Posted by o2manyfish on March 18, 2001, at 2:17:05
In reply to Topamax Experiences? (a.k.a. the longest thread), posted by phillybob on February 3, 2001, at 7:37:13
Hi There, I thought I would add some insight. I have been on Topamax for almost a year at 200mg a day. I was prescribed the Topamax to handle seizures and other problems created as a result of Encephalitis in the brain.
I had my first bout of Kidney stones after about 3 months on the Topamax. Then starting in September of last year the kidney stone occurrence became every 2 weeks. The Topamax has now damaged my kidneys.
Also as a result of the dry mouth I have ended up with severe peridontal damage on the jaw bone underneath the gum line.
I am now weaning myself off the Topamax and am trying to find a new anti-seizure medicine to supplement it. I can't continue treatment for any of my other issues until I am off the Topomax.
Other side effects I had with the Topomax included the inability to sleep regularly (2 hrs a night) until exhaustion set in, taste issues - I lost the ability to taste textures -- All sodas taste flat for example.
I am now down to 100mg of topamax everyother day and it barely maintains me on the edge of functionality and seizures.
poster:o2manyfish
thread:50878
URL: http://www.dr-bob.org/babble/20010310/msgs/56820.html