Posted by shelliR on September 13, 2001, at 22:55:44
In reply to Re: Thanks for responses » shelliR, posted by SLS on September 13, 2001, at 9:09:01
> No doctor ever mentioned cortisol, HPA, or ketoconazole, even though I was aware of its limited use eight years ago. In the past, I felt like trying things like ketaconozole was an act of foolish desperation. It was not consistent with the views of mainstream medicine, and I was more desperate to believe that mainstream medicine and my mainstream doctors had all of the answers necessary to get me well. I guess I am still trapped by mainstream medicine. I had hoped that the doctor I have been working with over this past year would have offered me some radically different and unheard of things to try. I am willing. Crap. I might need to find another doctor. This is so hard for me because I am generally too vegetative and listless to act proactively. I am left very passive, and pretty much rely on doctors to think for me. I imagine this seems hard to believe based upon the way I write.It *is* hard to believe, because you are on top of what is helping people on the board. And you are able to help others. I don't know what to say, how to get you to muster up enough energy to advocate for yourself. I think if I was in your situation (and I truely do mean this about me, not telling you what to do), anyway, if I had medicare and medicaid, I'd find one of the most innovative doctor in the country who is affiliated with a good hospital, and go in. I don't understand what you would have to lose. You'd get a break from taking care of yourself, and you possibly might find a solution. I can't see any negatives. Probably without more research I'd call Alexander Bodkin at McLean (acutally I have called him several times with questions) and I'd tell him your situation and ask him if you went into either his hospital McLean, or into Mass General, (which is first on Ivan Goldberg's list), what attending pdoc would he recommend for you. He actually answers his own phone when he's in his office.
Actually, if this doctor I am with now (the oxy guy) is unable to help me, that is what I will probably do. Because of my business, I'd have to plan in advance. Now when I go into the hospital it's just for a quick get-a-way. I can't tolerate my depression at home because my work is here. But for a long-term solution I'd probably go to either Boston or California.
Anyway , this ketoconazole possibility certainly seems worth trying unless your pdoc has a specific, legitimate reason why it would not be in your best interest.
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Shelli
poster:shelliR
thread:78595
URL: http://www.dr-bob.org/babble/20010907/msgs/78746.html