Posted by Amelia_in_StPaul on May 19, 2009, at 13:15:51
In reply to Re: mono/allergies/celiac/Lyme; constant fatigue - son, posted by ricker on May 14, 2009, at 23:56:40
Hi garnet, jeez, he's so young to be saddled with so much. I'm really sorry.
I've had fibromyalgia since the age of 26 so its hard to have a completely clean picture of this, because the dx predates my experience of mono, but after I had mono in 2003, I have never been the same. I crash like I have never crashed before. I can do physical activity, but I pay for it--if I overdo it, I lose mental energy as well as physical, the same day. I can sometimes start stumbling around, bumping into things, if I have done too much. And how much is too much is hard to say.
Some ideas.
Celiac test--yes. But also, there are tests for leaky gut syndrome, whereby nutrition is not absorbed for any number of reasons (including wheat and dairy sensitivities that don't rise to the level of allergies or autoimmune deficiencies). Ask your doctor for the mannitol and lactose tests (my doctor is going to give these to me--I haven't had them yet, but it's on the radar).
Anaerobic threshold test--my doctor is enrolling me in a study so I will get this for free, but exercise places will give this for a fee. It measures how much activity is too much, so that a person can avoid crashing.
Unfortunately, antibodies don't say much about whether some one has "post viral syndrome" since most people carry around the antibodies (b/c so many people carry around the virus and pass it on, without having the illness themselves).
I hope this helps.
Oh, Rick is right--exercise, diet. Ohhhhh so important.
> > I've read here or somewhere else there is something called "post-viral syndrome". Has anyone here had mono, then a reocurrence, or know about this syndrome? Can allergies alone cause this tiredness?
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> Hi Garnet, I suffered with panic attacks from age 15, depression was never an issue nor is there family history, just anxiety/panic within the family tree.
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> When I was 28, I came down with mono.... my life has never been the same? It took about 3 months to recover although I experienced fatigue constantly. I was an avid golfer, tennis player and played rec. hockey. One year post mono and I was still chronically fatigued, I could not last through a 12 shift in the oil refinery, depression began to set in.
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> My GP had blood tests done to see if there was an underlying cause for the chronic fatigue. One of the tests came back showing elevated Epstein Barr antibodies which is indicative of "yuppie syndrome??
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> My GP said it could take months or years to recover, 22 years have past and I still fight the chronic fatigue. I can't say for sure that mono was the cause, or, if it was a contributing factor that sent me into depression/chronic fatigue?
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> I've always felt it was a major player with regards to my clinical depression. I should also mention I was taking a 2 month course of accutane when I came down with the mono, another drug that is linked to depression.
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> A healthy lifestyle.... diet, exersice and sleep is crucial when recovering from mono. I hope your son makes a speedy and full recovery.
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> Regards, Rick
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poster:Amelia_in_StPaul
thread:895816
URL: http://www.dr-bob.org/babble/20090515/msgs/896624.html