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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 6 of 6. This is the beginning of the thread.
Posted by iforgotmypassword on November 26, 2005, at 1:38:32
i awkwardly fit so many of the symptoms someone listed it's near-hilarious, so even if it is a crock, if it's cheap, maybe a test couldn't hurt. there do appear to be some success stories.
Posted by Phillipa on November 26, 2005, at 1:38:32
In reply to best place to get pyroluria testing from?, posted by iforgotmypassword on November 25, 2005, at 14:58:18
What is it? Fondly, Phillipa
Posted by iforgotmypassword on November 26, 2005, at 1:38:32
In reply to Re: best place to get pyroluria testing from? » iforgotmypassword, posted by Phillipa on November 25, 2005, at 19:51:47
apparently it is something that can cause Axis I disorder like symptoms including learning disabilities... they say asperger's, autism, ADHD, bipolar, schizophrenia, depression.
they say the disorder causes zinc and vitamin B6 to bound to chemicals and excreted in the urine causing deficiency, apparently arachidonic acid (or however it is spelt) is deficient too.
i seem to rememeber a lot of skepticism regarding its validity... but also a lot of sense at least seems to be there when i read about it...
Posted by Tomatheus on November 26, 2005, at 1:40:18
In reply to what do i do?!!?!, posted by iforgotmypassword on November 25, 2005, at 22:26:23
iforgotmypassword,
You mentioned in your previous post that you thought you had the symptoms of pyroluria. I Googled "pyroluria testing" (without the quotes) and found a site (http://www.pyroluriatesting.com/) where you can order a test for $48 (U.S. currency). Even more information on the test is available at http://www.kryptopyrrole.com/ . The test results must be sent to a medical practitioner, which sounds like it would be a problem in your case (at least based on your statement, "no doctor is willing to help me").
But...
If you're not currently taking any medications that might interact with megadoses of vitamins or minerals, you might want to consider trying out the supplements recommended for the treatment of pyroluria. The late Dr. Carl C. Pfeiffer (1987) recommended taking enough vitamin B6 each morning for nightly dream recall (he did not give a recommended dose, but he made it clear that you should not exceed 2,000 mg!), zinc (30mg in both the morning and evening), and manganese (10mg in both the morning and evening). A research article (Heleniak et al., 1986) suggested that pyroluric patients would also benefit from taking evening primrose oil supplements (unfortunately, a dose was not provided). Vitamin B6, zinc, manganese, and evening primrose oil should be available at any health-food store, and many health-food stores have alternative-medicine practitioners on staff who should be able to tell you what the optimal and safe dose ranges are for the supplements they sell. As long as you're taking "safe" amounts of vitamin B6, zinc, manganese, and evening primrose oil, I don't see what the harm would be in just bypassing the pyroluria test and trying out the supplements to see if they might work.
And of course, it would be ideal to research as much as you can on pyroluria. Here is one site that might be useful:
http://www.nutritional-healing.com.au/content/articles-content.php?heading=Pyroluria
Tomatheus
==
REFERENCES
Heleniak, E. P., & Lamola, S. W. (1986). A new prostaglandin disturbance syndrome in schizophrenia: Delta-6-pyroluria. Medical Hypotheses, 19, 333-38.
Pfeiffer, C. C. Nutrition and mental illness. Rochester, VT: Healing Arts Press.
> i can't do anything. no doctor is very willing to help me. i have no depresion. i just can't do anything. i feel completely paralysed. any task in impossible to do. i have episodes of stupid energy where i just get full of stupidity can't make any sense, can't be used for anything, and by the time that there over nothing is accomplished. this is nothing like hypomania and doesn't last for days or weeks.
>
> i am always gorging myself with food and passing out. this is all i do. i feel barely able to keep my head up, but miraculously if someone is around i perk up and seem completely fine to anyone around me. i have no emotions only facts and stupity and anger. i just bla bla bla about crap... nothing about anything. it is like i am under some curse to make everything to mean nothing, make me lazy disgusting unable to do or say anything and everything a complete failure. never able to feel anything. i have no access to the ability to care about anything and when it is something that hurts from a long time ago i cannot deal with it. complete block. why can't i talk at all, why are words just impossible to use, why can't i do anything or feel anything?!!?! i can't live like this!!
Posted by Tomatheus on November 26, 2005, at 1:40:18
In reply to what do i do?!!?!, posted by iforgotmypassword on November 25, 2005, at 22:26:23
http://drkaslow.com/html/pyroluria.html
Tomatheus
Posted by iforgotmypassword on November 26, 2005, at 21:51:32
In reply to Another helpful pyroluria site, posted by Tomatheus on November 26, 2005, at 0:07:20
This is the end of the thread.
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