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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 107 to 131 of 182. Go back in thread:
Posted by qbsbrown on April 3, 2010, at 19:05:13
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 19:00:38
Last winter, i was even taking maybe up to 2400mgs trileptl, the max, along with zyprexa, to slow me down to do a monkeys job. But those drugs, make me see things oddly and weirdly, in a depressive existential way, that is tough to explain.
But hey, i was taking 3mg ativan at night for sleep, maybe the racing thoughts was just from interdose wd. As when i was coming off of them, and down to 600mgs trileptal, and 30mgs valium, i got the racing thoughts/depression/irritability only after my hypomanic morning of 300mgs trileptal.
Posted by ed_uk2010 on April 3, 2010, at 19:12:20
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 19:05:13
Do you believe that Trileptal is causing nausea and headaches? Did you get these symptoms before when you were on the high dose?
Posted by qbsbrown on April 3, 2010, at 19:18:25
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 19:12:20
> Do you believe that Trileptal is causing nausea and headaches? Did you get these symptoms before when you were on the high dose?
>
>If I had to guess, I do think it's trileptal that is making me physically ill. I could be wrong, it could be the benzo.
Last year, I do not remember the bad physical illness from trileptal at high doses.
In low doses, when added to my taper in china 3-4 years ago, i do remember bad headaches and naseaua.
Brian
Posted by qbsbrown on April 3, 2010, at 19:40:19
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 19:18:25
PS- Pre ECT, and pre going back on benzo and trileptal, i was on max dose of neurontin, and it did absolutely nothing for the psychosis. Granted, in the past, I found a HUGE difference between lyrica and neurontin.
I wonder if trileptal needs to be dropped if it's making me couch bound ill in the afternoon, or if i hang on to it, because it may help the taper, and helping some other things.
Choices
Posted by ed_uk2010 on April 3, 2010, at 19:45:22
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 19:40:19
> PS- Pre ECT, and pre going back on benzo and trileptal, i was on max dose of neurontin, and it did absolutely nothing for the psychosis. Granted, in the past, I found a HUGE difference between lyrica and neurontin.
>
> I wonder if trileptal needs to be dropped if it's making me couch bound ill in the afternoon, or if i hang on to it, because it may help the taper, and helping some other things.
>
> ChoicesDifficult choices. You could try reducing the dose to 150mg instead of 300mg to see whether it affects the nausea. You really need to sort the dose of Trileptal out before you start tapering diazepam.
Posted by qbsbrown on April 3, 2010, at 19:55:26
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 19:45:22
> > PS- Pre ECT, and pre going back on benzo and trileptal, i was on max dose of neurontin, and it did absolutely nothing for the psychosis. Granted, in the past, I found a HUGE difference between lyrica and neurontin.
> >
> > I wonder if trileptal needs to be dropped if it's making me couch bound ill in the afternoon, or if i hang on to it, because it may help the taper, and helping some other things.
> >
> > Choices
>
> Difficult choices. You could try reducing the dose to 150mg instead of 300mg to see whether it affects the nausea. You really need to sort the dose of Trileptal out before you start tapering diazepam.Perhaps try 150mgs 3x a day with trileptal, and see how that goes?
I remember my doses in china while helping tapering was 150mgs, either 2 or 3 times a day. Of course the shrink there said there's no way it could be helping me, says you're ocd, take ssris, although trileptal got me out of the house and tapered much quicker. I still headaches and naseaua at my 150mg doses, but trust me, worth helping tapering, and depression.Ed, i just got up to 300mgs of lyrica, how quickly can i get to 600mgs? I tolerate it fine, no adverse effects, and going up fast doesn't seem to bother me. Although it helps anxiety, sleep, positive/happy mood, and was helping interdose wd (which doesn't seem like a prob now with diaz), I don't know if it has the affinity or possibility to help get off valium like trileptal does.
Brian
Posted by ed_uk2010 on April 3, 2010, at 20:03:54
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 19:55:26
> > > PS- Pre ECT, and pre going back on benzo and trileptal, i was on max dose of neurontin, and it did absolutely nothing for the psychosis. Granted, in the past, I found a HUGE difference between lyrica and neurontin.
> > >
> > > I wonder if trileptal needs to be dropped if it's making me couch bound ill in the afternoon, or if i hang on to it, because it may help the taper, and helping some other things.
> > >
> > > Choices
> >
> > Difficult choices. You could try reducing the dose to 150mg instead of 300mg to see whether it affects the nausea. You really need to sort the dose of Trileptal out before you start tapering diazepam.
>
> Perhaps try 150mgs 3x a day with trileptal, and see how that goes?
> I remember my doses in china while helping tapering was 150mgs, either 2 or 3 times a day. Of course the shrink there said there's no way it could be helping me, says you're ocd, take ssris, although trileptal got me out of the house and tapered much quicker. I still headaches and naseaua at my 150mg doses, but trust me, worth helping tapering, and depression.
>
> Ed, i just got up to 300mgs of lyrica, how quickly can i get to 600mgs? I tolerate it fine, no adverse effects, and going up fast doesn't seem to bother me. Although it helps anxiety, sleep, positive/happy mood, and was helping interdose wd (which doesn't seem like a prob now with diaz), I don't know if it has the affinity or possibility to help get off valium like trileptal does.
>
>
> Brian
>
>If you think you need to increase Lyrica, you could go up to 150mg three times a day next and go from there. Do you think 300mg/day is too low?
I think you should try 150mg twice or three times a day for the Trileptal. That makes sense.
Try to get out of the house where possible. It will help you.
Posted by qbsbrown on April 3, 2010, at 20:11:52
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 20:03:54
> > > > PS- Pre ECT, and pre going back on benzo and trileptal, i was on max dose of neurontin, and it did absolutely nothing for the psychosis. Granted, in the past, I found a HUGE difference between lyrica and neurontin.
> > > >
> > > > I wonder if trileptal needs to be dropped if it's making me couch bound ill in the afternoon, or if i hang on to it, because it may help the taper, and helping some other things.
> > > >
> > > > Choices
> > >
> > > Difficult choices. You could try reducing the dose to 150mg instead of 300mg to see whether it affects the nausea. You really need to sort the dose of Trileptal out before you start tapering diazepam.
> >
> > Perhaps try 150mgs 3x a day with trileptal, and see how that goes?
> > I remember my doses in china while helping tapering was 150mgs, either 2 or 3 times a day. Of course the shrink there said there's no way it could be helping me, says you're ocd, take ssris, although trileptal got me out of the house and tapered much quicker. I still headaches and naseaua at my 150mg doses, but trust me, worth helping tapering, and depression.
> >
> > Ed, i just got up to 300mgs of lyrica, how quickly can i get to 600mgs? I tolerate it fine, no adverse effects, and going up fast doesn't seem to bother me. Although it helps anxiety, sleep, positive/happy mood, and was helping interdose wd (which doesn't seem like a prob now with diaz), I don't know if it has the affinity or possibility to help get off valium like trileptal does.
> >
> >
> > Brian
> >
> >
>
> If you think you need to increase Lyrica, you could go up to 150mg three times a day next and go from there. Do you think 300mg/day is too low?
>
> I think you should try 150mg twice or three times a day for the Trileptal. That makes sense.
>
> Try to get out of the house where possible. It will help you.The higher the better it seemed to be on lyrica. My doc even had me at 900mgs before. I was able to drive from phoenix to san antonio, and travel all over the northwest US, when otherwise, i would have had serious issues. At the time, i would have still needed a stimulant to concentrate, but that's not an option right now.
I only have 100mg pills lyrica, and some 75mg samples, so it'd be tough to do 150 3 times a day.
I could go 175mgs 3 times a day for a few days, then 200mgs 3x a day?I could give the 150mgs trileptal 3x a day a go, see how it compares.
How far down the road do you think i should start my diaz taper?
Brian
Posted by ed_uk2010 on April 3, 2010, at 20:23:14
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:11:52
>I only have 100mg pills lyrica, and some 75mg samples, so it'd be tough to do 150 3 times a day.
> I could go 175mgs 3 times a day for a few days, then 200mgs 3x a day?
> I could give the 150mgs trileptal 3x a day a go, see how it compares.That sounds like a good plan.
>How far down the road do you think i should start my diaz taper?Wait until you're settled on 600mg of Lyrica and whatever dose of Trileptal works out best. Once you feel calmer, you should be ready to start tapering diazepam. You will probably be able to taper quite quickly at first and then more slowly as the dose gets lower.
Posted by qbsbrown on April 3, 2010, at 20:23:39
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:11:52
Mid day trileptal dose headache/naseaua couch bound illness is gone. Seems to last about 3 hours.
Even when off these drugs, still feels like i need, or would like some more ECT, to reset more of what i messed up, and help alliviate more of the psychotic phenomenea, which it has seemed to help.
Honestly, who wants or actively seeks out more ECT LMAO. Maybe those who it's helped.
Posted by qbsbrown on April 3, 2010, at 20:25:52
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 20:23:14
> >I only have 100mg pills lyrica, and some 75mg samples, so it'd be tough to do 150 3 times a day.
> > I could go 175mgs 3 times a day for a few days, then 200mgs 3x a day?
> > I could give the 150mgs trileptal 3x a day a go, see how it compares.
>
> That sounds like a good plan.
>
> >How far down the road do you think i should start my diaz taper?
>
> Wait until you're settled on 600mg of Lyrica and whatever dose of Trileptal works out best. Once you feel calmer, you should be ready to start tapering diazepam. You will probably be able to taper quite quickly at first and then more slowly as the dose gets lower.
>
>
>Ed, has anyone told you how much you rock?
Brian
Posted by Phillipa on April 3, 2010, at 21:12:22
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:25:52
Ed is a great person just babblemailed you. Love Phillipa
Posted by ed_uk2010 on April 3, 2010, at 21:26:00
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:25:52
>Ed, has anyone told you how much you rock?
Not often, I'm a mixed bag. Not sure if that makes sense.
Posted by qbsbrown on April 3, 2010, at 21:27:56
In reply to Re: Trileptal, why do you do this to me? » qbsbrown, posted by Phillipa on April 3, 2010, at 21:12:22
> Ed is a great person just babblemailed you. Love Phillipa
How do you check babblemail?
Brian
Posted by ed_uk2010 on April 3, 2010, at 21:29:41
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:23:39
>Even when off these drugs, still feels like i need, or would like some more ECT, to reset more of what i messed up, and help alliviate more of the psychotic phenomenea, which it has seemed to help.
It's not often that people are so keen to have ECT :) Who knows how you'll be feeling in a couple of months time. I hope you'll be much better and not in need of ECT.
Perhaps it would help to take Trileptal with food? It might relieve your upset stomach.
Posted by ed_uk2010 on April 3, 2010, at 21:36:32
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 21:27:56
> > Ed is a great person just babblemailed you. Love Phillipa
>
> How do you check babblemail?
>
> Brian
>
>Check your email address that you registered at p-babble with. Your babblemail goes there. I just sent you one to test it.
You see where my posting name is highlighted in blue at the top of all my posts? If you click there you can send a babblemail.
Some people have their babblemail turned off, in which case their name will not be highlighted in blue.
Can't believe you've not used babblemail before! :)
Posted by ed_uk2010 on April 3, 2010, at 21:37:06
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 20:25:52
> > >I only have 100mg pills lyrica, and some 75mg samples, so it'd be tough to do 150 3 times a day.
> > > I could go 175mgs 3 times a day for a few days, then 200mgs 3x a day?
> > > I could give the 150mgs trileptal 3x a day a go, see how it compares.
> >
> > That sounds like a good plan.
> >
> > >How far down the road do you think i should start my diaz taper?
> >
> > Wait until you're settled on 600mg of Lyrica and whatever dose of Trileptal works out best. Once you feel calmer, you should be ready to start tapering diazepam. You will probably be able to taper quite quickly at first and then more slowly as the dose gets lower.
> >
> >
> >
>
> Ed, has anyone told you how much you rock?
>
> BrianThanks btw :)
Posted by qbsbrown on April 3, 2010, at 21:39:37
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 21:29:41
> >Even when off these drugs, still feels like i need, or would like some more ECT, to reset more of what i messed up, and help alliviate more of the psychotic phenomenea, which it has seemed to help.
>
> It's not often that people are so keen to have ECT :) Who knows how you'll be feeling in a couple of months time. I hope you'll be much better and not in need of ECT.
>
> Perhaps it would help to take Trileptal with food? It might relieve your upset stomach.
>I'll try the food thing.
I know this. I can't get ect while on lyrica and/or trileptal, i would have to taper off them, and i wasn't allowed to take a benzo 15 hours before a ect session.
SO it looks like i'm gonna be doing this taper w/o ect in the near future, plus i don't have the money for it. That said, i think my parents home is a very unhealthy and stressful place for me to do my taper, especially with my memories of my taper here last year.
It seems to me, that the mountains in california, away from people, and in nature, and doing something positive, and physical work on a farm, and not having a computer etc, might be the best thing for me.
If after my taper is over, and i don't feel well, i could come back to civilization, make some money, and have some more ect sessions if I feel necissary.
My only other options are to live at my parents, and to get a job, which i don't know if i could hold one right now. I think about a busser position at a restaurant. Or trying to get a job in my hometown of seattle, where i have connections, but i don't know if I could hold a job in my situation, the added stress and pressure. Also holds true for me trying to move to san diego and get a job there.
The middle of the mountains sound pretty nice and unstressful of a place to do this???????????
Posted by qbsbrown on April 3, 2010, at 21:41:19
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 21:37:06
> > > >I only have 100mg pills lyrica, and some 75mg samples, so it'd be tough to do 150 3 times a day.
> > > > I could go 175mgs 3 times a day for a few days, then 200mgs 3x a day?
> > > > I could give the 150mgs trileptal 3x a day a go, see how it compares.
> > >
> > > That sounds like a good plan.
> > >
> > > >How far down the road do you think i should start my diaz taper?
> > >
> > > Wait until you're settled on 600mg of Lyrica and whatever dose of Trileptal works out best. Once you feel calmer, you should be ready to start tapering diazepam. You will probably be able to taper quite quickly at first and then more slowly as the dose gets lower.
> > >
> > >
> > >
> >
> > Ed, has anyone told you how much you rock?
> >
> > Brian
>
> Thanks btw :)No,,,....thank you!!!!
Posted by qbsbrown on April 3, 2010, at 21:48:10
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 3, 2010, at 21:36:32
It says my babblemail is turned on, but i have not received anything at any of my email addresses.
Brian
Posted by ed_uk2010 on April 4, 2010, at 6:29:22
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 21:48:10
> It says my babblemail is turned on, but i have not received anything at any of my email addresses.
>
> BrianStrange. I don't think my babblemail is working either. I haven't had any babblemails for a couple of weeks but someone said that they sent me one.
Posted by ed_uk2010 on April 4, 2010, at 6:36:29
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 3, 2010, at 21:39:37
>So it looks like i'm gonna be doing this taper w/o ect in the near future, plus i don't have the money for it.
Yeah, I agree with that. You might be able to have it at some point in the future, but hopefully you won't need it.
>It seems to me, that the mountains in california, away from people, and in nature, and doing something positive, and physical work on a farm, and not having a computer etc, might be the best thing for me.
I do agree that you need to be away from home. I can't say whether or not being in the mountains would be the most relaxing place for you though. Only you can know that. I might go crazy without my computer!
Getting a job is certainly what you need to do when you're feeling a bit better but I don't think now is the right time because you're not well enough yet. In a few months time you may be ready. I hope so anyway.
How is the diazepam treating you now?
Posted by qbsbrown on April 4, 2010, at 12:42:31
In reply to Re: Trileptal, why do you do this to me?, posted by ed_uk2010 on April 4, 2010, at 6:36:29
> >So it looks like i'm gonna be doing this taper w/o ect in the near future, plus i don't have the money for it.
>
> Yeah, I agree with that. You might be able to have it at some point in the future, but hopefully you won't need it.
>
> >It seems to me, that the mountains in california, away from people, and in nature, and doing something positive, and physical work on a farm, and not having a computer etc, might be the best thing for me.
>
> I do agree that you need to be away from home. I can't say whether or not being in the mountains would be the most relaxing place for you though. Only you can know that. I might go crazy without my computer!
>
> Getting a job is certainly what you need to do when you're feeling a bit better but I don't think now is the right time because you're not well enough yet. In a few months time you may be ready. I hope so anyway.
>
> How is the diazepam treating you now?
>
>
The diazepam seems to be working well now. No interdose. No depression or irritability. i was out at a movie etc last night, and the previous night out all night, and out during the day. So i think my body/brain is accepting it fine, as well as it is the lyrica. I think that the trileptal might be the only problem child, but might help the most w/ wd.Yeah, i can not imagine life w/o a computer:)
I'd give anything for the conversations that i wake up to in the morn to stop. Waking up i the morn is horrific, I wonder if zyprexa is worth a shot,,,..i doubt it, i think that is where ect would work, cause it has slowed a bit after. EG, if I go on a date etc (ironic that i have dated like crazy during this psychosis, than I have in the past many years combined when i was really drugged up and sane LOL!), like last night, i'll wake up to having conversations with that person, not out loud, but in my head. Hence me thinking getting away from people in general might serve me well right now. I could not imagine how the conversations would run rampant if i were to get a job right now.
But just seeing images all day long of things that i can/could not do is disturbing. Simply seeinng a scene in a movie last night of people relaxing and having fun at a swimming pool, relaxing, drinking, etc, having fun, i couldn't do. Or i hear of all of my friends, just waking up, being able to exercise, do what they want, go about their lives, is tough for me to swallow not being able to do (and keep in mind, trileptal makes me view the world in a weird existential disgusting way, is why i quit it, many/most drugs do this), and not to mind, all of my past failures, in jobs, breakdowns, even in simple things like long drives, when having to pop tons of zyprexa to do so, or take tons of depakote etc just to stay alone in a hotel room alone. Honestly, who does this?This ALL came from one infamous night 8 years ago when i had an 8 hour panic attack, and experienced severe depersonalization, and was followed by 24/7 derealization for years. My life hasn't been the same since that night. It was the derealization that got me on the klonopin. But i found that it made me depressed, irritable, watered down, glum, had to keep raising the dose, interdose, and withdrawal. Docs would say, it's not withdrawal, take this antidepressant, i'd try it, horrible reaction, it'd just make me cry and cry. The FUNNY thing is, is that at the time, i was seeking out all docs, chiropractors, neurologists, etc, anytyhing but a psychiatrist or psychologist, and i did not see a relation.
I thought i had something crazy like encephalitis or something of the sort, even basically asking my GP to order a spinal tap at the time, hhmmmm, maybe it was MS.
Funny how now, i just had a spinal tap to confirm a disease, which seemed to match up many of the same symptoms 8 years ago.
If you bother to read, i think it's easy to narrow down what the problem has been the whole time,,...the benzo.
I'm looking at back of some of my old writings and postings, these things worry me about klonopin, although i get some relief from them;
"Every time i start to feel better, i try to quit klonopin"
Tue Jul 19, 2005
And it comes back 100 percent, to the point i think im going crazy, gonna be in an insane asylum, and can't escape my head, full on panic.
When about to move to LA in 8/04"Now what remains is anxiety, racing thoughts, watching those thoughts, not being able to get out of my head."
This was tolerance withdrawal and interdose withdrawal had already begun w/ in 2 months!
Aug 04
"I was on day 3 of cold turkey of klonopin (granted only on .5 usually) and it just hit me like a hammer. I began taking it again,"
Me in Jan 06
"Been on 1.5 for over one year. Got dumb, and tried cold turkey. Almost ended up in the hospital 3 weeks later, with symptoms across the board.
No now i've reentroduced it, and will wean. It's making me ultra depressed, and does nothing for my anxiety anymore, sugar pills."
Me in Sept 05- Seems like I knew the problem years ago if I was reaching out for this help"Want off Klonopin!"
I've almost been on klonopin (1.5 mg daily) for almost one year.
It works well for my anxiety, but i think induces a little depression, makes me tired, and need more as i go along. And i don't want it long term.
What is the most effective weaning process? And what are the most effective supps (please include dosages).
My brain denying meds in 04, while like in seattlePosted by qbsbrown on December 31, 2004,
I'm really fed up with the meds, my brain hates them.
Three years later, doc crossed me over from ativan to valium, i tolerated it ok, but he tried to wean me off in 1 week. And i would only feel anxiety relief for about 2 hours, and then it'd be gone.Now i get no relief whatsoever. Am I just at a drop off point w/ benzos?
The klonopin worked this winter, but quit it after a month because of the depression/irritability it induced.
What a history!!!!!!!!!!!!!Now I'm perpetually from my most recent taper, and subsequent detox and cold turkey, and it seems like it can't readjust-rearrange back into a normal brain. this is why i want more ect, it seems to help.
Regards,
Regards,Brian
Posted by qbsbrown on April 4, 2010, at 12:56:32
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 4, 2010, at 12:42:31
And i believe it was one year ago, when i think i realzied the drugs were my problem. just on trileptal and valium, i began DOING things, exercising, hanging with friends, getting ready to leave the country, doing so many things i was not doing. Until an infamous day when the part of the trileptal, the part where it makes me depressed/irritable and would get racing thoughts, and i saw some weird existential angst ugly things, when i decided to drop it, and was left in benzo CT. But i had a life, i could wake up, and there was a day, and progression, go to the gym, hang with friends, go to the zen center etc, and to now what my days and mornings are like, especially with memories of sanity, and what "normal" days felt like, the progression of the day, and the events of them, this is TOO much to swallow, not to mention the severe severe psychotic phenomenea that i've experienced by putting myself through a cold turkey.
How I ever get a semi-normal life again from this state, i don't know how it is possible. A phoenix rising from the ashes? I try, i am doing more things with people than ever. But it doesn't change a lot of what i've experienced, although mind you, much has improved. I can actually see the present moment!!
Posted by ed_uk2010 on April 4, 2010, at 13:10:54
In reply to Re: Trileptal, why do you do this to me?, posted by qbsbrown on April 4, 2010, at 12:42:31
Hi Brian,
Whatever the Trileptal is doing, it would be unwise to stop taking it abruptly. Pretty much all psych meds can cause problems if they are suddenly discontinued. Are you going to try taking 150mg twice a day?
I assume you are still taking 20mg diazepam three times a day. Now that you are feeling a bit more stable, I think you should be able to start reducing quite soon.
Seriously though, how are you managing to go on dates?!
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