Posted by bimini on October 26, 2006, at 15:15:16
In reply to Re: Complex hallucination -yxibow » bimini, posted by yxibow on October 25, 2006, at 14:26:12
> I sometimes end up taking 600-800mg of ibuprofen at the end of the day.<
Ibuprofen and my stomach don't get along. I rest and close my eyes for a while, that helps a little. No reading, no TV, no computer, no candle light. I lie on the floor, call a friend, talk, spoil the dog or cat or something else I don't need my eyes for. I can do the dishes with eyes closed. Exercise too.
> I also have a fondness, yearning, a peter pan-ness for my college days, which were the best thing I ever had going for me that I didn't realize at the time.<
Yeah, what made it so much fun was the carefree-ness. The rolling-with-the-punches excitement. Childlike awe and exploration of new experiences...not trading this curiosity for security or whatever. Comfort maybe that's what it is.> Didn't mean to associate that painfully for you, it was a little humour conjecture for me on my part.<
Naaa. I called that hole my lost marble as soon I saw it on the scan. It has the right shape and size. That earned me the remark of "inappropriate response" in the report of my neurologist.> I still believe in better living through chemistry. I hope you have some sort of compensation or government disability benefits for your medication and the like.<
I'm definitely a lot better since finding the most beneficial combination. No gov. benefits for me because I kept trying to work. Also stuck in a complicated lawsuit. Enough just living one day at a time. Rolling with the punches -> and my social network is mostly fair weather acquaintances.<
Fair weather - Clouds are natural and necessary. Rain is needed too, the sun always comes out again. In the winter delicate plants need shelter, throughout the year they need nurturing. Friends are like my garden. I have to be a friend to have one. I have to give when needed, I have to listen and not judge.> But I'm making an effort to remain active socially even though that is exhausting, sometimes takes week or more to recover.
Recovery is a job in itself.<
So true, recovery is hard work. Good you keep on going the uphill road, no matter how difficult the path. I need to be pushed some, I don't get rolling by myself but stopped dragging my heals, it is helping.> try to work a little at a time, maybe at home first to control my own lighting, etc.<
Control of lighting was a big issue, even at home. Furniture location another. Get confused by movement, compensate by finding a place where I can't get distracted by that. Agitated by random noise. Compensate with headphones and music to drown out all else.
Need necksupport everywhere. Have to take frequent breaks, change activity. What kind of job would accomodate all of that...
I am lucky to have 'irritating' loving people around to push me along. Even little accomplishments are encouraging. Still need a kick in the ->Kick yourself out to the gym<
Could you find another kicker, like buddy up with someone who needs a co-kicker too -
I battle setbacks a lot and feel very discouraged when it lasts more than a week or two. But looking back over time, I can see progress. Sometimes it seems that a slide back was needed to go forward. Like a cat ducks down before jumping up. At least I like to picture this to be so.
> Leonid meteor showers.<
I need to 'percolate' that through my head, bear with me I'm slow.>fluorescent lighting confused my mind so much I almost knocked over racks trying to look for clothes.<
I fell often. Once in a large flower pot at a fancy office. I'm since more cautious, too many bruises. Can feel myself fading out and grab onto something now before going down, sometimes sit on the bottom shelf, lol. Grocery stores know me by now, better time out than breaking an armful of pickle jars trying to look cool.>I still find myself occasionally avoiding choosing my clothing that have patterns I used to like.<
I've changed dramatic. Used to wear pretty dresses, heels, hairstyles. Now addicted to comfort, but still love happy colors. And hats! With rim! And sunglasses - hold the trenchcoat :)> I just recently had a Lyme titer which my doctor would have probably notified me by now if anything was amiss -- <
Sounds you aren't worried, hope the result comes back clear. It is so unnerving to have test after test and not find a specific reason and hence a solution.
> Oh and several opthamologist's exams.<
I've gone revolving door at eyedocs places. Therapy 6 days a week, over 7 months. Three different set of special lenses in as many years. Shocking price tags. Supposed to go now every 3 months and keep up training at home for maintenance.> http://www.visualsnow.com/
>
> http://p210.ezboard.com/bthosewithvisualsnowThanks for the links,
BIG SMILE,
bimini
poster:bimini
thread:696508
URL: http://www.dr-bob.org/babble/20061020/msgs/697964.html