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Dr. Bob is Robert Hsiung, MD,
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Posted by ed_uk on January 27, 2005, at 11:51:34
In reply to TO ED_UK, posted by Jeroen on January 26, 2005, at 17:31:24
Hi Jeroen,
>i am now 5 days on amantadine
>my eyes feel worse, the uncontrolled eye movements and eye blinking are worser... i am very dissapointed, but i feel betterWith amantadine, improvement of TD will take time. The TD symptoms may temporarily get worse before they get better.
>Leponex will be my last hope.
That's just not true! There are several other treatments that may help. Did you discuss Leponex with your new psychiatrist?
>i have important AXID Nizatidine from the united states
>will it be a problem if i take this the first few months while on leponex? will it reduce some weight? is it dangerous?Nizatidine (Axid) might possibly be helpful in reducing the weight gain. Orlistat (Xenical) may also be helpful. Do not take any more medication without your doctors advice, you may create new problems for yourself. Be sure to tell your doctor that you are taking amantadine.
>I wanted a happy ending, go out with friends again, i guess god dont want me to be happy
You still can go out with friends. What do you like to do?
Ed.
Posted by Jeroen on January 27, 2005, at 11:54:47
In reply to Re: To Jeroen, posted by ed_uk on January 27, 2005, at 11:51:34
my doctor cant know i will take nizatidine with leponex
is this safe? i think it is...
Posted by Jeroen on January 27, 2005, at 12:00:35
In reply to Re: To Jeroen, posted by ed_uk on January 27, 2005, at 11:51:34
sorry, but they made me sicker for the rest of my life maybe, i came into the hospital healthyer then now, now i have cramp in my eye for 4 months because of the GEODON (evil drug)
i will take nizatidine with the leponex and eventually switch to amantadine IF the eye problem is cured
Posted by Jeroen on January 27, 2005, at 12:03:38
In reply to Re: To Jeroen, posted by ed_uk on January 27, 2005, at 11:51:34
can i take leponex, nizatidine, amantadine all together?
Posted by ed_uk on January 27, 2005, at 12:47:34
In reply to TO ED_UK, posted by Jeroen on January 27, 2005, at 12:03:38
Hi Jeroen,
>my doctor cant know i will take nizatidine with leponex
Why not? Your doctor might prescribe nizatidine for you if you asked. Be sure to tell your doctor that you're taking amantadine. Your doctor cannot treat you safely unless he knows what medication you are taking.
>can i take leponex, nizatidine, amantadine all together?
Yes, I think so but I am not certain.
Did you talk to your psychiatrist about possibly starting clozapine?
Ed.
Posted by Jeroen on January 27, 2005, at 12:53:20
In reply to Re: To Jeroen, posted by ed_uk on January 27, 2005, at 12:47:34
i cant nizatidine is not available in europe
im sorry but i will take it, i once took it with zyprexa for 3 weeks
Posted by ed_uk on January 27, 2005, at 13:11:50
In reply to Re: To Jeroen, posted by Jeroen on January 27, 2005, at 12:53:20
Hi,
As far as I know, nizatidine IS available in Belgium. The brand name is Panaxid- ask your doctor.
Ed.
Posted by Jeroen on January 29, 2005, at 12:44:53
In reply to Re: To Jeroen, posted by ed_uk on January 27, 2005, at 13:11:50
Clozaril will be on of my last attempts to get better
ive tryed so much, Abilify, GEODON (tardive dyskinesia), Zyprexa, Seroquel (got strange psychotic taughts while on this dog crap)
i hope i will not develop that condition where all my white blood cells diewhat are the symptoms of that?
Posted by Jeroen on January 29, 2005, at 12:50:14
In reply to Clozaril, posted by Jeroen on January 29, 2005, at 12:44:53
i have a question, i had eye blinking on abilify, but i took this one a month and it went away with no tardive dyskinesia, the geodon did the same even worse, with uncontrolled eye movement and gave me TD or dystonia, i dont know wich one it is...
Posted by ed_uk on January 29, 2005, at 15:10:48
In reply to Clozaril, posted by Jeroen on January 29, 2005, at 12:44:53
Hi Jeroen,
Did you talk to your new psychiatrist about possibly starting clozapine?
>i hope i will not develop that condition where all my white blood cells die
>what are the symptoms of that?Agranulocytosis may result in infection. Symptoms of infection include fever, sore throat and flu-like symptoms.
It is possible that both Abilify and Geodon played a role in causing your TD.
Ed.
Posted by Jeroen on January 29, 2005, at 15:50:00
In reply to Re: Clozaril » Jeroen, posted by ed_uk on January 29, 2005, at 15:10:48
can i take amantadine with nizatidine, and leponex?
Posted by ed_uk on January 29, 2005, at 16:00:38
In reply to Re: Clozaril, posted by Jeroen on January 29, 2005, at 15:50:00
Jeroen, you're not answering any of my questions! Have you discussed Leponex with your new psychiatrist?
Ed.
Posted by Jeroen on January 29, 2005, at 16:11:41
In reply to Re: Clozaril, posted by ed_uk on January 29, 2005, at 16:00:38
sorry, i will do it on monday, i will say to him the eye TD problem is worse when i take Zyprexa, he once suggested it so i dont think it will be a problem
Posted by ed_uk on January 29, 2005, at 17:19:28
In reply to Re: Clozaril, posted by Jeroen on January 29, 2005, at 16:11:41
Hi Jeroen,
Tell me what you psychiatrist says on Monday :-)
Ed.
Posted by Jeroen on January 29, 2005, at 18:30:58
In reply to Re: Clozaril » Jeroen, posted by ed_uk on January 29, 2005, at 17:19:28
ok
Posted by Jeroen on January 31, 2005, at 12:25:52
In reply to Re: Clozaril » Jeroen, posted by ed_uk on January 29, 2005, at 17:19:28
hi, i talked with my psy doc today, he said he cannot give Leponex to me because i need to be hospitalized for that
i aint hospitalized, i am going 3 days a week to the hospital?
why cant they give this to me? like zyprexa
should i go to a psychiatrist outside the hospital and ask them to prescribe this for me? My psy doc sais its rule everywhere that you need to be hospitalized before they can give you leponex
I explained it that ive read leponex can treat or somethimes REVERSE the tardive dysinesia, i say why cant i try this??
i really need your advice on this... what should i do?
Posted by ed_uk on January 31, 2005, at 12:52:26
In reply to TO ED_UK URGENT!!!, posted by Jeroen on January 31, 2005, at 12:25:52
Hi Jeroen :-)
>i aint hospitalized, i am going 3 days a week to the hospital?
Unfortunately, you will have to be admitted to hospital if you want to try Leponex :-(
>should i go to a psychiatrist outside the hospital and ask them to prescribe this for me?
No, treatment with Leponex is only initiated in inpatients. All psychiatrists would say the same.
>i really need your advice on this... what should i do?
If you really want to try Leponex you will have to ask your psychiatrist to admit you to hospital. After you have been stabilised on Leponex you will be able to continue treatment with Leponex as an outpatient. You would probably only have to stay in hospital for a short time. When people start treatment with Leponex they sometimes have serious side effects such as very low blood pressure. It is safest to start Leponex in hospital because the nurses can monitor you closely eg. measure your blood pressure regularly etc.
Good luck!
Ed.
Posted by Jeroen on January 31, 2005, at 14:24:44
In reply to Re: TO ED_UK URGENT!!! » Jeroen, posted by ed_uk on January 31, 2005, at 12:52:26
im gonna try taking zyprexa again, i noticed an improvement right after 3 weeks ...
the first two weeks its worse!!!
i have lot of suicidal taughts. its 4 months since i have the eye problem
Posted by Jeroen on January 31, 2005, at 15:06:40
In reply to Re: TO ED_UK URGENT!!! » Jeroen, posted by ed_uk on January 31, 2005, at 12:52:26
hi, i just read
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=14502683&dopt=Abstract
but some people said to me seroquel can make you psychotic, i think it did to me, when i first took 400 mg i experieced a electric zap feeling into my brain all evening, even thunderstrikesi taught my cat was responsible for my disease, now thats a psychotic taught i never have!
this is strange, please your comments,
im going to try zyprexa one last time for few months, after 3 weeks the blinking is bit less like 2/5 gone
Posted by ed_uk on February 1, 2005, at 8:10:56
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL, posted by Jeroen on January 31, 2005, at 15:06:40
Hi Jeroen,
What medication has your new psychiatrist prescribed? Has he given you more Zyprexa?
If you do decide to take Zyprexa, take a low dose eg. 5mg. Don't take a high dose unless your doctor told you to.
Are you thinking of trying Seroquel again? If you do you should try a much lower dose than you took before.
Ed.
Posted by Jeroen on February 1, 2005, at 10:31:17
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL » Jeroen, posted by ed_uk on February 1, 2005, at 8:10:56
can i take Zyprexa with seroquel? low dose of course like 5 mg zyprexa with 25 or 50 mg of seroquel
also amantadine
Posted by ed_uk on February 1, 2005, at 11:47:47
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL, posted by Jeroen on February 1, 2005, at 10:31:17
Hi Jeroen,
Why would you want to combine Zyprexa with Seroquel? In terms of your blepharospasm, it would probably be more helpful for you to be on Seroquel alone. I think that you would probably experience much milder side effects from Seroquel if you started with a low dose (eg. 12.5mg or 25mg per day) and increased very gradually.
Please tell me.... What treatment has your new psychiatrist prescribed?
Ed.
Posted by Jeroen on February 1, 2005, at 11:56:42
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL » Jeroen, posted by ed_uk on February 1, 2005, at 11:47:47
zyprexa, i said to him its very worse when i take zyprexa that im almost blind, i cant see where i walk, he said it aint zyprexa, that doctor i never want to speak again with!
ill go with the seroquel
i know a girl who purse her lips and she take seroquel and its 100% gone!!!!!!
Posted by ed_uk on February 1, 2005, at 12:23:23
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL, posted by Jeroen on February 1, 2005, at 11:56:42
Hi,
Although I think Seroquel would be better than Zyprexa for your blepharospasm, I'm a bit concerned that you might have 'strange thoughts' if you take Seroquel. Hopefully, the strange thoughts that you had when you took Seroquel previously were not caused by the drug.
What strength of Seroquel tablets do you have?
In the UK, it comes in 25mg, 100mg, 150mg, 200mg and 300mg tablets. Which strength do you have?
If you're going to try Seroquel, you really need the 25mg tablets so that you can start on a very low dose. If you start at a high dose it will probably make you feel VERY drowsy and ill.On PubMed, there is a report of an Italian patient who found Seroquel MORE effective than clozapine in reducing the symptoms of his TD!!! The same patient also tried Zyprexa but it wasn't very effective.
I really don't think you should start Seroquel without asking your new psychiatrist. Did you talk about trying Seroquel at your last appointment? I think that he'd probably give you a prescription for the 25mg tablets if you asked.
Ed.
Posted by Jeroen on February 1, 2005, at 12:36:38
In reply to Re: TO ED_UK URGENT!!! *NEW* SEROQUEL » Jeroen, posted by ed_uk on February 1, 2005, at 12:23:23
hi, the strange tought came from seroquel, i was heavy sedated, coudnt function
i see a serious problem here, i once took 400 mg and it was pure hell i was zombie the next day, strange psychotic taughts i got from this medicine when i stopped it it dissapeared!!!
i can order seroquel 25 mg from www.usadrug.netmy doctor will not prescribe it, im very sure of it, he wants me to immediatelly take 200 to 400 mg after a few days and not 25 mg, so he really doesnt help me with my eye problem
i dont trust my doctor anymore, he doesnt care about my eye problem!
can you advise me a bit how i should proceed?
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Dr. Bob is Robert Hsiung, MD,
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