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Re: Bye Bye, Topamax

Posted by challenged on April 12, 2006, at 19:06:33

In reply to Bye Bye, Topamax, posted by SandyWeb on April 12, 2006, at 16:05:36

> Well, I started Topamax on February 7th and looks as though I will be quitting cold-turkey tomorrow (April 13th) at 250mg. Not much to be done about it. Absolutely loved the med. Although no med is perfect, it seemed to keep my moods fairly stable and even (WooHoo!!!) began dropping the weight from basically the first day. I'm pretty serious about that! It impacted my appetite from the very beginning. In fact, I can now wear MOST of my old pants again....probably could still lose 2-3 pounds more, but we're talking about a 50+ pound weight gain from the dreaded Remeron. All the side effects I had from Topamax occurred only in the beginning, and they really were more of a nusance than anything else. And then they went away. Tingling feet and hands, COLD body, can't think of anything else so it musn't have been too big a deal.
>
> WELL....it appears that our lovely Canadian drug plan is refusing to accept this "exception status" med for me. So instead of paying $5 for a 3-month supply, we'd be looking more at $450 for 3 months. Can't do. Down to 2 pills. I don't understand why they agreed to Neurontin, but not to this med. So time to go loopy again.
>
> AND....if I can't have the Topamax, I'm cold-turkeying off the Remeron as well. Remeron is covered at $5.00, BUT......I can't stop eating on it. And I'm prone to diabetes because of the monster babies I spawned! Lol! And Remeron is the only antidepressant that I can tolerate. SSRI's send me non-stop to the bathroom....for WEEKS! It just never stops. Welbutrin causes panic attacks and high heart rate. Effexor could make me walk right out in front of a car because I'm so DUH. Paxil makes me psychotic. And all the rest just kill my body.
>
> I've had seizures before, but years ago. When I used to drink. I haven't had alcohol for four years now, and I have absolutely no interest in it.
>
> Remeron made my head quiet. Especially at night. It would talk and talk and talk. Of course it was me because....well, who else is in there BUT me, right?? Lol. But me would be talking to me talking to me talking to me. It would get so noisy. I take Seroquel to help me sleep, and it doesn't even stop the noisy head. But the Remeron does.
>
> But if I can't have the Topamax, I can't risk the Remeron. I'm going to be bouncing like crazy. Oh my gosh. And there are NO samples of Topamax. Ha ha ha. I'm going to be so sick. And the worst of the matter is: my 14-year old daughter is visiting for Easter from the 13th to the 17th. And I have to act NORMAL. I'm probably going to use up a whole month's worth of Klonopin in one day! *smirk*
>
> This is going to be hard, guys. Why can't they just approve the Topamax? I'm on the smallest cocktail I've been on yet, and I still have battles that I go through, but.....I SURVIVE the battles. The cocktail works. Dang it.
>
> Anyways, now I'll only be on:
>
> Inderal LA (physical panic)
> Clonazepam (psychological panic)
> Seroquel (sleep...would rather something better, but don't know what)
>
> Good luck on the Topamax!! I think it's a GREAT drug if it's targeting the correct problem.
>
> Be well.
>
> Sandy
>


Sandy,

Although I don't live in canada I sympathize with you and know how hard this is for you. I was loopy for the last month for the same reason and just went and picked up my pills for one month that cost me 250 dollars and have been asleep for the past three days getting back on them at 200 mil daily..... I went off cold turkey also.

I am waiting on medical myself for qualification..sheeeeeeesh......take care of yourself!!!I feel your pain......Nettie


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