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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 25 of 25. This is the beginning of the thread.
Posted by wildcard on September 24, 2005, at 12:47:47
>After other babblers mentioned 1)Epstein Barr Virus i googled it and did find interesting facts re: the virus. It is worth looking into.
>Also, this interested me more; 2)Candidafree.net
I personally have a lot of these symptoms and am bringing this to my doc's attention! Of course they will recheck my thyroid and blood work but it is interesting if you have severe fatigue. Hope this helps someone.
Posted by Phillipa on September 24, 2005, at 13:08:16
In reply to SEVERE FATIGUE SUFFERERS!! CK this out, posted by wildcard on September 24, 2005, at 12:47:47
Boy you've been busy. And I certainly need help with fatigue brought on mostly by anxiety I hope. Fondly, Phillipa
Posted by wildcard on September 24, 2005, at 13:32:12
In reply to Re: SEVERE FATIGUE SUFFERERS!! CK this out » wildcard, posted by Phillipa on September 24, 2005, at 13:08:16
Well it was Spriggy and Racer that i recall mentioning the two...i just looked into the info. instead of being the *lab rat* any longer!
Posted by Phillipa on September 24, 2005, at 13:52:03
In reply to Re: SEVERE FATIGUE SUFFERERS!! CK this out » Phillipa, posted by wildcard on September 24, 2005, at 13:32:12
Okay now I want to know what is considered severe fatigue? If someone is under a lot of stress and has no desire to do anything is is very tired. And has gotten at least 8 hours sleep the night before. Fondly, Phillipa
Posted by wildcard on September 24, 2005, at 14:12:55
In reply to Re: SEVERE FATIGUE SUFFERERS!! CK this out, posted by Phillipa on September 24, 2005, at 13:52:03
>There are so many so either google Chronic Fatigue or u can ck out familydoctor.org I just emailed it to u PJ ; )
Posted by Phillipa on September 24, 2005, at 15:35:25
In reply to Yes! Go to » Phillipa, posted by wildcard on September 24, 2005, at 14:12:55
Got it funny we picked the same one. Okay Love PJ
Posted by iforgotmypassword on September 24, 2005, at 16:07:14
In reply to Re: Yes! Go to » wildcard, posted by Phillipa on September 24, 2005, at 15:35:25
i don't understand this bit:
"The yeast have genetically transformed some of the human cells that line the intestinal tract so that some of the human cells now contain yeast DNA"
this was from the candidafree.net page
Posted by wildcard on September 24, 2005, at 16:18:04
In reply to Re: Yes! Go to, posted by iforgotmypassword on September 24, 2005, at 16:07:14
Got me on that one??? I just found the symptoms interesting and i thought i'd mention it. ????
Posted by iforgotmypassword on September 24, 2005, at 16:31:38
In reply to Re: Yes! Go to » iforgotmypassword, posted by wildcard on September 24, 2005, at 16:18:04
oh no no, sorry, i don't mean to complain. thank you very much for sharing everything.
it just eventually always seems that there a holes in everything. although some people say they find what works for them, i am skeptical and wonder how much better they are really, truly functioning. maybe it is just because i haven't found anything yet, or any doctor that seems keen on the idea of really finding out whatever my problem is and solving it. god knows i am completely and totally in the dark here.
Posted by wildcard on September 24, 2005, at 16:45:01
In reply to Re: Yes! Go to, posted by iforgotmypassword on September 24, 2005, at 16:31:38
> I didn't think anything negative at all. I rarely understand some stuff they say..LOL
I am just desperate to not be fatiged every day, to feel better, to have a LIFE! what's that?
I am doing my own research on everything and anything i can find re: this fatigue at age 27. I know my body and this is not normal for me. I have felt like this for years now and each time i get rx'd yet another AD so i'm looking a bit deeper. My blood tests in May 05 were very abnormal but no further testing was done due to my state ins.. but since i demanded to be seen, i'm taking full advantage of it! My fingers are crossed ; )
Posted by spriggy on September 24, 2005, at 18:25:39
In reply to Totally understand » iforgotmypassword, posted by wildcard on September 24, 2005, at 16:45:01
Also, I read on this site for candida questions:
http://www.healthyawareness.com/candida_general/home.htm
I know that from what I've read, one way to tell if you have a candida problem is to spit (first i the morning) into a glass of water. Let it sit for an hour. If there are "tenticle" like things coming out of your spit- that's a sign you have a candida problem.
I tried it and sure enough, mine did that. My husband's did not.Gross? yes, I know. especially after all that "spit" talk on Social. ROFL
Posted by wildcard on September 24, 2005, at 20:02:32
In reply to I sent you a babblemail Wildcard..., posted by spriggy on September 24, 2005, at 18:25:39
Posted by KayeBaby on September 25, 2005, at 20:09:56
In reply to SEVERE FATIGUE SUFFERERS!! CK this out, posted by wildcard on September 24, 2005, at 12:47:47
Hey,
Good luck tomorrow and don't forget to bring up you abby labs to the Dr.
I just had my liver function checked and am hoping it is ok.
Hope you get this fatigue addressed properly as I am in touch with how awful it can be.Peace,
Kaye
Posted by wildcard on September 25, 2005, at 20:20:22
In reply to Liver » wildcard, posted by KayeBaby on September 25, 2005, at 20:09:56
Thanks a lot..i plan too bring up everything and am going to request they test for Epstein Barr and Candida overgrowth. I am desperate! I will def. let everyone know in hopes that it will help someone that feels this way. U take care ; ) abbey
Posted by iforgotmypassword on September 25, 2005, at 21:37:05
In reply to Re: Liver » KayeBaby, posted by wildcard on September 25, 2005, at 20:20:22
best of luck, btw. i really, really hope they let you get to the bottom of this! (you will have to share with us how you get better, though!)
xoxo
Posted by neuroman on September 25, 2005, at 21:50:17
In reply to Re: Yes! Go to, posted by iforgotmypassword on September 24, 2005, at 16:31:38
Hi,
> it just eventually always seems that there a holes in everything. although some people say they find what works for them, i am skeptical and wonder how much better they are really
I feel the same way about this. I've been to my local chronic fatigue support group and everyone seems to be on a perpetual wild goose chase and nobody's getting any better. I was on one for quite a while too. I've been to a number of alternative type doctors who did all these tests yet never seemed to be willing to rule anything out even when the tests came back negative. And when you follow their treatment plans and still don't get better they say it's because you probably aren't doing everything exactly right. I've just come to the conclusion that, for me, it's a matter of my brain and nervous system being out of whack. But that's just me...
Paul
Posted by KaraS on September 26, 2005, at 9:56:09
In reply to Re: Yes! Go to » iforgotmypassword, posted by neuroman on September 25, 2005, at 21:50:17
> Hi,
>
> > it just eventually always seems that there a holes in everything. although some people say they find what works for them, i am skeptical and wonder how much better they are really
>
> I feel the same way about this. I've been to my local chronic fatigue support group and everyone seems to be on a perpetual wild goose chase and nobody's getting any better. I was on one for quite a while too. I've been to a number of alternative type doctors who did all these tests yet never seemed to be willing to rule anything out even when the tests came back negative. And when you follow their treatment plans and still don't get better they say it's because you probably aren't doing everything exactly right. I've just come to the conclusion that, for me, it's a matter of my brain and nervous system being out of whack. But that's just me...
>
> Paul
I was diagnosed with CFS about 20 years ago and I got a lot better. Mine is definitely a virus. I presented with swollen glands, sore throats, nausea and fatigue mainly. I'd have flu like episodes with those symptoms and then it would get better and I'd feel fine for a while and then it would start again. Now I usually only get an episode if I get really run down but an episode can last as long as a couple of months. More often than not, I'm fine though.
Posted by neuroman on September 26, 2005, at 10:25:45
In reply to Re: Yes! Go to » neuroman, posted by KaraS on September 26, 2005, at 9:56:09
> I was diagnosed with CFS about 20 years ago and I got a lot better. Mine is definitely a virus. I presented with swollen glands, sore throats, nausea and fatigue mainly. I'd have flu like episodes with those symptoms and then it would get better and I'd feel fine for a while and then it would start again. Now I usually only get an episode if I get really run down but an episode can last as long as a couple of months. More often than not, I'm fine though.
I have no doubt that viruses can cause chronic fatigue. It's just if you check out the chronic fatigue websites they seem to come out with a new theory as to it's cause every other month. I've had my fillings replaced, I've taken antiviral meds, I've had chelation therapy and vitamin drips, I've tried anti-yeast diets and supplements, etc. At some point it starts getting old. (And I started getting old.) There are things worth testing. But if they come back negative, accept it and move on. Some of these doctors will drive you bananas. There are simple and cheap things to test for that can be a good indicator of health, such as urine and blood pH. But a lot of these docs would rather send you for a $900 test and when it comes back negative they'll say, "Oh that doesn't necessarily mean you don't have it..." Then what the heck did I take the test for? Let's just assume I'm positive for everything! Aargh!
Ok...I am a little bitter. I'm glad you've found some relief though... :-)
Posted by KaraS on September 26, 2005, at 14:03:44
In reply to Re: Yes! Go to » KaraS, posted by neuroman on September 26, 2005, at 10:25:45
> > I was diagnosed with CFS about 20 years ago and I got a lot better. Mine is definitely a virus. I presented with swollen glands, sore throats, nausea and fatigue mainly. I'd have flu like episodes with those symptoms and then it would get better and I'd feel fine for a while and then it would start again. Now I usually only get an episode if I get really run down but an episode can last as long as a couple of months. More often than not, I'm fine though.
>
> I have no doubt that viruses can cause chronic fatigue. It's just if you check out the chronic fatigue websites they seem to come out with a new theory as to it's cause every other month. I've had my fillings replaced, I've taken antiviral meds, I've had chelation therapy and vitamin drips, I've tried anti-yeast diets and supplements, etc. At some point it starts getting old. (And I started getting old.) There are things worth testing. But if they come back negative, accept it and move on. Some of these doctors will drive you bananas. There are simple and cheap things to test for that can be a good indicator of health, such as urine and blood pH. But a lot of these docs would rather send you for a $900 test and when it comes back negative they'll say, "Oh that doesn't necessarily mean you don't have it..." Then what the heck did I take the test for? Let's just assume I'm positive for everything! Aargh!
>
> Ok...I am a little bitter. I'm glad you've found some relief though... :-)
I understand. I felt completely hopeless about it the first few years I had it. I think the main problem is that they don't really know what it is yet so that complicates treatment. I also think that many different things are lumped into the same category and called CFS. My viral symptoms don't match with many other people's symptoms who are classified with the same disease. One result of my (or our?) illness may be the hypersensitive dopamine autoreceptors according to Dr. Goldstein. If that's the case, then I'm still fighting the disease on a daily basis.How long have you had CFS? Is it intermittent or constant? Have any medications or antidepressants helped much with this? I would say that my improvement should give you hope but we don't even know if we have the same condition.
Posted by verne on September 26, 2005, at 19:50:26
In reply to Re: Yes! Go to » neuroman, posted by KaraS on September 26, 2005, at 14:03:44
Kara, I haven't followed this thread but has grapefruit seed extract been mentioned? It's powerful stuff and is even used in hospitals as a disinfectant.
I googled it with chronic fatigue and came up with numerous hits. Here's just one:
Verne
Posted by FredPotter on September 26, 2005, at 21:15:25
In reply to Re: SEVERE FATIGUE SUFFERERS!! CK this out » Phillipa, posted by wildcard on September 24, 2005, at 13:32:12
I'm not sure but I think Lithium may be responsible for my severe fatigue. Is this possible?
Posted by neuroman on September 27, 2005, at 11:30:47
In reply to Re: Yes! Go to » neuroman, posted by KaraS on September 26, 2005, at 14:03:44
Hi,
> I think the main problem is that they don't really know what it is yet so that complicates treatment. I also think that many different things are lumped into the same category and called CFS.
Exactly. I think it's easier for them to do this than actually have to do some detective work and find out what the problem really is.
> One result of my (or our?) illness may be the hypersensitive dopamine autoreceptors according to Dr. Goldstein. If that's the case, then I'm still fighting the disease on a daily basis.
That's the premise that I've decided to go with.
> How long have you had CFS? Is it intermittent or constant?
They started throwing the CFS/FMS diagnosis at me years ago. Frankly, I didn't appreciate it because it gives them an out. There are a million possible reasons why a person might have fatigue and/or pain. It's their job to find the cause, not just to through some catch-all label on it. Whatever I have is not intermittent. It's been a slow downward progression with steep drop offs after particularly stressful periods. More recently I've had doctors tell me it sounds like MS and I should be tested. Considering that I've been telling them I have an uncle with MS, you think they would have brought that up sooner instead of sticking me with the CFS/FMS label. Not that I think I have MS. It just helps to prove my point that they use the chronic fatigue label to keep from actually having to look for the real problem.
> Have any medications or antidepressants helped much with this?
I need dopamine...dopamine!!!
Paul
Posted by lynn970 on September 27, 2005, at 19:16:28
In reply to SEVERE FATIGUE SUFFERERS!! CK this out, posted by wildcard on September 24, 2005, at 12:47:47
Oh my God, wildcard. You have fatigue too? You also have a low thyroid? We also have issues with our parents. Wow!!!
I take a nap for 2 hours everyday that I am off of work. I dont know how you do it as a single mom.
I was checked for the Epstein virus. I also took some herbs to get rid of candida. I have gotten past feeling guilty about taking a nap. I figure if I am tired, my body needs rest.
Posted by Dr. Bob on September 27, 2005, at 22:50:01
In reply to Grapefruit Seed Extract » KaraS, posted by verne on September 26, 2005, at 19:50:26
> Kara, I haven't followed this thread but has grapefruit seed extract been mentioned?
Sorry to interrupt, but I'd like to redirect follow-ups regarding Grapefruit Seed Extract to Psycho-Babble Alternative. Here's a link:
http://www.dr-bob.org/babble/alter/20050924/msgs/560439.html
Thanks,
Bob
Posted by Cairo on September 29, 2005, at 21:21:12
In reply to Re: Yes! Go to » neuroman, posted by KaraS on September 26, 2005, at 14:03:44
My Rheumatologist who specializes in FMS/CFS says that if you show her any theory about the cause of FMS/CFS, you'll probably be correct for some patient who has it. She also feels that the infection "link" is usually secondary to dyregulation instead of causing it in most cases.
Look at this:
http://www.masmith.inspired.net.au/links/articles.htmCairo
This is the end of the thread.
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