Psycho-Babble Medication Thread 980098

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Re: please, quick pain advice: gp at 3:40 » floatingbridge

Posted by hyperfocus on March 7, 2011, at 21:16:54

In reply to Re: please, quick pain advice: gp at 3:40 » floatingbridge, posted by floatingbridge on March 5, 2011, at 0:59:12

Sorry fb, I'm only now reading this - did you eventually see your doc? I know how debilitating back pain is - my aunt had it and it was the worst. All she could do was lie down.

As far as amitrip, I've seen it work wonders for neuropathic pain. What back condition do you have - is it something with nerves like spondylosis? The only thing is, for me at least, it seems to interact very badly with any type of benzo or painkiller at high doses. I can't take amitriptyline + Xanax together - it completely zombifies me. I take it at night and it gets me to sleep without fail but taking it together with anything, really, increases the sedative effect tremendously. But I know for pain the dose is very small, like a fraction of the theraputic dose for depression. My aunt is very sensitive to meds and she takes only 5mg at night and it seems to have done wonders for her spondylosis. So I would say give it a shot for the nerve pain. It can start working very quickly for pain - by a week you should be seeing some benefit.

Hit me back and tell me what's up, I do care.

 

Re: please, quick pain advice: gp at 3:40

Posted by bleauberry on March 13, 2011, at 8:42:20

In reply to please, quick pain advice: gp at 3:40, posted by floatingbridge on March 4, 2011, at 15:28:11

I trick I learned from a post-op doctor....don't take either Advil or Tylenol....take them both at the same time. Can work even better than the narcotics.

As for narcotics, there is anecdotal evidence popping up that ultra low dose naltrexone prevents tolerance, poopout, and withdrawal. LDN is 1.5mg to 4.5mg. But for the purposes of supporting narcotics, the dose is much smaller....1/10th of 1mg for example.

Bad pains and psychiatric symptoms... I'm sure you do realize this is something else. The pain and the depression are merely symptoms.

 

note from sea level » bleauberry

Posted by floatingbridge on March 13, 2011, at 15:36:01

In reply to Re: please, quick pain advice: gp at 3:40, posted by bleauberry on March 13, 2011, at 8:42:20

Oh, BB,

Thanks for the note about tylenol and nsaid.

I think this is the last thread on PB left to come to my box. I'm a wreck. Yesterday I was asking my husband if I need to be in hospital. He stills says no, but one day at a time.

I suspect a major OA flare. Simple? Nothing seems simple or straightforward with an MD. Self-diagnosis is so suspect. So I am waiting to coordinate a trustworthy care team: depression, anxiety, disabling pain (I'll need to stop everything, lie down, and just breath. Yesterday I saw two flies mate on the carpet in an eyeblink. Kinda weird being me.)

Assembled so far:

Gp who is a person and willing to be real--. She might just go for LDN. If not, I'll f'n do it myself.

A pdoc who cares but is very flipped out by this all. Wait till he hears I want out of the whole pharma thing. I don't have
one more trial in me. Lyrica just about unhinged me.

A DO with behavioral affect of Max Von
Sidow in a very independent Swedish flick. He actually palpated every darn inch of my spine, then gave one teensy
adjustment. My massage therapist remarked later that week that such and
such lump at base of skull was 'gone'. For reals? I asked? Because that is where that new Dr Von Sidow poked my neck... (My new gp reccommended him. Bonus points. AND he is in network. Gasp.

I see a biofeedback/stress therapist in two weeks. Also in network. I try not to take any pleasant news as a sign of improvement.

Thanks for writing.

 

hyperfocus :) » hyperfocus

Posted by floatingbridge on March 13, 2011, at 15:56:34

In reply to Re: please, quick pain advice: gp at 3:40 » floatingbridge, posted by hyperfocus on March 7, 2011, at 21:16:54

Thanks. I know you care, and it was wonderful to read your note. I know other folks care, too. I was going down in flames.

Not spondylosis. I don't think. That's been ruled out by bloodwork. Is that an AI illness as in anklyospondylosis? Forgive the spelling.

My shrink isn't keen on Ami. But what
does anyone know? I don't know. After some failed trials, I
feel so afraid. Plus my long time insomnia med has stopped working :( If it were just me, I could almost give an f. But I've got a wonderful child.

I might try doxipin at night. I could even try ami. I'll let you know if I get anything
to help. Right now I'm going to try BB's
above mentioned nsaid combo.

Despite lifelong emotional lability, social anxiety, depression, I didn't really know this type of pain. My heart goes out to all sorts of folks--the ones I walked or ran by when I felt healthy.

Do you deal with pain, too?

Thanks. fb

 

Re: hyperfocus :) » floatingbridge

Posted by Phillipa on March 13, 2011, at 19:35:01

In reply to hyperfocus :) » hyperfocus, posted by floatingbridge on March 13, 2011, at 15:56:34

FB I have spondalosis sp? It's skeletal system. Bone spurs form also, and narrowing of spinal columm. That foot doc I saw wants me to see a neurosurgery and spine doc. I don't know if the one they recommended takes medicaire. Pain today so bad I couldn't stand it. Draining. Down right leg some also so that's from where had ruptured disc, remember the 24 hours of motrin 600mg I took for tooth eliminated the pain. Anyway somehow inflammation tied it? Love Phillipa

 

Re: spondylosis » Phillipa

Posted by floatingbridge on March 13, 2011, at 19:47:18

In reply to Re: hyperfocus :) » floatingbridge, posted by Phillipa on March 13, 2011, at 19:35:01

Phillipa, then I guess I don't know what that is....

I'm sorry your pain is that bad right now. :(

PB could use a chronic pain board....

No, wait. Guess that's health.

Hugs.

 

Re: spondylosis » floatingbridge

Posted by Phillipa on March 13, 2011, at 20:52:59

In reply to Re: spondylosis » Phillipa, posted by floatingbridge on March 13, 2011, at 19:47:18

Health is gone. Bob deleted it. I wonder if the osteo board a member of has this as they deal with everything from cancer to back issues and bone issues? Love Phillipa

 

Re: spondylosis

Posted by Cydnie on March 14, 2011, at 9:44:14

In reply to Re: spondylosis » floatingbridge, posted by Phillipa on March 13, 2011, at 20:52:59

FB:
Did you ever get my babblemail? I wrote awhile ago. I haven't been back on pb for awhile because I was doing so sh**ty. Still not doing great. Actually wanted to come on and see if you started your emsam or not. Luckily I started it without the whole 2 week washout, and was able to take my adderall with it too. I had a reaction to it (because of my masto pain problem, look at how many of us have chronic pain and depression!!! Yikes!!) but also made me too agitated (I read last night, this guy started with 3mg, he cut it in 1/2, because he wrote that at 6mg, you get a ton of dopamine, but it's not high enough for the serotonin and norepinephrine, so if you're someone (I'm guessing maybe like me) who didn't need that much dopamine to start, it was too agitating, so he cut his in half! If it hadn't caused the pain flare-ups from my pain disorder, I would have tried that! I'm not suggesting it to you, just relaying what I read, and of course hoping you are one of the lucky ones who does so well on it, you're off this board only because you're so happy and have too much you want to do!!! I've been so depressed, otherwise I of course would have been on here writing to you too. Hoping you are doing a lot better, keep on writing in. The 2 week washout is terribble, I'm just starting mine today. Let us know how you're doing! If I ever read anything wrong, please just know it's just I think the meds make me spacey, and not because I'm not trying to read it well. I'm avoiding going downstairs where my poor little one is watching elmo in his exersaucer, because I'm scared of trying to go down there and disappoint myself by failing as a mom again, but I gotta go. Anyway, I really hope you're better, and you have a lot of caring people out here who understand and empathize, I always need to remind myself of that too, I feel so alone sometimes, I feel suicidal ideation. But then I come back here! It's a great site, and we're here for you!

 

Re: hyperfocus :) » floatingbridge

Posted by hyperfocus on March 14, 2011, at 11:45:05

In reply to hyperfocus :) » hyperfocus, posted by floatingbridge on March 13, 2011, at 15:56:34

Spondylosis is a condition where the nerves between the vertebrae start getting compressed. Many people just develop it as their bodies age. Usually it needs to be diagnosed by a neurologist. If your back pain is due to nerve damage instead of damage to or inflammation of the bones and joints - then amitrip in low doses is definitely worth a shot. It's been shown to be very effective with the most difficult neuropathic pain like fibromyalga and diabetic neuropathy. If you're having pain and insomnia then amitrip at night should definitely be on the cards. I know it's an old drug and not much money to be made from it now but it's still very good - if you want I can send you some articles you can show to your doc/T. No other tricyclic has the painkilling properties of amitrip.

I don't have to deal with any chronic physical pain, thankfully, but I am hyperglycemic and very overweight and out of shape due to years of inactivity because of social phobia. So no matter what this disease will impact your physical well-being significantly. Have both physical and mental pain can be overwhelming, especially when there are other people who depend on you, but I know you're strong fb and your family knows what a great wife and mother you are. Everybody here knows what a great person you are. It seems a rule that in life the most sensitive, caring people are the ones who have to suffer the most. But you will get through this.

 

Re: spondylosis » Cydnie

Posted by floatingbridge on March 14, 2011, at 13:58:25

In reply to Re: spondylosis, posted by Cydnie on March 14, 2011, at 9:44:14

Cyndie,

I did get your note--I was pleased, not because you were unhappy (umm, understatement), but because you wrote.

I feel so horrible, and I lean on everyone around me--and thank the stars I have anyone--. So, I didn't write back. I'm, like, sliding down a steep hill grabbing at
branches, rocks, grass. Anything. Sounds like you know exactly.

Yeah. The kid. I went zero to 120 last night because my husband was taking his very polite, indirect way in dividing one
piece of wheat-free (because of me)
chocolate cake three ways. I didn't want any, but was 'showing up' at the table to keep up some standard of civil living for my child. It's late, almost his bedtime,
and DH gives him 1+ inches of xxx
chocolate fudge icing. Well, any joy in that moment I certainly ruined.

I've had to give up so much. Ways I wanted to spend time w/ my kid. Certain
limits enforced (like at least three hours should be alotted per pound of sugar consumed by anyone under the age of 9
before bedtime.... I still feel sorry for
myself. (Not because I left before cake was served :D .) Self-pity is ungrateful,
because all my DH was doing was being
kind to our son esp now that his nice lady mom needs restraints once a day. My son loves me, but is scared. That, now that, really feels like sh*t.

(For the record, I 'only' have apoplexy-
like fits. No name-calling, hitting, physical stuff.... It's more like, what?
You don't have your bathing suit?! And
on a dime I'm speed walking to the car
so hyper-aroused, that I know I won't be able to 'come down', drive home and
back to make swim lesson. I hate
this!!!!!!! He says, I know it's not because of me, but your 'arthritis'-- our household colloquialism for whatever the F is wrong with me. However, he feels it.

Cydnie, thanks for writing. So are some treatments beginning to help a little?
Jeez. I hope you feel improvement steadily. Big hugs.

Do you make use of books on tape for your wee one? Invaluable here. Sometimes too tired to read :(

 

kind words » hyperfocus

Posted by floatingbridge on March 14, 2011, at 14:44:39

In reply to Re: hyperfocus :) » floatingbridge, posted by hyperfocus on March 14, 2011, at 11:45:05

Thank you for that, HP.

Guess I do have that. It's been remarked upon. Though the word never used--like if I just walked more everything would be cured. (Sorry. Still angry at last physiatrist I fired for nothing. As in what he did. Nothing :( .)

Social anxiety. Oh. That can be very
intractable. I'm very sorry. I don't care for exercise bikes or treadmills, myself. I don't always want to leave the house.

Your advice re: ami sounds so reasonable. That's what my gp says, too.

O.K. day by day. I'll call her.

Thanks : J

 

Re: note from sea level » floatingbridge

Posted by bleauberry on March 14, 2011, at 16:57:16

In reply to note from sea level » bleauberry, posted by floatingbridge on March 13, 2011, at 15:36:01

I am really sorry things are so rough right now. Wish there was something to do to help. I wish for things to turnaround soon. Your strength is amazing.

 

Re: hyperfocus :) » hyperfocus

Posted by Phillipa on March 14, 2011, at 19:58:33

In reply to Re: hyperfocus :) » floatingbridge, posted by hyperfocus on March 14, 2011, at 11:45:05

Hyperfocus x-rays dx'd the spondylosis and bone spurs, another doc wants me to see a Nerosurgeon Spine doc got the card here. Go to Caroina Neurosurgery and Spine in Charlotte NC. I was recommended a Dr Hunter Dyer. Studied in France and here in US. A large group of docs. Many treatments and site lists them all depending on whether a nerve is involved. Started using back support again today for riding bike to avoid pain. Does help. I know meds are mentioned on the site couldn't find names of them? Thanks for the article. Phillipa

 

Re: note from sea level » bleauberry

Posted by floatingbridge on March 14, 2011, at 21:20:21

In reply to Re: note from sea level » floatingbridge, posted by bleauberry on March 14, 2011, at 16:57:16

Thanks, BB. I'm kinda' dense, too : J

I hope things are good where you are. You have my support and good wishes, too.

 

Re: note from sea level » floatingbridge

Posted by morgan miller on March 15, 2011, at 16:26:47

In reply to Re: note from sea level » bleauberry, posted by floatingbridge on March 14, 2011, at 21:20:21

Hey FB, hope you are hanging in o.k.

Are you able to exercise at all?

What do you think about a steam room followed by a freezing cold shower? It really rejuvenates me, especially after my workouts, and any discomfort I felt before is gone, at least for a little while.

 

Re: gp at 3:40: don't start new med.

Posted by morgan miller on March 15, 2011, at 16:51:51

In reply to gp at 3:40: don't start new med. » floatingbridge, posted by floatingbridge on March 4, 2011, at 15:34:05

FB, sorry if it feels like I'm bugging you with suggestions : )

I'm wondering if you have ever considered heavy antibiotic therapy as pathogens are now believed to possibly be responsible for many autoimmune disorders. Now I sound like BB : )

How about these supplements:

Curcumin-One I really like is Curamin by Terry Naturally-expensive but it works for a lot of people.

Medicinal Mushrooms-things like reishi, chaga, maitake, cordyceps, etc.

Aloe Vera Juice-Herbal Answers is best

I know buying supplements like this can get very expensive, but if you can find some way to afford them, it might be well worth the expense.

 

Re: note from sea level » floatingbridge

Posted by morgan miller on March 15, 2011, at 16:56:01

In reply to note from sea level » bleauberry, posted by floatingbridge on March 13, 2011, at 15:36:01

I think LDN is a great idea. I also think you should research some of the supplements I suggested as much as you can. Pubmed is a good place to go for reliable research.

If your doctor does not go for LDN, either find another that will, or find and inexpensive reliable online pharmacy you can buy it from. We need to be our own advocates. Doctors are our employees, we are their employers. LDN at a low dose will be a harmless trial, any doctor would be incompetent not to give it a try. This country is full of incompetent doctors.

 

Re: note from sea level » morgan miller

Posted by Phillipa on March 15, 2011, at 21:12:13

In reply to Re: note from sea level » floatingbridge, posted by morgan miller on March 15, 2011, at 16:56:01

Morgan know this is for FB but if what you say is true pathogens for autoimmune diseases I have same autoimmune, pain, and still posiive for lymes treated for two years for. I found one day 600mg of motrin made me feel almost normal. So I feel inflammation is also involved especially since hasimotos is inflammtion of throid gland at first. Got a good link? I've been googling for nights now Phillipa

 

Re: note from sea level » morgan miller

Posted by floatingbridge on March 16, 2011, at 3:59:58

In reply to Re: note from sea level » floatingbridge, posted by morgan miller on March 15, 2011, at 16:56:01

Hi Morgan, Thanks for the ideas--I welcome them. Interesting that I do warm/cold baths for carpal tunnel. The best besides a paraffin dip (now that's incredible for hands!). Works two ways: one very 'real' in that it increases circulation which is a biggie in CT. Second, as a 'distraction'--sensation overwhelms the pain. Good dbt trick, too.

I've gotten serious with krill oil. $$$! Need to take more + flax, too, I believe.

Friend gave (how nice is that?) me her
bottle of some super Vit D gunk. A pinpricked size dose sucked off of a finger absorbs better than the 50,000mg bombs of A I get every so often (mine has been as low as 4 and as high as 25. Not good--and I am in sun, no sunscreen. )

Medicine isn't as honorable as it was, largely, just imho, because insurance, but I'll spare you and anyone else reading my nutty rant. My grandfather, who grew up in Brooklyn knew 20's gangsters. Sax player in clubs. Couldn't avoid them. "It's a real racket," he'd say. (About, ummm, everything... :D. ) I won't mention his other choice comments. (Excuse us; we came from states famed for all these little king pins who grew fat shaking down the owners of gumballmachines and laundramats.

But gosh dang it! He was right about insurance!

Google, umm, let's see... No, yahoo group on LDN, lowdosenaldrexone. All one word, but spelled correctly.

I'm holding off on ingesting anything right now besides a few supplments--oils and D. Will file (I really will) your suggestions.

There are antibiotic fans here I know. But I'm not there yet. Don't mind hearing about it though. I'm frying so many fish right now, I could sell fish & chips w/ lemonade (I'm thirsty).

Glad you're here and kicking!

 

Re: note from sea level

Posted by morgan miller on March 16, 2011, at 12:03:55

In reply to Re: note from sea level » morgan miller, posted by floatingbridge on March 16, 2011, at 3:59:58

Have you had vitamin D levels tested? Now researchers believe levels between 40 and 60 might be optimal. You should only need 4000 to 8000 i.u. in the form of D3 oil based soft gels to maintain optimal levels.

Freezing cold immersion therapy does several things including boosting levels of norepinephrine, which is the neurotransmitter targeted in many medications used to treat pain disorders. It will also greatly reduce inflammation. I wonder if there is a spa near you with poultice rooms and a cold water immersion pool?

I'm surprised you have not tried curcumin yet. What about boswellia. Both are fairly cheap if not in patented forms. Curcumin is good for so many things, it's like taking fish oil, it's hard to make an argument against taking it for most people. Sorry if it sounds like I'm bugging you. I am!!! : ) I know you are going to wait to try a few new things.

>Google, umm, let's see... No, yahoo group on LDN, lowdosenaldrexone. All one word, but spelled correctly.

Check out this site:

http://www.lowdosenaltrexone.org/

Hang in there!

Morgan

 

Re: note from sea level

Posted by floatingbridge on March 16, 2011, at 15:31:59

In reply to Re: note from sea level, posted by morgan miller on March 16, 2011, at 12:03:55

Morgan,

That's the LDN I meant! On yahoo? If not, I'll dig up the other. Thanks. No bugging at all. I thought I wrote (somewhere, but where? that my D always comes in between 4(!) and 25 despite 50,000mg therapy. So, yes, constantly tested and then two days ago given a new absorbable liquid gunk. A
friend who spent oodles out of pocket had a test to confirm that the D from the markets doesn't work for her. So I just started the Lexus of Vit D's.

And remember the maternal depression
study? I found this. So finally and yes.
Dad's are getting looked at, too.

http://aapublications.pediatrics.org.cgi/reprint/2010-1779v1?eaf

Different angle, etc. Just bumped into it.

Hey! You are NOT bugging me! Remember how I stormed off in a rage of
self-pity when no one (except Phillipa) wrote. Yes, very silly.

So pleeease bug me. It's what I came here for :D

fb

 

Re: note from sea level » floatingbridge

Posted by Phillipa on March 16, 2011, at 19:45:31

In reply to Re: note from sea level » morgan miller, posted by floatingbridge on March 16, 2011, at 3:59:58

FB forgot about carpal tunnel. Seriously Brooklyn? Tough place for sure. I'm also glad Morgan is here he has a very balanced approach to a combo of medications, supplements, excercise etc. Phillipa

 

Re: note from sea level

Posted by morgan miller on March 25, 2011, at 23:55:45

In reply to Re: note from sea level, posted by floatingbridge on March 16, 2011, at 15:31:59

> Morgan,
>
> That's the LDN I meant! On yahoo? If not, I'll dig up the other. Thanks. No bugging at all. I thought I wrote (somewhere, but where? that my D always comes in between 4(!) and 25 despite 50,000mg therapy. So, yes, constantly tested and then two days ago given a new absorbable liquid gunk. A
> friend who spent oodles out of pocket had a test to confirm that the D from the markets doesn't work for her. So I just started the Lexus of Vit D's.
>
> And remember the maternal depression
> study? I found this. So finally and yes.
> Dad's are getting looked at, too.
>
> http://aapublications.pediatrics.org.cgi/reprint/2010-1779v1?eaf
>
> Different angle, etc. Just bumped into it.
>
> Hey! You are NOT bugging me! Remember how I stormed off in a rage of
> self-pity when no one (except Phillipa) wrote. Yes, very silly.
>
> So pleeease bug me. It's what I came here for :D
>
> fb

Hey FB how are you?

Yeah fathers also play a major role in the development of a child's mental health/psyche. I do think though that the research shows the mother plays the largest role in early developmental years, 1 to 4.

 

Re: note from sea level » morgan miller

Posted by floatingbridge on March 26, 2011, at 1:26:33

In reply to Re: note from sea level, posted by morgan miller on March 25, 2011, at 23:55:45

Hey Dude, how are you doing? I'm still twiddling my thumbs, taking boatloads of Krill oil and other supplements, batting at pain w/ a controlled modicum of norco.

The rage-thing seemed fabulously drug induced by Lyrica. Gp had a theory that the Lyrica displaced any xanax taken at all and essentially induced withdrawal. Rock, paper, scissors approach.

Would the right pdoc or the wrong pdoc dx mixed episode? Sigh. I ain't saying and they ain't said.

Pain really stinks. An MRI is forthcoming, at least one. The DO mentioned the possibility or let's say a severity enough
to warrant surgery, but he's still assessing.

Gp thinks it might be crps which would explain why it's worsens upon standing and began with an emergency c-section. Through my body into shock. I had never hear of this before, this crps. Great. Spine surgery? I can't even imagine.

Anyways, I am actually off all AD's!!! And I think the Lyrica helped that process. Head zaps gone, wereas w/effexor had them for months and months and
months.

Not that AD-free need be celebrated for it's own sake. I feel somewhat more lucid now, with more access to feeling.

But most solutions create new problems. Yeah. So I'm about to pop over to social and thank Dinah for her suggestion
about risperdal as needed for emotional intensity. Then I'll run it by pdoc. Better or worse than xanax. I've been as low as 0.25mg xanax a day and high as four,
currently at 1.5mg, so my escalation
rises and falls over about a ten+ year span. Which is better? Everyone says demon
xanax, and I suppose I agree. I'd try it. The risperdal. It probably won't improve my spelling : J

I think the link I sent was broken;
anyways, moms got the hormone thing. They take the heat. Their hormones are funded for study regarding infants and reproduction but under-funded for any other time of their lives (product quality assurance, imho; someone needs to be blamed for the present world crisis). (Joke. Sort of.)

I really do know mums affect their kids on the cellular level--no argument. I think that more attention needs to be given to the role father's play besides the one of giving their kids relief from their moms. (Joke.)

Every interaction affects us on a cellular
level. Even as adults. I think it's a
shame, really, to underplay a father's role because it also means that the father's role is greatly short-changed.

There is a non-fiction book, "Stiffed" by Susan Fauldi (I think) that details how US men have been sold a short bill of goods,
cheated, and underestimated.


Overly focusing on moms (no fault of the study you posted) distorts the entire picture :( and we all lose out, IMO.

Sadly, I am driving my son nuts. Hopefully he'll not succumb to real MI, just a liberal dose of neurosis. (Plural?)
He's witty in ways I never was and has strengths I did not. Let's hope....

Soooooo. Hope you aren't sorry you asked ;D

It's so good to hear from you. How the hay are you? (You can direct me toward a thread you have on board if you like.)

Very best to you,

fb


 

Re: note from sea level » floatingbridge

Posted by Phillipa on March 26, 2011, at 21:13:10

In reply to Re: note from sea level » morgan miller, posted by floatingbridge on March 26, 2011, at 1:26:33

Interesting about lyric and xanax one haven't heard before. I opt for xanax. Resperidol 1/4 tabs knocked both me and husband zoonko out we both felt miserable. It was a deal we had at the time that if I would take it he would for supports. Last time for either of us. Saw Son, and you know the rest all went well. Truly. Phillipa


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