Posted by kerria on August 16, 2005, at 5:26:51
In reply to Re: nerve block didn't work and damaged my nerves:(, posted by jadah on August 15, 2005, at 18:45:58
Thank you, Jadah,
It's too bad that i have such a difficult time standing up for myself because of the disorder. It's almost impossible for me to be an advocate for myself. i have to take my H to the drs with me to explain how much pain i'm in everyday. The hard thing is that it's so constant.
i've done so much research. maybe it's pudental(spelling) nerve entrapment? Maybe it's because of the chemical spill?
i have a small M spike- maybe a malignancy or a myeloma is developing in nerves? it doesn't matter- you just can't suggest to drs what's wrong- they want to find it themselves and label me as a nutcase if i say anything about research.
There'a a way to suggest but i can't do it because i go to the drs as a twelve year old or something else happens to prevent me. It happens when i try to do anything else also.Bad thing- i almost have no medicine left. i see this dr tomorrow and h can't come. It's so inhumane to be kept alive in terrible pain. This dr needs to find a way to get me out of pain because i can't live in it or be afraid of living in it anymore. i need a solution that works. now. i already had a lifetime supply of pain. i can't subject myself to living in torture.
No one should ever have to endure this kind of agony for this long a time- whatever they have that's wrong.
so tired trying so hard to manage,
kerria
The dr did mention the stimulator implant.
Surgeries are so difficult for me to have- there are some inside who don't understand anything and i'm not able to communicate with so much of my own mind.
Almost no one understands. My T and my psychdr. A few friends on another site that i'm afraid to go to. tears.
Tonight i woke up in terrrible pain tonight at 4am- just twelve hours after taking the morphine that i take every twelve hours now. 100mg makes just bearable. It STILL hurts alot- a 6 on a scale of 1-10.
How disfiguring would an implant like that be?
i wear size 0 or size 2 and it would be hard to find a place to bury a box of anykind in my body. It would be way upsetting to my parts. Did you get one put in?
Did it work?
Was your pain a 15 on a scale of 1-10?Why is my life filled with so much torture?
i really wonder- it's so hard to have this problem- i can't choose to live in this pain even if i wanted to. i'm so tired of asking for help for so long- it's been a year and a half.we see the dr tomorrow. i hope that my psychDr was able to contact the pain management dr.Living with terrible sharp constant pain is so bad for the PTSD and DID sx. i'm getting so worse. Communicating with parts is impossible because i'm jumping from one part to another so much because we all can't stand the constant physical pain. A normal person wouldn't have lasted this long.
poster:kerria
thread:542153
URL: http://www.dr-bob.org/babble/health/20050411/msgs/542330.html