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Dr. Bob is Robert Hsiung, MD,
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Posted by corafree on March 9, 2005, at 9:44:19
In reply to Decreasing Effexor - Very Slowly » Phillipa, posted by winddancer on March 6, 2005, at 21:36:54
Won't ever say 'had a nervous breakdown' in jest again.
My body simply crumbled, could barely walk and was slower than a turtle. Hyperventilated until could hardly breathe. Head fullness on top of head. Just plain 'broke' ... and I mean really broke!
Nothing in my life has ever been so frightening.
Stayed w/ daughter three days for food and company. All along, my mind was clear.
There were probably 10 incidents (one a 10yr relationship ended) which occured prior to this, but, like I said, was clear in mind and not at all suicidal. I was actually very proud of myself for having finally let go of a toxic relationship.
Got worse after 3rd day at daughters. I knew I needed doctors and nurses. Went in hospital here. Now am home from six day stay.
Some kind of separation of mind and body happened to me. Boy, our minds, our brains must be very, very strong.
I began titrating off Eff-XR @ hospital. From 225, to 150, to 75, to 37.5 currently. All this in six days at hospital.
The Effexor-XR withdrawal followed the breakdown and I thought 'if this is what can happen to me while on it, ... I've got to let it go.'
I take Valium now (instead of Xanax) since it is longer acting.
I take Seroquel now, instead of trazodone at bedtime, and can take little bits of Seroquel during the daytime if have panic attack.
I am also prescribed Trileptal 300mg 3x a day. This one, am questionable about what is my necessity for this?!
Anyway, all meds changed during this six day hospital stay.
Again, a 'zombie' feeling which I have, precipitated Effexor-XR.
I feel that either Seroquel or Trileptal are causing this 'zombie' feeling.
Anyone ever take these two meds, together, or alone, and have this 'zombie' feeling? Did it pass w/ time? Has anyone had success on Seroquel or Trileptal?
I feel pretty sure that the Seroquel is helping the Eff-XR withdrawal and my anxiety. Trileptal though, not sure.
May my dose be too high on Seroquel (30mg if needed for panic during day and 300mg for sleep) and Trileptal (300mg x2 a day)? I am 5'4" and weight 105. I do not metabolize well.
Any opinions? So appreciated.
I will cc this and post in withdawal; here somewhere.
best wishes all, cf
Posted by corafree on March 9, 2005, at 9:52:52
In reply to Re: Decreasing Effexor - Very Slowly, posted by corafree on March 9, 2005, at 9:44:19
To be clear, my prior post; the Effexor-XR withdrawal followed this 'breakdown.'
One of the many things which happened in the maybe month and a half prior to my 'shutdown', was a STOP W/ NO TITRATION of Klonopin; p-doc just wrote Xanax ... which not on now - now taking Valium. I should have self-advocated there.
Even in the hospital, when switched from Xanax to Valium, I had to continually bug the staff about titrating me. They weren't and it was awful. I finally convinced them to titrate it and was much better.
Boy, you really have to look out for yourself when hospitalized.
They tried give me a med that wasn't even mine. I requested that all my nurses (diff' shifts) speak the name of the med outloud before giving it to me.
Oh, lots of stories in that six day period!
I feel very badly for any people who slip through the crack because they are not able to pay very close attention to their treatment.
again, cf
Posted by Phillipa on March 9, 2005, at 14:18:19
In reply to Re: Decreasing Effexor - Very Slowly, posted by corafree on March 9, 2005, at 9:52:52
I'm really sorry to hear you're having such a rough time. Yes, being in the hospital is hard work. Besides having the wrong meds given to you, and no titrating, they are constantly changing generics so the pills look different. I know as I was a psych RN. Sometimes we left the pill in the packet so the pt could read the name of it before taking it because it was a different manufacturer and looked totally different. I didn't have any trouble going from klonopin to valium, which I am on now. I think it is a very good drug. I found that I have to pay to get the brandname though. The generics are not as strong. I did take trileptal once but only l50mg and didn't have any side effects from it. I think the seroquel may be making you feel like a zombie. I tried it in the hospital and it made me feel drunk. Valium is known for use in W/D from xanax, and alcholol. Fondly, Phillipa
Posted by corafree on March 9, 2005, at 15:05:46
In reply to Re: Decreasing Effexor - Very Slowly » corafree, posted by Phillipa on March 9, 2005, at 14:18:19
Hi all
Cannot find Medications listed on the Dr. Bob page.
Appreciate opinion re: Seroquel; may be causing 'zombieness'.
The P at hospital said Depakote and I cringed; said lithium and I cringed. Bad experiences years ago.
I've a friend who's manic bipolar; on Seroquel, but she's never a 'zombie.' Maybe, because she is manic...not sure.
Any alternative mood stabilizers anyone can suggest before see P tomorrow????I really, really need sleep. The 300mg Seroquel is for sleep (don't feel like 'zombie' when awaken, so maybe could increase that a bit, as been awakening TOO early), and then use the 25mg for anxiety/panic.
Philipa, you jogged my memory; remember refusing daytime 25mg Seroquel after a day of total drowsiness and missing smoke breaks and groups.
Yep, think I felt like a 'zombie' first day after started Seroquel, ... before starting Trileptal!
At home now, just took a noon Seroquel 25mg and went to lie down and rest.
May communicate to my P wish to increase sleep dose Seroquel a bit @ h.s. and continue 25mg for anxiety/panic/needed rest.
I'd have to finish a triathlon to go to sleep day or night w/o a med. Have been on a sleep aid many, many yrs.
Going to do some research on Trileptal to try understand the indications for usage.
It's great the way someone follows up your post and it helps you to recall things or think about things differently.
Sincerely cf
Posted by Phillipa on March 9, 2005, at 15:27:38
In reply to Re: Decreasing Effexor - Very Slowly » Phillipa, posted by corafree on March 9, 2005, at 15:05:46
You know you triggered my memory too. The pdoc had started me on trileptal to help mood and sleep he said. He was planning on going higher but that was when he became the "bad" pdoc and I stopped seeing him. I never looked it up as the dose was so small. Keep us Posted on what you find out I'd be curious. Fondly, Phillipa
Posted by corafree on March 9, 2005, at 16:30:03
In reply to Re: Decreasing Effexor - Very Slowly » corafree, posted by Phillipa on March 9, 2005, at 15:27:38
Phillipa (two ls) ... sure, will keep posted.
Mood and sleep ... hmmm, ... then why would you take it three times a day, I wonder.
I'll particularly check on the sleep part of it.
I would like a stable mood, but don't want to sleep my days away.
tks Phillipa, cf
Posted by Phillipa on March 9, 2005, at 16:51:57
In reply to Re: Decreasing Effexor - Very Slowly » Phillipa, posted by corafree on March 9, 2005, at 16:30:03
I forgot to say he only Rx'd l50mg at bedtime. Fondly, Phillipa
Posted by S. Bartel on March 9, 2005, at 23:31:10
In reply to Re: Decreasing Effexor - Very Slowly » corafree, posted by Phillipa on March 9, 2005, at 16:51:57
You may do better on sleep and anxiety after you have been off the effexor awhile. I was awake for days and my anxiety level went through the roof when I was going through withdrawls. Now I only take elavil to help me sleep and try to keep a regular sleep schedule. I exercise and eat healthy, staying off caffeine, sugar, and fats. Those things can all cause anxiety. I feel better than I have for years. I hope things get a lot better for you soon.
God Bless you. Sammi
Posted by corafree on March 9, 2005, at 23:50:06
In reply to Re: Decreasing Effexor - Very Slowly, CF, posted by S. Bartel on March 9, 2005, at 23:31:10
Sammi - When went from Eff-XR to Elavil, did you take any mood stabilizer or benzo? I thought of Elavil as an alternative.
The docs I saw @ hospital were feeling that I didn't need an AD at all; needed mood stabilization. One called what happened to me 'mood dysphoria.'
I look forward to sleeping better.
Still on 37.5 Eff-XR for a few days.
Having no real uncomfortable side effects; I hypothesize that may be because I started the mood stabilizers and valium prior to titration off Eff-XR.
Anyway, I feel good tonight. I am certainly thankful. God must be all around me. I have been praying for a time to come when I could stop Eff-XR.
I've enough damage to my emotions and body. The controversy over Eff-XR prompted my to pray for a way to let it go. Taking it had begun to bother me very much, and don't need anymore stress.
I think my prayers were heard. I feel like I may be moving forward finally. cf
Posted by S. Bartel on March 10, 2005, at 2:23:01
In reply to Re: Decreasing Effexor - Not Very Slowly, CF » S. Bartel, posted by corafree on March 9, 2005, at 23:50:06
I very slowly went off effexor. It took about 3 months and I still had withdrawls, but not as severe as some. It helped that I changed my way of eating and excercise before I went off. I finally feel normal again. Thank God.
Sammi
Posted by not2late4u on March 10, 2005, at 2:37:14
In reply to Re: Decreasing Effexor - Not Very Slowly, CF » S. Bartel, posted by corafree on March 9, 2005, at 23:50:06
HI CF, glad I decided to read the post instead of deleting this time. Wow, sounds like you had quite a time. I understand what you mean about being hospitalized, I had a tough time when I was admitted several years ago. Its a long story. I can tell you that I no longer feel like theres a huge magnet holding me to my bed and keeping me from getting up. I feel more energenic and laughing more heartily. I am back down to 1 Klonopin at night and am supplementing with some herbs/vitamins that my new pdoc has given me, he's so good. I actually feel a change in my moods and my husband and mom has noticed, in just a few days of having taken them and lowering the klonopin. If you have a chance, if you havent already please visit: intouch.org, alot of topics I really think you will get comfort from. Yes, I agree, God is with you and has heard your prayers. Keep being a wonderful advocate for yourself with those doctors, Im proud of you for that! Cant comment on the other drugs you mentioned, since I have no personal experience with them. God bless you, Renee
Posted by corafree on March 10, 2005, at 9:19:34
In reply to Re: Decreasing Effexor - Not Very Slowly, CF » corafree, posted by not2late4u on March 10, 2005, at 2:37:14
Hi Renee.
I jotted down website.
Yes, I've rec'd a 'miracle of sort' from God, I believe.
The adjusting to all new meds has frightened me this a.m. and I posted on psycho-babble. I maybe already said I feel somewhat of a 'zombie.'
I wouldn't be so frightened if I had a IRL person or persons available to help me get out and about to necessary appts.
My post is Seroquel-Trileptal-Valium Combo.
Good to hear from you, and also Sammi (did I get back to you?) ... cf
Posted by S. Bartel on March 10, 2005, at 22:31:16
In reply to Re: Decreasing Effexor - Not Very Slowly, CF, posted by corafree on March 10, 2005, at 9:19:34
Yes you did.
Thanks, Sammi
Posted by SLS on March 11, 2005, at 9:05:57
In reply to Re: Anyone had success on Effexor XR? YES!, posted by Germaine on March 6, 2005, at 20:05:26
Hi.
> So tomorrow, I will try 75mg and then take it every other day.
I think it is important to take Effexor every day in order to discontinue it with the least amount of withdrawal syndrome.
I advocate taking progressively smaller dosages three times a day.
You might be able to gain some added insight into drug discontinuation on the Withdrawal board. I do not think it is necessary to suffer.
- Scott
Posted by JaneB on March 11, 2005, at 12:00:06
In reply to Re: Decreasing Effexor - Very Slowly, CF, posted by S. Bartel on March 9, 2005, at 23:31:10
Now you take Elavil? What dose for sleep? Or does it also help anxiety/depression? I want to be like you and feel better than I have for years. You have inspired me. Blessings. Jane
> You may do better on sleep and anxiety after you have been off the effexor awhile. I was awake for days and my anxiety level went through the roof when I was going through withdrawls. Now I only take elavil to help me sleep and try to keep a regular sleep schedule. I exercise and eat healthy, staying off caffeine, sugar, and fats. Those things can all cause anxiety. I feel better than I have for years. I hope things get a lot better for you soon.
> God Bless you. Sammi
Posted by JaneB on March 11, 2005, at 12:04:37
In reply to Re: Decreasing Effexor - Very Slowly, CF, posted by S. Bartel on March 9, 2005, at 23:31:10
I meant to ask if you originally took Elavil with Effexor for sleep or if you switched to Elavil after getting off Effexor. thank you.
Jane> You may do better on sleep and anxiety after you have been off the effexor awhile. I was awake for days and my anxiety level went through the roof when I was going through withdrawls. Now I only take elavil to help me sleep and try to keep a regular sleep schedule. I exercise and eat healthy, staying off caffeine, sugar, and fats. Those things can all cause anxiety. I feel better than I have for years. I hope things get a lot better for you soon.
> God Bless you. Sammi
Posted by corafree on March 11, 2005, at 13:37:17
In reply to what I meant to ask » S. Bartel, posted by JaneB on March 11, 2005, at 12:04:37
Sammi and all:
I hope that I will be able to get more sleep the further away that I get from Eff-XR also.
Just took last Effexor-XR, 37.5mg, this a.m.
Have had total meds switch which began just over a week ago.
Even mix of 100mg trazodone and 100mg Seroquel last night really didn't give me a good night of sleep, as I awoke too early.
I had been prescribed 300mg Seroquel for sleep by a P in hospital.
My P outside hospital said 'too much Seroquel' when told him was feeling like a 'zombie', and suggested take mix of 100mg Seroquel and go back on 100mg trazodone (Desyrel). Hospital P had discontinued trazodone.
Problem is, trazodone (Desyrel) gives me nightmares of persecution, while the Seroquel did not.
Problem is, Seroquel (quetiapine) gives me 'zombie' feeling, while Trazodone did not.
Asked my P for Ambien or something like that and he said 'no'.
Anyone w/ suggestion appreciated.
Wish I could go w/o trazodone.
Seroquel 300mg for sleep made me such a 'zombie' on awakening and through the entire day. I wonder if I should have given it more than a few days.
It is difficult to give a med w/ such side effects time to work when are alone and have no one to help you w/ your responsibilies, etc., while you are sort of incapacitated.
best wishes, cf
Posted by Phillipa on March 11, 2005, at 15:50:12
In reply to Re: what I meant to ask » JaneB, posted by corafree on March 11, 2005, at 13:37:17
Keep the valium. It will definitely help your sleep. It has helped mine. Fondly, Phillipa
Posted by winddancer on March 11, 2005, at 16:10:41
In reply to Re: what I meant to ask » JaneB, posted by corafree on March 11, 2005, at 13:37:17
INteresting about others experience, i.e., sleep. I have been having trouble sleeping since I stopped taking the tranquilizers like Xanax and Klonapin. I won't go back on those if I can avoid it and I, too, asked my dr. about Ambien. She was very reluctant to prescribe it but after I pressed for reasons it seemed that she just wasn't as familiar with it as with the tranquilizers - I do hate that - she's so willing to prescribe very addictive tranq's over a sleep aid, when it's mainly insomnia that is the core of the problem. She finally gave me a prescription for the Ambien and I've used it a few nights to get caught up on sleep a bit and what I like is that the next day I don't feel groggy at all and don't feel that I'll require more than that. I also talked to a friend who has taken Ambien for years with no ill effects and doesn't feel she's needed more and more as you would with an addictive drug. I'm waiting another week before I reduce the Effexor 75mg to something lower. I'm so sick of all of it and the tingly feeling and cold feet and food not tasting good and the HBP and then taking meds for that which have their own side-effects. Urggg. I want to feel like dancing again.
Winddancer
Posted by winddancer on March 11, 2005, at 16:32:54
In reply to Re: what I meant to ask » corafree, posted by Phillipa on March 11, 2005, at 15:50:12
Is Valium addictive?? Any downside??
Posted by Phillipa on March 11, 2005, at 17:02:57
In reply to Re: what I meant to ask » Phillipa, posted by winddancer on March 11, 2005, at 16:32:54
Every drug is addictive if you abuse it. They told us the AD's weren't addictive, and now look at the trouble people are in? I feel, and this just my opinion, that even though it is a benzo, they have been given a bad name. If you take valium to relieve symptoms of anxiety, and aren't the addictive type [alchol, illegal drugs], you have nothing to worry about. you will not abuse it and take more than you need. When discontinuing it, it's like any other drug taper down. The good part is the long half-life, so you don't experience a lot of side effects. I guess that's why a lot of Posters use prozac to get off Effexor, the long half-life. I hope this has been of help to you. Fondly, Phillipa
Posted by corafree on March 11, 2005, at 18:42:00
In reply to Re: what I meant to ask » corafree, posted by winddancer on March 11, 2005, at 16:10:41
Glad you got Ambien! Are you a professional dancer or do you just love dancin' as I do? I called my provider today and told them the trazodone and Seroquel weren't working well for sleep, and asked that my P rethink Ambien. I'll keep after them about this tho', cf
Posted by S. Bartel on March 11, 2005, at 20:05:11
In reply to sleep med w/Effexor? » S. Bartel, posted by JaneB on March 11, 2005, at 12:00:06
> Now you take Elavil? What dose for sleep? Or does it also help anxiety/depression? I want to be like you and feel better than I have for years. You have inspired me. Blessings. Jane
>
> > You may do better on sleep and anxiety after you have been off the effexor awhile. I was awake for days and my anxiety level went through the roof when I was going through withdrawls. Now I only take elavil to help me sleep and try to keep a regular sleep schedule. I exercise and eat healthy, staying off caffeine, sugar, and fats. Those things can all cause anxiety. I feel better than I have for years. I hope things get a lot better for you soon.
> > God Bless you. Sammi
>
>
I only take 50mg. I don't take anything for anxiety. I have learned to do relaxation therapy with tapes. It has worked very well for me. I still have anxiety, but I'm able to manage it without medication. I don't have to use the elavil everynight. I have been off effexor for 4 months now. I have taken myself off all meds except the elavil once in a while. I have more energy and I'm not tired all the time.
Blessings, Sammi
Posted by S. Bartel on March 11, 2005, at 20:27:58
In reply to what I meant to ask » S. Bartel, posted by JaneB on March 11, 2005, at 12:04:37
No, I didn't take elavil until I went off effexor.
I don't take it everynight now. I have learned to use relaxation tapes and it's working very well. I have also taken myself off all other meds except elavil once in awhile. The relaxation methods work very well when I have anxiety too.
Sammi
Posted by winddancer on March 12, 2005, at 2:21:19
In reply to Re: what I meant to ask » winddancer, posted by corafree on March 11, 2005, at 18:42:00
No, I'm just a social dancer and just rediscovered the joy of it after many years of not dancing. I'm single now but have taken swing lessons and go to dances occasionally and do a free form social dance. I really feel that as I finally started seeing a little relief from the depression and anxiety, and I started dancing that the dancing was the best and quickest therapy and I started enjoying life again, but as I went off some of the drugs, I started having lots of body aches and couldn't sleep and was tired all the time, I sometimes hurt too much to dance. I'm doing physical therapy which is helping get my body back in shape so I don't hurt as much and I'm seeing an acupuncturist/Chinese medicine herbalist to help with sleeping, constipation, headaches, and some body ache and am starting to feel like dancing again.
I'm convinced that moving to music is some of the best therapy toward uplifting a person's mood. I recently saw an announcement of a physical therapist who using dance movements to fascilitate healing. I'm off to take an Ambien and get some sleep tonight!!
Winddancer
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