Posted by delna on October 31, 2009, at 4:32:58
In reply to Re: TD and masking » delna, posted by jane d on October 30, 2009, at 18:25:32
> Delna,
> I have read of AP's temporarily masking TD symptoms. As I recall TD symptoms would appear the AP dose would be increased and they'd disappear for a while. Then they'd reoccur and the dose would get raised again causing them to temporarily disappear again. Disclaimer - it's been seven or eightyears since I've looked at anything to do with TD.
>Hi Jane,
Thanks for your reply!
I agree, it looks like TD based on the masking alone! BUT the fact that there was an existing bothersome sensation in the first place makes me think (hope) something else was going on. This sensation could definitely not be TD because it has been there since I was a child.The Geodon got rid of the sensation but eventually converted it to pain. The pain then behaved exactly like TD, no doubt.
In fact as you suggest, I have already written to the researcher, namely the one studying the 'sensation', he terms 'restless genital syndrome'. I was just requesting his latest papers/research and simply told him that I think I have RGS and age of onset etc. He replied in a heartbeat (at the weekend, to boot) He was fascinated by the fact that the age of onset was so young and was really eager for my case history. For research purposes obviously, it seems
When I spelled out the case, he just never replied.... although I wrote to him again to remind him.
I guess I didn't qualify as a good research subject.
Reason being (I think), he is pursing the link between restless legs, urinary urgency and restless genital syndrome and since I have neither of the other 2, I am of no interest as a subject.
Add to that the history of psychiatric illness and no one wants to know.
This is so common in every field of medicine- if you are a psych patient other doctors take what you say with a pinch of salt and put every symptom down to your psychiatric condition. That sucks!Also, by sheer coincidence my neurologist(the only helpful one, willing to look into this problem), met with the author of the main article about 'genital tardive syndrome'. This was a year ago at least when I was still on Geodon and was in pain. He mentioned my case and the author said to try tetrabenazine (which now I find out is a drug for TD!!).
Somehow, my neurologist failed to tell me this, at the time. He only told me now after I sent him the article and he had put the pieces together. Plus I am 100% sure he never mentioned the pre-existing sensation which I think changes the entire clinical picture.Because there are so many features involved like psych illness, drug action, possible movement disorder, hormonal influences, there is no one person whom I can consult.
I have written to my pdoc in NYC, who had prescribed the Geodon (he knew all about the pain but never thought of TD) and I am hoping he will shed some light. This is probably ABC for him. Well the TD part, anyway. Currently, he is my best bet.
Sorry for going on and on....
Thanks for your input.
take care
Love
D
poster:delna
thread:923491
URL: http://www.dr-bob.org/babble/20091029/msgs/923603.html