Posted by delna on November 5, 2009, at 16:30:42
In reply to Re: Medical mystery. Any experts? Scott? HELP! » Donna Louise, posted by floatingbridge on November 5, 2009, at 15:55:13
Hi guys,
Thanks you both for trying to figure this out but it's really not that thing Oprah was likely talking about. Its not about pain during sex or anything.
It's a sensation (like some sort of nerve tingling) that's there all the time. I've had it since early childhood It's a really rare condition, still in research stages.
This sensation was converted to pain by the Geodon.I am 100% sure of that. The pain also went as soon as Geodon was stopped and comes back rapidly, if I try to re-challenge myself with it.
Still waiting for my US pdoc's opinion on if it is TD related.
According to my neuro here (he read all the papers) he thinks it is TD related. But he said if I was so suicidal I should still try going back on it and getting a nerve block for the pain.Thanks again for your concern and help
Lots of love
D
poster:delna
thread:923491
URL: http://www.dr-bob.org/babble/20091029/msgs/924622.html