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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 5 of 5. This is the beginning of the thread.
Posted by malou on March 2, 2012, at 20:37:49
hi folks!
Yup to amnesia. Been on Lamotrigine for 10yrs or so for seizures. I kept havin' 'em anyway so they just upped the dosage over and over. Memory got worse and worse. I noticed a big difference with the last increase. Suddenly I'm droppin' stuff, running into walls not to mention way worse amnesia. I was just gonna quit.
I was switched (gonna be gradual) to Levetiracetam. I think they donno what they're doing. Any ideas about it?
One seizure was so bad I woke up with NO memory at all. Total erasure. Couldn't walk, never heard a bird tweet, wide-eyed and wondering what conciousness was. 2nd day I walked out to the huge blue thing outside. When I opened its door-I was amazed--->all those knobs, dials and pedals!!! WOW!! had no idea what it was(my LandCruiser) I went back inside. I was even a poet for a coupla daze till I remembered I wasn't a poet!
Posted by sleepygirl2 on March 2, 2012, at 22:13:26
In reply to Lamotrigine, posted by malou on March 2, 2012, at 20:37:49
Is that jamais vu?
Sounds pretty wild.
Posted by Solstice on March 3, 2012, at 0:00:38
In reply to Lamotrigine, posted by malou on March 2, 2012, at 20:37:49
Hi Malou - Welcome
>
> Yup to amnesia. Been on Lamotrigine for 10yrs or so for seizures. I kept havin' 'em anyway so they just upped the dosage over and over.What kind of seizures do you have?
Do you see a neurologist for treatment?
Has the Lamictal provided relief at all?
> Memory got worse and worse. I noticed a big difference with the last increase. Suddenly I'm droppin' stuff, running into walls not to mention way worse amnesia. I was just gonna quit.
It's hard to know whether these symptoms are due to the seizures, or the Lamictal.>
> I was switched (gonna be gradual) to Levetiracetam. I think they donno what they're doing. Any ideas about it?Did they tell you why they are switching to Keppra?
>
> One seizure was so bad I woke up with NO memory at all. Total erasure. Couldn't walk, never heard a bird tweet, wide-eyed and wondering what conciousness was. 2nd day I walked out to the huge blue thing outside. When I opened its door-I was amazed--->all those knobs, dials and pedals!!! WOW!! had no idea what it was(my LandCruiser) I went back inside. I was even a poet for a coupla daze till I remembered I wasn't a poet!Sleepygirl is right - your description sounds very much like Jamais vu. Associated with a partial seizure, it wouldn't typically last for two days... unless you are in non-convulsive status epilepticus. Complex partial seizures can include post-ictal confusion.
Hopefully the Keppra will provide you relief. You should be under the care of a neurologist who will do EEG's (hopefully a 24-hr ambulatory) to evaluate the effectiveness of Keppra in controlling your seizures.
Solstice
Posted by Phillipa on March 3, 2012, at 0:14:50
In reply to Re: Lamotrigine, posted by Solstice on March 3, 2012, at 0:00:38
Welcome I second the neurologist. Phillipa
Posted by creepy on March 14, 2012, at 8:22:39
In reply to Lamotrigine, posted by malou on March 2, 2012, at 20:37:49
Does your doc know where in your brain the seizures originate? Might give you some better ideas on what to try. might let you get by with less side effects if you get something that fits better.
topamax gets used a lot for TLE for example.
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