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Re: Yes! Go to » KaraS

Posted by neuroman on September 27, 2005, at 11:30:47

In reply to Re: Yes! Go to » neuroman, posted by KaraS on September 26, 2005, at 14:03:44

Hi,

> I think the main problem is that they don't really know what it is yet so that complicates treatment. I also think that many different things are lumped into the same category and called CFS.

Exactly. I think it's easier for them to do this than actually have to do some detective work and find out what the problem really is.

> One result of my (or our?) illness may be the hypersensitive dopamine autoreceptors according to Dr. Goldstein. If that's the case, then I'm still fighting the disease on a daily basis.

That's the premise that I've decided to go with.

> How long have you had CFS? Is it intermittent or constant?

They started throwing the CFS/FMS diagnosis at me years ago. Frankly, I didn't appreciate it because it gives them an out. There are a million possible reasons why a person might have fatigue and/or pain. It's their job to find the cause, not just to through some catch-all label on it. Whatever I have is not intermittent. It's been a slow downward progression with steep drop offs after particularly stressful periods. More recently I've had doctors tell me it sounds like MS and I should be tested. Considering that I've been telling them I have an uncle with MS, you think they would have brought that up sooner instead of sticking me with the CFS/FMS label. Not that I think I have MS. It just helps to prove my point that they use the chronic fatigue label to keep from actually having to look for the real problem.

> Have any medications or antidepressants helped much with this?

I need dopamine...dopamine!!!

Paul


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poster:neuroman thread:558947
URL: http://www.dr-bob.org/babble/20050927/msgs/560185.html