history of AS dx to back up any of my suspicions.

???
But if they have the symptoms then that sounds like a problem - regardless of your dx or history.

> After all these years of no one believing me about my struggles, I now have proof that I was never lying.

I don't see how having a dx is proof of that.

> I guess if I was asked by someone if I was dxed as AS, right now I wouldn't know how to answer them. That's what I'm trying to figure out, so I'm asking what people's opinions are of what makes a dx official.

Ok. I guess dx doesn't matter to me. My symptoms matter to me. They are the problem. I want people to work with ME and assess ME and stop with the trying to see me as a representative member of whatever clinical population.

But then the spectrum of disorders I have been dx'd with may be a little different.

 

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