Posted by Bob on March 20, 2001, at 21:07:56
In reply to Re: Topamax Experiences: Long Term Use, posted by phillybob on March 20, 2001, at 20:02:52
> > Refresh my memory... why did you finally quit the Topo?
>
> Well, Bob, here's a cut and paste job for you:
>
> "I had to discontinue the topiramate due to aforementioned bleeding gums which, it turns out, was actually a horrific recession of the gums! My teeth were killing me, I believe, due to the lower caninal parts, which heretofore had not 'seen' the light of day, being exposed to the elements! And, the bleeding of the gums did not help the persistent sore throat."
>
> I was on 225 mg/day (with an accidental increase to 275 mg for the week preceding my problems) and I guess it was just too much for my body. It was nice, though, while it lasted.
>
> Also, you might recall, I drank tons of water to help with the kidney issues (never had any) and took a B Complex "Stress" vitamin which helped greatly with the tingling AND the cognitive difficulties. I would revisit Topamax in the future, though at a lower dosage, if the Lamictal doesn't pan out. So far, so good; I'm takin' it much slower than the Topamax. I learned my lesson. Patience.**************
Yes... patience is the key, although it's one of the things I'm short on, along with feelings of well-being. Any changes in dosage of the Topamax seem to be quite brutal for me - as in cold hands, tingling, anxiety, numbness, manic behavior, etc. It seems that more than one person on this list has experience kidney stones as well as gum/tooth and bone problems (even possible cavities with long term Topo use. I'm not so sure about this med any more. I'm thinking more and more about trying Lamictal again with a VERY slow titration rate. What kind of titration rate did you undertake out of curiosity? Did you get any sort of rash as you ramped up?
poster:Bob
thread:50878
URL: http://www.dr-bob.org/babble/20010319/msgs/57026.html