Psycho-Babble Medication Thread 46197

Shown: posts 1 to 23 of 23. This is the beginning of the thread.

 

Risperdal or Seroquel? Help Please?

Posted by Greg on October 12, 2000, at 8:52:08

I see a new pdoc to have a meds evaluation done this afternoon. I have Bipolar II, Manic Depression and Acute Anxiety. My biggest problem right now is the innability to shut off the "voices" in my head (most of which I believe are my own). Makes it very hard to concentrate and get restful sleep. I've talked to people about Seroquel and Risperdal and have heard bad and good things about both.

If anyone has experience and/or opinions about either or both of these meds, I appreciate hearing about it. Also if you have a suggestion about an alternative to either one, that would be helpful as well. I would like to arm myself with as much info as possible before seeing the doc.

As always, I appreciate any help and input you can give me.

Greg

 

Re: Risperdal or Seroquel? Help Please?

Posted by Cindy W on October 12, 2000, at 9:29:54

In reply to Risperdal or Seroquel? Help Please?, posted by Greg on October 12, 2000, at 8:52:08

> I see a new pdoc to have a meds evaluation done this afternoon. I have Bipolar II, Manic Depression and Acute Anxiety. My biggest problem right now is the innability to shut off the "voices" in my head (most of which I believe are my own). Makes it very hard to concentrate and get restful sleep. I've talked to people about Seroquel and Risperdal and have heard bad and good things about both.
>
> If anyone has experience and/or opinions about either or both of these meds, I appreciate hearing about it. Also if you have a suggestion about an alternative to either one, that would be helpful as well. I would like to arm myself with as much info as possible before seeing the doc.
>
> As always, I appreciate any help and input you can give me.
>
> Greg

Greg, I've never taken Risperdal, but I take Seroquel (just tried l50 mg/night last night). It calms my mind and also REALLY helps me to sleep well. I cannot stay awake after I take it, so doubt I could ever take it in the morning. Hope things start working out for you. Don't know what you mean by "voices," but most people have "self-talk" and that is normal. Psychotic type voices tend to be critical or urge you to do bad things, and often (from what I've heard) seem like they are outside your head and are somebody else talking. There is a BIG difference between the two kinds of "voices." I suggest you talk to your pdoc about Seroquel before trying Risperdal, but that's only one vote. The Seroquel hasn't affected my concentration and has really helped my sleep. --Cindy W

 

Re: Risperdal or Seroquel? Help Please? » Cindy W

Posted by Greg on October 12, 2000, at 10:13:43

In reply to Re: Risperdal or Seroquel? Help Please?, posted by Cindy W on October 12, 2000, at 9:29:54

Morning Cindy!

Maybe I can clarify a bit... I do periodically have voices that I know are not my own and they are telling me to do things, strange things. But most mostly it is my own thoughts that I'm hearing. I'm trying to process 15-20 thoughts at the same time. It gets so bad at times that I can't define one thought from another. I just can't seem to turn it off. Does this make any sense?

I hope you are doing well and feeling better. I haven't heard from you in awhile.

Hugs,
Greg

> > I see a new pdoc to have a meds evaluation done this afternoon. I have Bipolar II, Manic Depression and Acute Anxiety. My biggest problem right now is the innability to shut off the "voices" in my head (most of which I believe are my own). Makes it very hard to concentrate and get restful sleep. I've talked to people about Seroquel and Risperdal and have heard bad and good things about both.
> >
> > If anyone has experience and/or opinions about either or both of these meds, I appreciate hearing about it. Also if you have a suggestion about an alternative to either one, that would be helpful as well. I would like to arm myself with as much info as possible before seeing the doc.
> >
> > As always, I appreciate any help and input you can give me.
> >
> > Greg
>
> Greg, I've never taken Risperdal, but I take Seroquel (just tried l50 mg/night last night). It calms my mind and also REALLY helps me to sleep well. I cannot stay awake after I take it, so doubt I could ever take it in the morning. Hope things start working out for you. Don't know what you mean by "voices," but most people have "self-talk" and that is normal. Psychotic type voices tend to be critical or urge you to do bad things, and often (from what I've heard) seem like they are outside your head and are somebody else talking. There is a BIG difference between the two kinds of "voices." I suggest you talk to your pdoc about Seroquel before trying Risperdal, but that's only one vote. The Seroquel hasn't affected my concentration and has really helped my sleep. --Cindy W

 

Re: Risperdal or Seroquel? Help Please?

Posted by SLS on October 12, 2000, at 12:03:15

In reply to Re: Risperdal or Seroquel? Help Please?, posted by Cindy W on October 12, 2000, at 9:29:54

> Don't know what you mean by "voices," but most people have "self-talk" and that is normal. Psychotic type voices tend to be critical or urge you to do bad things, and often (from what I've heard) seem like they are outside your head and are somebody else talking.


This was a helpful description.

I know of someone with schizophrenia who doesn't want to be medicated to the point of making the voices he hears disappear. They tell him jokes all day long. He is always smiling and snickering. He doesn't want to be without them.

No joke.


- Scott

 

Re: Risperdal or Seroquel? Help Please?

Posted by Brandon on October 12, 2000, at 15:06:16

In reply to Risperdal or Seroquel? Help Please?, posted by Greg on October 12, 2000, at 8:52:08

Hi Greg,

My humble suggestion would be to go to your local library and buy the book "A Remarkable Medicine Has Been Overlooked". It has helped myself and millions of others with the exact symptoms you have described. Before Dilantin I had at least 10 to 15 voices at a time swimming in my head and it most of them were very distracting and related to fear and anxiety. I'm not saying that Dilantin is a sure bet for you but it is definitely worth a try. Also if you have tried other anticonvulsants in the past with little help dont be to quick to write off this one as it seems to be unique in it's actions and may explain it's ability to help with symptoms that the others cannot. Also check out this site.
www.remarkablemedicine.com

Wishing you good luck and good health.

 

Re: Risperdal or Seroquel? Help Please?

Posted by shar on October 12, 2000, at 21:29:32

In reply to Re: Risperdal or Seroquel? Help Please? » Cindy W, posted by Greg on October 12, 2000, at 10:13:43

Greg,
I sure will be wishing you all the best on this visit. Hope you will find a good combo.

I have heard good things about Seroquel and that side effects are usually not a big problem, and am looking into it also (doing some research) for myself.

Fingers crossed,
Your IC,
Shar

 

Re: Risperdal or Seroquel? Help Please? » Greg

Posted by Cam W. on October 13, 2000, at 7:38:00

In reply to Risperdal or Seroquel? Help Please?, posted by Greg on October 12, 2000, at 8:52:08

Gerg - Seroquel is sort of a different beast. At a conference I attended, Dr. Bill Wirshing from Berkley said that Clozaril™ (clozapine) was highly toxic and highly efficacious and that Seroquel™ (quetiapine) was incredibly safe, with few side effects; but it didn't work.

I had thought this for quite a while, but experience has shown that Seroquel does work very well in a sub-group of people with bipolar disorder. For those for who it does work, it works like a damn. Dr. Roy Chengappa from the U of Pittsburgh has shown this. Some of the people are clear headed within a week (I've seen some dramatic improvements). In some of these people though, the effect seems to wane in 3 or 4 months, but many have been maintained for a couple of years.

Just judging by side effect profiles, I would try the Seroquel first. Risperdal is very effective in many people, but the risk of EPS and hyperprolactemia (leaky boobs, even in you) would stop me from using it first. These side effects are not seen at doses below 4mg per day very often, though.

Hope this helps - Cam

P.S. - Greg, I will be posting in ASH tonight after 9pm (your time). I will give more info, then.

 

Re: Risperdal or Seroquel? Help Please? » Cam W.

Posted by SLS on October 13, 2000, at 8:10:45

In reply to Re: Risperdal or Seroquel? Help Please? » Greg, posted by Cam W. on October 13, 2000, at 7:38:00

Hi Cam.


What's ASH?

Several weeks ago, I tried adding Risperdal 1mg h.s. to the Parnate + desipramine + Lamictal combination I have been taking for bipolar depression. For the first few mornings I felt a bit sedated and in some ways more depressed - depressed mood. However, this disappeared within a few days. After a week, I began to experience weakness in my legs when I would climb stairs. Within a few more days, I developed an irregular gait while walking with a tendency not to dorsi-flex my feet as I stepped forward. I had to walk very deliberately not to trip over my toes.

Fearing that this was some sort of EPS, I stopped taking Risperdal. The effects resolved within 36 hours. It is hard to day, but it might have been helping a bit. My doctor didn't think the effects were EPS, but he didn't know exactly what they were. He thought it might be a sort of unrecognized sedation. He asked me if I would try Risperdal in the future should he ask me to. I said yes.

Any thoughts?

Knowing that the purpose of using Risperdal is to foster a robust antidepressant response, what has been your experience in seeing this happen? Is 0.5mg ever used for this purpose? What about Zyprexa?

Thanks.


- Scott

 

Re: Med Update - Cam and all

Posted by Greg on October 13, 2000, at 8:30:36

In reply to Re: Risperdal or Seroquel? Help Please? » Greg, posted by Cam W. on October 13, 2000, at 7:38:00

All,

I really appreciate everyone's help with this. It gave me a lot to talk over with the new pdoc.

After reviewing my history the new pdoc says that I definitely do have BP II. He gave me the option of three meds, Seroquel, Risperdal or Zyprexa. He said that the Zy has the lowest instance of negative side-effects. I told him to make the call as he is the expert. So, I've dropped all other meds except for a max of 1 mg Xanax per day as needed, and the 10mgs of Ambien to help me sleep. In a couple of days I'll start adding Neurontin in two day increments, 300 mgs at a time until I reach 900 mgs per day. He said that I'll probably find pretty quickly that the Ambien won't be needed as the Zy and the Neu will help me sleep much better. He says if the Zy doesn't do the trick, we'll try Seroquel next. I'll also start titrating off the Xanax in about a month, hopefully.

Cam,

If you post to Haven, I can read it but may not be able to respond. To explain what's going on, read my post below to Noa (NOA-Please Read)and it will explain what's happening. It's really good to hear from you and I hope everything is OK. Please say hi to the family for me!

Greg

> Gerg - Seroquel is sort of a different beast. At a conference I attended, Dr. Bill Wirshing from Berkley said that Clozaril™ (clozapine) was highly toxic and highly efficacious and that Seroquel™ (quetiapine) was incredibly safe, with few side effects; but it didn't work.
>
> I had thought this for quite a while, but experience has shown that Seroquel does work very well in a sub-group of people with bipolar disorder. For those for who it does work, it works like a damn. Dr. Roy Chengappa from the U of Pittsburgh has shown this. Some of the people are clear headed within a week (I've seen some dramatic improvements). In some of these people though, the effect seems to wane in 3 or 4 months, but many have been maintained for a couple of years.
>
> Just judging by side effect profiles, I would try the Seroquel first. Risperdal is very effective in many people, but the risk of EPS and hyperprolactemia (leaky boobs, even in you) would stop me from using it first. These side effects are not seen at doses below 4mg per day very often, though.
>
> Hope this helps - Cam
>
> P.S. - Greg, I will be posting in ASH tonight after 9pm (your time). I will give more info, then.

 

Re: Med Update - Cam and all » Greg

Posted by Cindy W on October 13, 2000, at 10:01:51

In reply to Re: Med Update - Cam and all, posted by Greg on October 13, 2000, at 8:30:36

> All,
>
> I really appreciate everyone's help with this. It gave me a lot to talk over with the new pdoc.
>
> After reviewing my history the new pdoc says that I definitely do have BP II. He gave me the option of three meds, Seroquel, Risperdal or Zyprexa. He said that the Zy has the lowest instance of negative side-effects. I told him to make the call as he is the expert. So, I've dropped all other meds except for a max of 1 mg Xanax per day as needed, and the 10mgs of Ambien to help me sleep. In a couple of days I'll start adding Neurontin in two day increments, 300 mgs at a time until I reach 900 mgs per day. He said that I'll probably find pretty quickly that the Ambien won't be needed as the Zy and the Neu will help me sleep much better. He says if the Zy doesn't do the trick, we'll try Seroquel next. I'll also start titrating off the Xanax in about a month, hopefully.
>
> Cam,
>
> If you post to Haven, I can read it but may not be able to respond. To explain what's going on, read my post below to Noa (NOA-Please Read)and it will explain what's happening. It's really good to hear from you and I hope everything is OK. Please say hi to the family for me!
>
> Greg
>
> > Gerg - Seroquel is sort of a different beast. At a conference I attended, Dr. Bill Wirshing from Berkley said that Clozaril™ (clozapine) was highly toxic and highly efficacious and that Seroquel™ (quetiapine) was incredibly safe, with few side effects; but it didn't work.
> >
> > I had thought this for quite a while, but experience has shown that Seroquel does work very well in a sub-group of people with bipolar disorder. For those for who it does work, it works like a damn. Dr. Roy Chengappa from the U of Pittsburgh has shown this. Some of the people are clear headed within a week (I've seen some dramatic improvements). In some of these people though, the effect seems to wane in 3 or 4 months, but many have been maintained for a couple of years.
> >
> > Just judging by side effect profiles, I would try the Seroquel first. Risperdal is very effective in many people, but the risk of EPS and hyperprolactemia (leaky boobs, even in you) would stop me from using it first. These side effects are not seen at doses below 4mg per day very often, though.
> >
> > Hope this helps - Cam
> >
> > P.S. - Greg, I will be posting in ASH tonight after 9pm (your time). I will give more info, then.

Greg, hope the new combo works well for you! Saw your note to Noa on Psychosocial Babble. Have checked ASH periodically but have seen very few new posts the past few days (and didn't make any). Don't know what's going on yet. Will try to post there and let you know.--Cindy W

 

Re: Med Update - Cam and all

Posted by Noa on October 13, 2000, at 14:36:31

In reply to Re: Med Update - Cam and all » Greg, posted by Cindy W on October 13, 2000, at 10:01:51

Greg, I also want to add my wishes that this combo will help.
A good friend of mine has benefitted a lot from neurontin.
Keep us posted.

 

Re: Risperdal or Seroquel? Help Please?

Posted by Cam W. on October 13, 2000, at 23:52:39

In reply to Re: Risperdal or Seroquel? Help Please? » Cam W., posted by SLS on October 13, 2000, at 8:10:45

Scott - ASH is "A Safe Haven" in egroups. It is moderated by Greg. It's a chatty place where we blow off steam.

As for your meds; if you would react like everyone else does to medication, we wouldn't have this problem, now would we ;^)

Arthralgia (joint pain), hypokinesia (which can be accompanied by a slight paralysis), and fatigue are side effects of Risperdal. Maybe EPS, but doesn't sound like it. Could the difficulty walking be due to vision problems (trouble with accomadation) or is it muscular? These are really all just shots in the dark. I don't know what that reaction was.

A rechallenge of Risperdal in the future (if necessary) is probably a good option. A lower dose (0.25mg to 0.5mg) does work in many people. It might be worth a shot.

Hope you can get something from this. - Cam

 

Re: Med Update - I'll post here » Greg

Posted by Cam W. on October 14, 2000, at 0:00:27

In reply to Re: Med Update - Cam and all, posted by Greg on October 13, 2000, at 8:30:36

Greg - Sounds like your doc has a handle on this. Remember, the better Zyprexa works, the more weight that seems to be gained. This occurs especially in the first 8 months after stabilization, after that the weight gain tapers off. Sorry pal, no Doritos or boxes of Froot Loops in the house. Big Macs need to become luxury a item (you can't "afford" to gain too much weight.

Buy bags of those little-genetically altered carrots and bags of premixed salads (fill up on fiber). You need to become a rabbit for the next 8 months. (mmmm....melba toast).

Good luck dude! - Cam

 

ASH----- » SLS

Posted by shar on October 14, 2000, at 1:12:00

In reply to Re: Risperdal or Seroquel? Help Please? » Cam W., posted by SLS on October 13, 2000, at 8:10:45

ASH stands for A Safe Haven. It is a board on e-groups that Greg developed as an alternate posting site when PB was in an uproar. The point of ASH is to be slightly less formal, more safe, and open to all sorts of conversations. Civility is a major factor, and uncivil people can be unsubscribed by the moderator (Greg the Havenmaster).I think this has happened once.

On Sat. night there is a standard chat (8 pm CST in Texas). You can go to www.e-groups.com to see about signing up. I may not be giving you all the correct info, so don't hesitate to e-mail Greg if you are interested in joining. You would certainly be welcome.

Shar

 

Re: Risperdal or Seroquel? Help Please?

Posted by Didier on October 22, 2000, at 15:15:23

In reply to Risperdal or Seroquel? Help Please?, posted by Greg on October 12, 2000, at 8:52:08

> I see a new pdoc to have a meds evaluation done this afternoon. I have Bipolar II, Manic Depression and Acute Anxiety. My biggest problem right now is the innability to shut off the "voices" in my head (most of which I believe are my own). Makes it very hard to concentrate and get restful sleep. I've talked to people about Seroquel and Risperdal and have heard bad and good things about both.
>
> If anyone has experience and/or opinions about either or both of these meds, I appreciate hearing about it. Also if you have a suggestion about an alternative to either one, that would be helpful as well. I would like to arm myself with as much info as possible before seeing the doc.
>
> As always, I appreciate any help and input you can give me.
>
> Greg

Risperdal was forced on me in a mental facility.

I did not want to be classified as a schizophrenic. The pschiatrist did not exactly say that I was schizophrenic but he did say that he guessed I was "off-balanced" all my life and that this is how I had damaged my central nervous system. So, he started me on Risperdal. He asked me, Greg, if I had heard voices, but I do not. I can see, now, that you are just trying to survive in the world just as I am and want the voices to stop just as I want my own symptoms to stop.

I thought that the Risperdal had given me productive days working and I seemed to be more "focused". That is the descriptive word the nurses gave when they handed me the pills.

But as the days went by, I noticed that I drooled all the time and found myself swallowing all day to maintain civility. It was difficult to control.

I dreamed with more imagination. This was okay.

I also, was hungry all the time and when I ate, there was no satisfaction from eating. I would chew and swallow but there was no gratification. This was not okay.

I had water retention "big time." My body was huge. I could feel the pads on my feet. My ankles were three times as big as well as my breasts. At first, I thought the breasts were a good thing. But eventually they weren't as there was no more room for them to expand and so, even this was not a good thing.

Yes, my muscles ached at first. But for some reason I liked it. I felt alive. The doctor called it muscle stiffness but I grew up calling what I had experienced as muscle soreness. The muscle soreness went away after a week. I think that the muscle soreness is related to the water retention. Having experienced water retention because of the menstrual cycle, the muscle soreness is very similar. But this information will not help you, will it?

I was only on the drug for three weeks and realized it was not for me because of the water retention, drooling, and loss of satisfaction from eating.

I noticed I felt better mentally after not taking it, so it does effect how one thinks. I say felt better because I was once again the Didier that I had come to love before taking Risperdal.

I hope this helps.

I had written another message to you earlier but I think it was lost as things sometimes happen on the Internet.


 

Re: Risperdal or Seroquel? Help Please?

Posted by chdurie2 on October 22, 2000, at 20:02:22

In reply to Re: Risperdal or Seroquel? Help Please?, posted by Didier on October 22, 2000, at 15:15:23

> > I see a new pdoc to have a meds evaluation done this afternoon. I have Bipolar II, Manic Depression and Acute Anxiety. My biggest problem right now is the innability to shut off the "voices" in my head (most of which I believe are my own). Makes it very hard to concentrate and get restful sleep. I've talked to people about Seroquel and Risperdal and have heard bad and good things about both.
> >
> > If anyone has experience and/or opinions about either or both of these meds, I appreciate hearing about it. Also if you have a suggestion about an alternative to either one, that would be helpful as well. I would like to arm myself with as much info as possible before seeing the doc.
> >
> > As always, I appreciate any help and input you can give me.
> >
> > Greg
>
>
>
> Risperdal was forced on me in a mental facility.
>
> I did not want to be classified as a schizophrenic. The pschiatrist did not exactly say that I was schizophrenic but he did say that he guessed I was "off-balanced" all my life and that this is how I had damaged my central nervous system. So, he started me on Risperdal. He asked me, Greg, if I had heard voices, but I do not. I can see, now, that you are just trying to survive in the world just as I am and want the voices to stop just as I want my own symptoms to stop.
>
> I thought that the Risperdal had given me productive days working and I seemed to be more "focused". That is the descriptive word the nurses gave when they handed me the pills.
>
> But as the days went by, I noticed that I drooled all the time and found myself swallowing all day to maintain civility. It was difficult to control.
>
> I dreamed with more imagination. This was okay.
>
> I also, was hungry all the time and when I ate, there was no satisfaction from eating. I would chew and swallow but there was no gratification. This was not okay.
>
> I had water retention "big time." My body was huge. I could feel the pads on my feet. My ankles were three times as big as well as my breasts. At first, I thought the breasts were a good thing. But eventually they weren't as there was no more room for them to expand and so, even this was not a good thing.
>
> Yes, my muscles ached at first. But for some reason I liked it. I felt alive. The doctor called it muscle stiffness but I grew up calling what I had experienced as muscle soreness. The muscle soreness went away after a week. I think that the muscle soreness is related to the water retention. Having experienced water retention because of the menstrual cycle, the muscle soreness is very similar. But this information will not help you, will it?
>
> I was only on the drug for three weeks and realized it was not for me because of the water retention, drooling, and loss of satisfaction from eating.
>
> I noticed I felt better mentally after not taking it, so it does effect how one thinks. I say felt better because I was once again the Didier that I had come to love before taking Risperdal.
>
> I hope this helps.
>
> I had written another message to you earlier but I think it was lost as things sometimes happen on the Internet.

Greg:

You may be unique, but what somewhat else said about rabbit food was so-o--o-o true for me! I gained 10 pounds in two weeks on zyprexa on a five foot tall body, and it's still on me, even though i stopped zy.

zy was the best sleep med i ever had til my p-doc took me off after the weight gain, and put me on seroquel. now seroquel (50-75 mgs) is the best sleep med i've ever had, and no side effects. like cindy, the effect is immediate zonko-land. if i'm really insomniac, i add .5 to 1.0 mg of klonopin. i also take 12.5 to 25 mg in a.m. if i'm really high-wired with anxiety, and it gives me focus. if i take 25 in a.m. and it makes me tired, i just drink a cup of my knock-out cappaccino with extra caffeine.

if you find you're gaining weight, ask your p-doc to switch you to seroquel, cuz mine, like other people here, says the weight-gain problem only gets worse with time.

your friend from the other board (no sarcasm),

caroline h.

 

Re: Risperdal or Seroquel? And T.Diskinesia

Posted by Chloe on October 24, 2000, at 17:59:24

In reply to Re: Risperdal or Seroquel? Help Please?, posted by chdurie2 on October 22, 2000, at 20:02:22

I developed permanent "tongue movements" from years of being on the antipsychotic Mellaril. Fortunately I was able to discontinue the med before I had full blown Tardive diskinesia, but I still after several years without the med have bothersome tongue movements in my mouth.

My question is, does anyone experience T.D. symptoms on these "new" antipsychotics, like Risperidal or Seroquel? I struggle daily without the use of this class of drug. But have refused to go back on any, even the newer ones for fear of a permanent disfiguring side effect. Does anyone with mild t.d. use these new meds without exacerbation of the tongue wag?
Any information would help.
Thanks
Chloe

 

Re: Risperdal or Seroquel? And T.Diskinesia » Chloe

Posted by chdurie2 on October 24, 2000, at 19:01:19

In reply to Re: Risperdal or Seroquel? And T.Diskinesia, posted by Chloe on October 24, 2000, at 17:59:24

> I developed permanent "tongue movements" from years of being on the antipsychotic Mellaril. Fortunately I was able to discontinue the med before I had full blown Tardive diskinesia, but I still after several years without the med have bothersome tongue movements in my mouth.
>
> My question is, does anyone experience T.D. symptoms on these "new" antipsychotics, like Risperidal or Seroquel? I struggle daily without the use of this class of drug. But have refused to go back on any, even the newer ones for fear of a permanent disfiguring side effect. Does anyone with mild t.d. use these new meds without exacerbation of the tongue wag?
> Any information would help.
> Thanks
> Chloe

Chloe-seroquel is without side effects, or any such are really minor. a cousin of zyprexa, it's much better cuz of zyprexa's nasty habit of putting on the pounds (try 10 pounds in 2 weeks for me.) but i've never heard of seroquel having any t-diskinesia-type effects. do a search on babble or psychopharm tips to be sure.
caroline h.

 

Chloe And T.Diskinesia

Posted by Kaarina on October 25, 2000, at 17:47:15

In reply to Re: Risperdal or Seroquel? And T.Diskinesia » Chloe, posted by chdurie2 on October 24, 2000, at 19:01:19

Chloe

My father has severe TD, with leg and arm movements also. He chokes often because of the TD. He feels that ativan helps with the TD.

I feel the TD is more serious than just a cosmetic issue.

PS He also has improvement when he doesn't smoke. Do you smoke?

 

Re: Tardive Diskinesia

Posted by Chloe on October 25, 2000, at 18:31:44

In reply to Chloe And T.Diskinesia, posted by Kaarina on October 25, 2000, at 17:47:15

> Chloe
>
> My father has severe TD, with leg and arm movements also. He chokes often because of the TD. He feels that ativan helps with the TD.
>
> I feel the TD is more serious than just a cosmetic issue.
>
> PS He also has improvement when he doesn't smoke. Do you smoke?

No I don't smoke or drink. But I do take 1600 IUs of vitamin E (suggested by my pdoc) which I think helps. It's no miracle cure, but it definitely notice when I forget to take it. The T.D. gets worse.
C

 

Vitamin E?

Posted by Kaarina on October 26, 2000, at 7:37:25

In reply to Re: Tardive Diskinesia, posted by Chloe on October 25, 2000, at 18:31:44

Chloe

Do you divide the dose up of the vitamin E over the day or take it once a day? My dad takes 800 at night, I'm going to try to get him to add the other 800 in the morning.

Thanks

 

Re: Vitamin E?

Posted by Chloe on October 26, 2000, at 8:55:16

In reply to Vitamin E?, posted by Kaarina on October 26, 2000, at 7:37:25

> Chloe
>
> Do you divide the dose up of the vitamin E over the day or take it once a day? My dad takes 800 at night, I'm going to try to get him to add the other 800 in the morning.
>
> Thanks

Kaarina,

I take 800 in the am and 800 at night. I hope a little more helps him.
C

 

hey cam

Posted by laural on October 26, 2000, at 14:55:16

In reply to Re: Med Update - Cam and all, posted by Greg on October 13, 2000, at 8:30:36

i know what you mean a out the different kinds of voices--the first are obvious, the ones where others outside of your head are saying things. the others are your thoughts, but your thoughts are no longer linear. instead they come as a solid block of information and it may be many voices (i talk to myself in my head) but in some way they all relate, although its definitely NOT obvious. the only way i noticed that they did form a kind of mosaic was when i re-read journals and i could sort of pick out the main idea. with so many different paths going in the mind, my brain would often freeze up, much like an overused computer and i would completely forget what i was saying, or be unable to finish the sentence because i couldn't figure out what word to use. it was fun to write poems this way, although they needed a lot of revision for others to understand. but you know, listening to a schizophrenic talking "alphabet soup" you can actually follow the gyst if you learn how to make multiple broad leaps from phrase to phrase. anyway, before i was diagnosed, i somehow tuned out these my voices and began to think in pictures-it wasn't such a headache! and when someone would ask me what i was thinking i would have absolutely no idea, although i may have been lost in thought for many minutes. i was known in high school as the girl who stared off into space. the only way to learn what i was thinking and even be feeling would be to write and from there i could tell if i had had a good or bad day. when i went on anti-psychotics i began to make complete coherant sentences and a lot of other stuff went away too. i could actually write a logical essay complete with examples and everything. : ) these days, after a few months off of resperidol (prolactin levels and symptoms in remission) i think i'm beginning to relapse. . .not too bad but am starting to look to see where they're hiding the cameras again : )

anyway, wanted to say that i've never heard of serqueral or whatever, resperidol worked well besides the lactation (how embarrassing it was when i was dating!) and zyprexa made me drool and other stuff but i don't really remember that far back--the last five years of my life all blend together. i know you probably already know about meds and have decided by now, but just wanted to connect--i haven't been able to talk to many people like myself: bipolar and schizo-affective. there are other things wrong with me that no one has addressed yet even--like my eating disorder and my picking and hair pulling and (not extreme) and in my worst--self hurt. of course i havn't read the archives yet, um, i'll stop now. if you could direct me to specific posts in the archives (or anybody) that'd be swell. laural


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