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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by Jeroen on March 9, 2007, at 17:48:37
hi there, i have started upping my dose to 400 mg from januari 2 until now of seroquel
it hasnt helped this time at allis 4 weeks enough time for 400 mg to kick in? i have no other treatment options except for Clozapine
should i give seroquel 400 mg one more try for a week or not?
Posted by Phillipa on March 9, 2007, at 21:20:53
In reply to giving up.. sadly but,, posted by Jeroen on March 9, 2007, at 17:48:37
Jeroen contact your doc and ask. So sorry it hasn't helped this time. Love Phillipa
Posted by yxibow on March 10, 2007, at 2:40:27
In reply to giving up.. sadly but,, posted by Jeroen on March 9, 2007, at 17:48:37
> hi there, i have started upping my dose to 400 mg from januari 2 until now of seroquel
>
>
> it hasnt helped this time at all
>
> is 4 weeks enough time for 400 mg to kick in? i have no other treatment options except for Clozapine
>
>
> should i give seroquel 400 mg one more try for a week or not?
I'm sorry it is not working for you, but I did mention several other treatments, and I still cannot fathom why you are not mentioning your doctor or any AIMS level exams when you started it and now. You'll never know, even if it dropped your AIMS score 5 points, because it hasn't been done.I can't speak any more about options, there are other options, such as tetrabenazine, depending on where you live, I don't know if it is approved EU wide or just Great Britain. There's also high doses of buspirone (BuSpar), high doses of Vitamin E (1600 IU -- ONLY WITH YOUR DOCTOR, you could have internal bleeding otherwise)
Each one of these requires doing AIMS testing and then doing it down the line, and I can't imagine any doctor not doing AIMS testing. Its a generally practiced protocol related to all neuroleptics and it only takes a few minutes in your doctors office and no pain, just observation and instructions. I dunno, I mean I'm sort of exasperated about this, but I feel for you too greatly.
There is not much I can say, but I would like to hear that you have a doctor and he is monitoring and doing the above.I'm sorry it isn't working to your satisfaction but some of those things have to be met too.
-- regards
Jay
Posted by Jeroen on March 10, 2007, at 3:13:40
In reply to Re: giving up.. sadly but, » Jeroen, posted by yxibow on March 10, 2007, at 2:40:27
INTERNAL BLEEDING??
explain, i take 800 IU right nowINTERNAL BLEEDING?
Posted by Sandra62 on March 10, 2007, at 13:03:39
In reply to Re: giving up.. sadly but, » Jeroen, posted by yxibow on March 10, 2007, at 2:40:27
What is AIMS testing??
Posted by yxibow on March 10, 2007, at 14:15:00
In reply to Re: giving up.. sadly but,, posted by Sandra62 on March 10, 2007, at 13:03:39
> What is AIMS testing??
Abnormal Involuntary Movement scale, it is a subjective test of possible TD that is supposed to be given as a protocol by doctors who treat patients with neuroleptics every 3 to 6 months or so, and initially to get a baseline.
It is a simple subjective test of various movements, standing up, posture, and other things, generally to catch a patient off guard in ways because TD almost always follows a pattern that if one movement is interrupted intentionally another is stopped. Also, people with TD are generally not aware that they have TD. Yes, that is true and noted by Wirshing and Wirshing. It has to be pointed out most of the time and then a patient may become aware that they have it. Also sometimes what may seem to be TD may in fact be a nasty form of EPS (extrapyramidal symptoms, or side effects from neuroleptics and more rarely from some tricyclics and even more rarely from SSRIs) as EPS and TD are two things on opposite ends of a sliding scale.
Doctors not familiar with this test should really not be giving their patients antipsychotics. It does a disservice to the patient, does not follow the pattern of informed consent for taking the neuroleptic in the first place.
Posted by yxibow on March 10, 2007, at 14:25:34
In reply to INTERNAL BLEEDING??, posted by Jeroen on March 10, 2007, at 3:13:40
> INTERNAL BLEEDING??
>
>
> explain, i take 800 IU right now
>
> INTERNAL BLEEDING?Oh dear, Jeroen, is there ANY doctor managing these things ? You can't take multiple protocols for attempting to alleviate TD at the same time. Seroquel, Vitamin E, etc, and NO AIMS testing and no AIMS baseline. You will never know what works.
Yes, internal bleeding. Vitamin E can cause subarachnoid hemorrhages, just outside the internal brain, because it downregulates Vitamin K and upsets prothrombin time.
This is definately not a common occurrence, but it has happened and is why Vitamin E pills above an already increased OTC standard (400 IU, I do take it myself most days if I remember), dosal related is not without risk and it is also, remember, a fat soluble vitamin, so it can remain in the body (I'm not sure how long).
This is not to say that 1600 IU hasn't been used in studies before, Parkinsons, TD, etc, but I'm just saying you should have a doctor to call should something very unlikely happen.
I don't know what else to say on this subject except I... where... is your doctor?
-- Jay
Posted by Jeroen on March 10, 2007, at 15:56:08
In reply to Re: INTERNAL BLEEDING?? » Jeroen, posted by yxibow on March 10, 2007, at 14:25:34
their fault i have TD, so, i paid for brain damage
3 years of therapy
i bet they read this posts in their free time, even the police is monitoring everything, they are m*therfucking jackasses
Posted by Jeroen on March 10, 2007, at 15:57:43
In reply to their fault i have TD, so, i paid for brain damage, posted by Jeroen on March 10, 2007, at 15:56:08
how long does it take for seroquel to kick in? 3-4 weeks?
Posted by yxibow on March 10, 2007, at 16:59:12
In reply to their fault i have TD, so, i paid for brain damage, posted by Jeroen on March 10, 2007, at 15:56:08
> their fault i have TD, so, i paid for brain damage
>
> 3 years of therapy
>
> i bet they read this posts in their free time, even the police is monitoring everything, they are m*therfucking jackassesI don't know your history or your diagnosis.
What I am sensing is some sort of psychosis, possibly psychotic depression or schizoaffective disorder but I can't prescribe over the net.
Nonetheless if you were in a lucid state and your doctor informed you that you could get TD from an antipsychotic, that is what is informed consent and as horrible as it is, the doctor is not responsible for the drug itself if it was used for a proper purpose. A purpose which I am unfortunately beginning to see which is a lot of angered paranoia.
If you have quit your doctor and are ordering substances over online pharmacies, I can help you no more. I am not going to be caught in a circle of substance testing for TD on your own. You NEED a doctor to do all of this whether you think every doctor on the planet and Dr Bob is a "m*therfucking jackass."I really think you need to be seen by a psychopharmacologist who specializes in psychotic disorders and the attempted managment of Tardive Dyskinesia. But regardless of the tape you showed us, only a doctor can make a complete assessment of TD and its intensity. And thats where the AIMS exam comes in.
It is too hard to argue with someone who dismisses logic under paranoia and then in the next post asks how much medicine they should play with (Seroquel).
This doesn't mean I am not sympathetic to your cause. This doesn't mean I don't like you. This means I believe you need to hear these things and find someone else if you don't trust who was helping you before before you make things even worse with obtaining medication and help through someone other than a licensed practitioner in your country or a neighboring one, however it is done in the EU.
Its imperative you find someone you trust; you may need to take Clozaril to get some of your paranoia under control as it is, TD or not.
I'm sorry, Jeroen, but you will have to deal with people with whom you trust on here and I hope they can understand something of what I am trying to say. I know there is a bit of a language barrier but I think you understand enough English to utter 4 letter words, so it is my belief that you can grasp what I am trying to say.
That is all I can do, really.-- Jay
Posted by Jeroen on March 10, 2007, at 17:16:02
In reply to Re: their fault i have TD, so, i paid for brain da » Jeroen, posted by yxibow on March 10, 2007, at 16:59:12
hi, they said to me suggest to take geodon
i did and 3 weeks later my social life that existed fell apart, were 2 years after now and still have problems
Posted by 10derHeart on March 10, 2007, at 17:27:15
In reply to their fault i have TD, so, i paid for brain damage, posted by Jeroen on March 10, 2007, at 15:56:08
>>....they are m*therf[*]cking jack[*]sses
>>whether you think every doctor on the planet and Dr Bob is a "m*therf[*]cking jack[*]ss."
Please don't use language that could offend others, or bypass the automatic asterisking system to post forms of vulgar words (even if you are quoting someone else.)
If you or others have questions about this or about posting policies in general, or are interested in alternative ways of expressing yourself, please see the FAQ: http://www.dr-bob.org/babble/faq.html#civil
Follow-ups regarding these issues should be directed to Admin and should of course be civil. Dr. Bob has oversight over deputy decisions, and he may choose a different action.
Respectfully,
10derHeart, acting as deputy for Dr. Bob
Posted by yxibow on March 10, 2007, at 19:06:04
In reply to Please be civil - Jeroen + xyibow, posted by 10derHeart on March 10, 2007, at 17:27:15
> >>....they are m*----------- jac-------ses
>
> >>whether you think every doctor on the planet and Dr Bob is a "m------------king j---------"
>
> Please don't use language that could offend others, or bypass the automatic asterisking system to post forms of vulgar words (even if you are quoting someone else.)I beg to differ, I have the automatic asterisking system turned on. This is an example of a reactionary response as a deputy. I was merely, yes, quoting someone else and the asterisks are certainly turned on if you look at my post. Sometimes language is necessary to get a point across but that wasn't my point -- I was quoting what was already there.
It also wasn't meant in argument, but frustrative sense, if you have been following the board and the fact that I have gotten no concrete answer from Jeroen about his even having a doctor. So I simply wrote what I thought he should do in my opinion and I gave up.
Now please don't give me a please be civil of a triple quote of things, I put my heart into this board and rarely get things back because my disorder is so incredibly rare and different from other people's on here. That's fine. Its a place I come to during the day when I'm at my computer. I could be watching TiVo or doing something else. But I decide to come here, perhaps just because by voicing myself I get some extra therapy in.
I just checked again -- I've been having computer problems, and yes, my asterisking is turned on. I never bypassed anything.
Thirdly, I have totally blocked out all the letters in this posting because I think the political correctness towards me has gone towards sheer idiocy but I don't want to be banned from posting because I felt I was trying to help him. I have for several weeks and this is too draining. I don't need my good name sullied or "blocked" over this any more.
If Jeroen wants to talk about things in a practical sense, that involve, doctors, substances obtained in a legal manner in the EU, proper protocols, and yes, he can get angry about his disorder that is his right, then we have something to go on. Otherwise, well I'm kind of worried about his paranoia.-- good day
Posted by gardenergirl on March 12, 2007, at 1:00:23
In reply to Re: Please be civil - Jeroen + xyibow » 10derHeart, posted by yxibow on March 10, 2007, at 19:06:04
I moved these follow-ups to the thread on Admin. Here is a link:
http://www.dr-bob.org/babble/admin/20070304/msgs/740323.htmlnamaste
gg
Posted by Dr. Bob on March 21, 2007, at 4:03:15
In reply to Please be civil - Jeroen + xyibow, posted by 10derHeart on March 10, 2007, at 17:27:15
> Please don't use language that could offend others, or bypass the automatic asterisking system to post forms of vulgar words (even if you are quoting someone else.)
>
> Dr. Bob has oversight over deputy decisions, and he may choose a different action.They didn't bypass the system, so I'm going to retract that PBC.
Bob
This is the end of the thread.
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