Posted by headachequeen on March 15, 2005, at 18:24:32
In reply to Re: statis epilepticus, posted by proserpine on March 14, 2005, at 16:28:02
> new here, & confused by both the topomax & the board, so have not been able to read the posts in order, but i will say that not only have i found something -worse- than trigeminal neuralgia, but that both my mother & dostoyevsky had seizures (he -loved- his (if you do not know & if that is of any consolation. they never figured out what my mothers were (probably just a reaction to having to be anywhere near my father); tN is also some sort of seizure. i do not love it-- probably the same reaction, although my father hath croaked, finally)) & also i hope that, although i do not even know you, you are okay. oh for heavens sake. one more for the prayer list.
Well, I do not love my seizures; I do not even like them. I do know when I can expect frontal lobe caused seizures and when they will come from the temporal lobe... we are I guess on first name terms, but I still do not like them...
as for the statis episodes, there is no way to describe my feeling for them.
I am terrified when I read the casual approach some people take to these meds...
I know all too well what can happen when one does not deal with them properly...
a simple aspirin can increase the effect of tegretol, one of the anti-epileptic drugs...
and the effect it can have on the body is unbelievable...
fourteen hours, mostly unconscious, with no control over any of the muscles or nerves of one's body...
it is indescribable...
an antibiotic prescribed to deal with this wretched cellulitis that haunts my days and nights, and that no one bothered to really research as far as AEDs are concerned has the same effect ....
and away we go again...
today I spent my time struggling to fight my way out of saran wrap someone wrapped around my body...
frontal lobe seizure coming on tonight...
my poor besieged husband can tell just by the way I walk and speak, what to expect...
but, then we are still in recovery for lack of a better term...
on the good side, the lesions from the cellulitis are almost completely gone... just two left, one open and draining a little and one with duoderm still on it, but for protection of strengthening skin...
in a few days we should be back to normal and world, get ready, because I shall not sit quietly and wait for someone to find an answer, I am going out to do my thing with camera and dog and life...
if I sit quietly then I am letting the condition win and it has gained too many points already...
time for me to gain on it and get ahead of it...
of course, I have to be careful not to bump that hand on anything, and not to trip or stumble, and no playing with scissors or knives....
sharp things can cut and then we start all over again...
and spring is coming... those black flies, little black flies always the black flies no matter where I go...
and the mosquitoes... a simple bug bite and I have an infection and nurses and antibiotics...
at which time the only med I can take is Topomax...
now isn't that a hoot when it is the one so many people fear LOLno I do not love my seizures... but I love the times in between... and I plan to make the most of them...
putting sixty minutes into every second...
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20050312/msgs/471451.html