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Dr. Bob is Robert Hsiung, MD,
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Posted by Kara on January 27, 2001, at 14:46:43
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
Well, I went through two HORRIBLE days with out my 150mg of Effexor XR. I
> too had felt like I had a hangover from hell. I couldnt walk without
> holding onto something, actually fell to the floor two times. My eyes feel
> like they are going to explode! Anyway, so I gave in on day three a popped
> a pill, the full amount. I swore that I wasnt going to take another one
> but the way my body was reacting was very,very scary. I am going to call
> my doc on Monday and tell her that I need to get on something else or get
> lower pills to reduce the intake then eventually get off of this drug. I
> cant believe all the posts on this board. Imagine all the people out there
> who have no idea about the withdrawl from this med. They probably think
> they are dying. Doctors have no clue. And if it werent for the board I
> dont know what I would do. My doctor told me that this med is NOT
> addictive and if I had not read this board I would probably be in the
> emergency room thinking that these side effects were from an illness. I
> guess that they are, I hope I can return back to "normal" after
> I get off of this and I hope that there is not permanent damage. Thank you
> to all, who have emailed me and suggested things to me. I wouldnt wish
> this upon anyone and thank you for lending your support. It's just that no
> one knows what I am going through. I cant even explain it to anyone, only
> to the people on this site. Thank you.
Posted by JL on January 28, 2001, at 1:05:26
In reply to Cold Turkey Attempt....FAILED!, posted by Kara on January 27, 2001, at 14:46:43
I just spoke with someone else, tonight, who has only been on Effexor for five months (I don't remember the dosage) and that individual also has the same problems when even a dose is missed.
While I've never been on Effexor SR - just good ole fashioned addicting Effexor for me, I was able to reduce, over a period of many months, from a high of 375 mg/day to 37.5 mg/day before I finally thought I could "JUST SAY NO TO EFFEXOR" (yes, it IS addicting, regardless of what the quacks will have us believe). I've been cold turkey since last Tuesday (I stopped Monday but the withdrawals were so bad I took a small amount on Tuesday) - STILL having EXTREME dizziness, especially when I move, turn my head, or do any type of physical work. I also feel rather disoriented and "spacey." Am having some nausea (which is a bit more tolerable than the dizziness).
While it's still Hell now, it was MUCH worse when I was on a higher dose and landed in ER. Here's what I did to get down to 37.5 mg/day (I would have completely wigged out going cold turkey on 150 mg/day). I would take start taking my dose (let's say 150 mg/day), only once per day (yes, even that would cause problems) but, after about two or three weeks, they would be tolerable. At that point, I would then start taking 1/2 dose (75 mg) in the morning and then the same at night. I would do that for a couple of weeks and then stop taking the morning dose. Naturally, the withdrawal symptoms from this ADDICTING drug would start but, after a few weeks the withdrawal symptoms would be relatively low enough that I would then start the whole process over again (37.5 mg in the A.M., then 37.5 before going to bed) after several weeks of that, I'd again cut out the morning dose. Well, I finally got down to 37.5 mg only once per day and have been trying to go cold turkey every since. The withdrawals are simply horrible but, in comparison to when I landed in ER, I am semi-functional as long as I don't move around too much. I've now been off since Tuesday and am having some of the worse withdrawals I've had in a long time. Even so, I am NOT going to take ANY more of this addicting drug. Considering I've been on this stuff for the past 3 1/2 years, this is the longest, by far, that I've ever gone without taking it. I KNOW I can make it at this point, it's just a matter of how long my body is going to be messed up while going through withdrawals. (FYI, I'm on disability for work related Post Traumatic Stress Disorder, so I don't have to deal with working while going through this - there is NO WAY that I could do that!) My biggest worry is driving - while I'm avoiding it at all costs, there are some times where I HAVE to go out. How long does one have to suffer through these withdrawals?!?!?
Anyway, there is no way I could get off the damn drug, cold turkey, at 150 mg/day. You might try cutting back, the way I did (my doc thought it was a good approach), down to a level that is "tolerable" (as far as I'm concerned, NO level of this is "tolerable") - that is, down to the point where you're not going completely nuts, and then go "cold turkey."
Posted by stjames on January 29, 2001, at 0:55:44
In reply to Cold Turkey Attempt....FAILED!, posted by Kara on January 27, 2001, at 14:46:43
Cold turky is a really bad idea. Want problems ?
Go cold turkey ! Please read the tips section on e-groups and archives and take better care of yourself.James
Posted by dj-1972 on January 30, 2001, at 15:33:00
In reply to Withdrawal From Effexor, posted by JL on January 26, 2001, at 19:18:27
I've only been on effexor XR for about 2 months.
150MG. I'm going off of it because after the first 37.5 dose
I immediately lost all ability to have sex.
I was told that would probably eventually normalize but it didn't.
Then I was told, "Just go down to 75mg per day for
a few days, then you can stop." I was told that I
might feel some flu-like symptoms, but they would pass.
I'm on my 3rd day of being off completely, and today I had
to take another 75mg dose. We'll see if it helps.
I've been completely worthless for 2 days. Feel like there
is some kind of damn fog in my brain, dizzy, lightheaded, can't
sleep. This sure is fun. I'm going to get some smaller doses to
see if that will help to do this more gradually.
In any case, there is a very low level of knowledge about this.
I would recommend everyone to read "Your drug may be
your problem: how and why to stop taking psychiatric medication."
I've only read some of it, and the chapters on withdrawing, but
it has convinced me that you can't count on your doctor
to get you off this, or anything, in the best way.
Posted by dj-1972 on January 30, 2001, at 15:57:04
In reply to Withdrawal From Effexor, posted by JL on January 26, 2001, at 19:18:27
Yeah, the serotonin syndrome thing you talked about is pretty serious,
but not caused specifically by effexor. As I understand it, it can
happen any time you try to take effexor or any SSRI at the same time as
an MAO inhibitor (or up to 14 days after taking an MAO inhibitor). Side
effects are pretty nasty, up to and including death. I read some stuff
in my wife's drug book (she's a nurse) as well as on WebMD.
Bleeding gums, inability to distiguish reality from imagination,
dry mouth, sesuires and convultions, an uncontrollable urge to talk or move,
depression, anxiety, death, and just about any other thing you can name can all result,
so the moral is to never take an MAO inhibitor with an SSRI (or many other
things). MOA inhibitors are pretty serious business.
Posted by Kathleen on January 30, 2001, at 23:19:50
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
> Hi there,
> Do any of you take Effexor for Pain? Dr. put me on it about 10 months ago for the dopamine effects. I suffer from chronic headaches as in I do not remember what it feels like not to hurt. I have TMJ. I quit taking the effexor 3 days ago and the only side affect I have noticed is crying for no reason. I do not have good insurance and the costs for effexor are out of reach at this moment. I was taking 150 mg. each night before bed. I took elavil for 14 years before trying effexor and the only difference I noticed is that I am not as tired all the time and my mouth is not as dry. Any thoughts on this? Thanks, Kathleen
>
Posted by willow on January 31, 2001, at 7:43:21
In reply to Re: Anyone take it for pain? , posted by Kathleen on January 30, 2001, at 23:19:50
Kathleen
Did you find that the Effexor helped? Have you ever checked out a pysiotherapist?
Try keeping a "journal" for the headaches. After awhile you may find a pattern. I personally don't find that Effexor helps for pain. Other ADs have been more effective, but like you mentioned they have side-effects.
What are you using now? I find baclofen helps. I don't need to take it continuously, I can skip some days and once the pain starts coming back I start again.
Posted by helena on February 1, 2001, at 10:33:10
In reply to effexor and drinking, posted by Jane on April 15, 2000, at 4:01:54
> I started effexor 18 months ago at a very low75 mg/daily dose-it didn't help and following a serious incident of self mutilation "they" increased to 250 xr/day. that was awful! the diahrea lasted almost 2 weeks-but I thought maybe I would lose some of the 30 pounds I had gained being on the drug. I love these docs that tell you what your feeling/gaining (weight)/lossing (sexuality)couldn't possibly be because of the drugs! I think they should have to take them to prescribe them. Thank goodness for the postings-I don't feel so alone and crazy! I am now withdrawing on my own and the dizziness, flu-like feeling and fatigue are terrible. I can't wait for this to be over. can any one tell me how long the head-spinning will last? its been 5 days of no drugs. also wanted to know if anyone has experiences the leg jerks, tremors and leg jitters at night like I did. thanks Helena
Posted by bronwyn on February 1, 2001, at 11:45:55
In reply to quitting effexor, posted by helena on February 1, 2001, at 10:33:10
> > I started effexor 18 months ago at a very low75 mg/daily dose-it didn't help and following a serious incident of self mutilation "they" increased to 250 xr/day. that was awful! the diahrea lasted almost 2 weeks-but I thought maybe I would lose some of the 30 pounds I had gained being on the drug. I love these docs that tell you what your feeling/gaining (weight)/lossing (sexuality)couldn't possibly be because of the drugs! I think they should have to take them to prescribe them. Thank goodness for the postings-I don't feel so alone and crazy! I am now withdrawing on my own and the dizziness, flu-like feeling and fatigue are terrible. I can't wait for this to be over. can any one tell me how long the head-spinning will last? its been 5 days of no drugs. also wanted to know if anyone has experiences the leg jerks, tremors and leg jitters at night like I did. thanks Helena
>I experience leg jitters at night and I am on 75mg Effexor XR . I also have leg jitters through the day and find it gets worse if I have any caffeine.
Posted by JL on February 1, 2001, at 13:52:03
In reply to quitting effexor, posted by helena on February 1, 2001, at 10:33:10
I've been off the addicting drug, Effexor, for more than a week now - still dizzy but now it feels like I've just gotten off of a whirl-i-gig rather than playing inside a cement mixer, like I did last week.
Posted by Sandi on February 1, 2001, at 15:02:42
In reply to quitting effexor, posted by helena on February 1, 2001, at 10:33:10
>I am also quitting effexor. I am at day 3 now. I to feel dizzy and sick with flu like symptoms. I don't know how long it will last. I had been on 75 mg. for 1.5 months only. I do not know if the withdrawal effects are the same depending on mg. and length of time. Does anyone know? Thank You
Posted by Alli on February 3, 2001, at 9:40:41
In reply to quitting effexor, posted by helena on February 1, 2001, at 10:33:10
Helena ~ I'm right where you're at right now. This is Day 6 with no Effexor at all. I've been weaning myself slowly since Jan. 8th. The *diarrhea* and *overwhelming tiredness* are getting old, not to mention the occasional dizziness where it seems the floor is moving all of a sudden. I'm hoping that this isn't permanent. Every morning I wake up thinking that I will feel better, but then I find myself racing to the bathroom (as if getting up in the night isn't enough). I will read your follow-ups! Good luck! And I'm hoping some of the weight will come off too! Alli.
Posted by helena on February 3, 2001, at 18:03:51
In reply to quitting effexor, posted by helena on February 1, 2001, at 10:33:10
> > -
Hi this is Helena-thanks to all who responded-just when I think that my head and eyes are on the same page the world goes swishy again. It is worse when I am trying to work on the computer! I have already dropped some weight! that makes me happy and I am having "normal" emotions again-didn't realize how dead I was until I started coming down of this sh**. I think Id rather be depressed that go on this medication rollercoaster again. can any one tell me how long to expect these very annoying and almost dangerous (driving) withdrawl symptoms? weeks/months YEARS!!!!
Helena
Posted by Erika on February 4, 2001, at 21:07:50
In reply to Re: quitting effexor-follow up » helena, posted by helena on February 3, 2001, at 18:03:51
> > > -
> Hi this is Helena-thanks to all who responded-just when I think that my head and eyes are on the same page the world goes swishy again. It is worse when I am trying to work on the computer! I have already dropped some weight! that makes me happy and I am having "normal" emotions again-didn't realize how dead I was until I started coming down of this sh**. I think Id rather be depressed that go on this medication rollercoaster again. can any one tell me how long to expect these very annoying and almost dangerous (driving) withdrawl symptoms? weeks/months YEARS!!!!
> Helena>Helena,
I attemped withdrawl last Monday and made it until Thursday until I gave up and called a reputable psychiatrist, since my regular MD who prescribed it knew nothing about withdrawal.
This was after 4 days of the hell you are in- clicking in the ears, constant nausea, nightmares, sweating/exhaustion, dizziness. I went from 150 mg down to 75 mg for a week, then cold turkey. The psychiatrist immediately assured me that I wasn't crazy and here's the options he presented me:
-Continue to stay clean and experience side effects for up THREE MORE WEEKS< BEST CASE SCENARIO.
-Get back on at a really low dose- 37.5 mg and taper off over next three weeks.
-Take low dose of Effexor and combine w/ low dose of Prozac.
I was so exhausted and terrified at the time I went for the low dose Effexor option. I HATED doing this but at least I was able to get out of bed, eat and sleep well within 3 hours of taking it again.The only bright note is that yes, my jeans that were retired last year are kinda starting to fit again. Yahoo! But seriously, bulimia must be gentler way to lose weight than this!
Seriously friend, consider going on low dose and talking to decent psychiatrist! No one should have to go through the symptoms you are having. I might be on it again, but really think it's terribly unsafe and a cruel trick to play on the delicate soul that wants to venture out into the game again. Whoever approved this stuff at the FDA needs to be flogged!
I am seeing Psych. tomorrow and will report back on his master plan to get me off, perhaps this helps.
Regardless of what you decide, I wish you all the best.
Blessings,
Erika
Posted by JL on February 5, 2001, at 18:27:43
In reply to Re: quitting effexor-follow up, posted by Erika on February 4, 2001, at 21:07:50
Two weeks off of Effexor - an ADDICTING DRUG. I'm still "swimming" but the withdrawals are starting to be less severe. One thing for sure - I'll NEVER go on this ADDICTING drug again. The constant dizziness is living Hell. BTW, has anyone else had problems with the dizziness getting worse when you do ANY type of physical activity? I can only do very limited work, each day, before I have to call it quits due to the dizziness. A relative asked her doctor about Effexor withdrawals (because of the problems I've been having) - that doctor (in addition to what mine has told me) also said that it would take a LEAST three weeks for this Hell to stop.
Posted by Kara on February 6, 2001, at 10:39:39
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
Well, after trying to get myself off of Effexor XR for only two days, i realized that it was not a great idea to get off of this med cold turkey. I missed two days of work, could not get out of bed, any movement was a shock to my head and I could not walk without support from the wall. When the third day came around, tears began to fall and I couldnt believe the feelings I was having due to the withdrawl effects so I decided to give in and take a pill. The symptoms of withdrawl subsided after 6 hours. So I have been back on this drug while seeking medical advice. I saw my med doc and she gave me the start up package for Effexor to gradually get off of it. I am now down to 75mg per day and feeling better. In four days I will be down to 35mg and my doc gave me Paxil samples to start taking while I am on that small dose. Has anyone ever been on Paxil? I have done some research and I am reading that there is withdrawl effects also with this drug and I have even read that you should NOT take Paxil with any other anti-depressants. So now I am going to my psychiatrist and informing her of what my med doctor wants me to do. I will update all of you on this tomorrow. I just want to get off of all anti-depressants and I am upset that I have to take another med to get off of Effexor. I also suffer from migraines and that is another reason why I am being put on Paxil. I also have a catscan scheduled for next Monday to see why I am getting these migraines which have gotten worse since being put on Effexor XR. I hate this and I hate myself for doing this to my body and I wish all everyone would be smart enough to do some research and think about the possible effects that anti-depressants can cause. Wish me luck and I will update you all. Please email me or post a follow up regarding the Paxil. Thanks!
Posted by Lizfromphoenix on February 6, 2001, at 13:55:54
In reply to Withdrawl from Effexor XR and now Paxil!, posted by Kara on February 6, 2001, at 10:39:39
> Please email me or post a follow up regarding the Paxil. Thanks!
*************************************************Yes, I did take Paxil (read my post Oct 20, 2000).
I found it very beneficial. I too had migraines before the Paxil. The headaches, completely subsided with the medication. Migraines and depression seem to go hand in hand, and one can bring on the other.As I mentioned in the earlier post, I was on Paxil for 5 years. I had stopped cold turkey on two occasions for pregnancies with barely noticeable side effects. Upon my final quitting of Paxil (due to side effects) I was weaned off it while i introduced Effexor XR over a period of 2 weeks. I had no negative withdrawal side effects.
I wish you luck with the Paxil, sometimes it is difficult to sleep with the paxil and I took seroquel( only 1/2 of a 25mg tablet, helped me sleep like a baby) Everybody is different, but I think you doc is right with this one for your headaches.
Posted by Tee on February 6, 2001, at 14:51:21
In reply to Re: Possible withdrawal agony scares me » riverrock, posted by SLS on July 9, 2000, at 16:06:18
My dad recently got on this and we have noticed a huge difference in his personality. He tends to want to snap at people. Is this common with some people. Please post to this board asap so that I can come back and see if anyone is experiencing family members on this that are snapping at them or maybe you are on it and may want to share experiences. I need for him to know that this may be the cause of his personality change. Thanks to all.
Posted by Fan on February 6, 2001, at 17:22:39
In reply to Withdrawl from Effexor XR and now Paxil!, posted by Kara on February 6, 2001, at 10:39:39
I've been taking Effexor for about four months now
and I believe I've been experiencing some wierd
side effects. When I stare off or maybe zone out, I often feel as if my legs are slowly floating and or moving beneath me. At other times I get a jumpy sort of tick thing going on with my legs. Has anyone else had sensations like these?
Posted by kane on February 7, 2001, at 15:00:48
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I came across a post at a message board last night that scared me, I think everyone on Effexor should read these following sites that were givin by this person.
Matt stated he had done quite a bit of research over the past few years,since his wife was prescribed Effexor with devastating conseqences on his family.He suggest the following sites and will be posting some more info in a couple days,he is getting messages daily from people who are being permanently damaged. He welcomes any e-mails also.
www.effexorfx.freeuk.com
www.breggin.com
and the e-group toxic psychiatry and drug awareness.
Posted by Bronwyn on February 7, 2001, at 15:10:41
In reply to Withdrawl from Effexor XR and now Paxil!, posted by Kara on February 6, 2001, at 10:39:39
> Well, after trying to get myself off of Effexor XR for only two days, i realized that it was not a great idea to get off of this med cold turkey. I missed two days of work, could not get out of bed, any movement was a shock to my head and I could not walk without support from the wall. When the third day came around, tears began to fall and I couldnt believe the feelings I was having due to the withdrawl effects so I decided to give in and take a pill. The symptoms of withdrawl subsided after 6 hours. So I have been back on this drug while seeking medical advice. I saw my med doc and she gave me the start up package for Effexor to gradually get off of it. I am now down to 75mg per day and feeling better. In four days I will be down to 35mg and my doc gave me Paxil samples to start taking while I am on that small dose. Has anyone ever been on Paxil? I have done some research and I am reading that there is withdrawl effects also with this drug and I have even read that you should NOT take Paxil with any other anti-depressants. So now I am going to my psychiatrist and informing her of what my med doctor wants me to do. I will update all of you on this tomorrow. I just want to get off of all anti-depressants and I am upset that I have to take another med to get off of Effexor. I also suffer from migraines and that is another reason why I am being put on Paxil. I also have a catscan scheduled for next Monday to see why I am getting these migraines which have gotten worse since being put on Effexor XR. I hate this and I hate myself for doing this to my body and I wish all everyone would be smart enough to do some research and think about the possible effects that anti-depressants can cause. Wish me luck and I will update you all. Please email me or post a follow up regarding the Paxil. Thanks!
>I have gone from Paxil to Effexor XR and had some crossover with both meds in my system. I did not have any problems with doing that.
Posted by Bronwyn on February 7, 2001, at 15:19:13
In reply to Please read Dad personality is changing Effexor XR, posted by Tee on February 6, 2001, at 14:51:21
> My dad recently got on this and we have noticed a huge difference in his personality. He tends to want to snap at people. Is this common with some people. Please post to this board asap so that I can come back and see if anyone is experiencing family members on this that are snapping at them or maybe you are on it and may want to share experiences. I need for him to know that this may be the cause of his personality change. Thanks to all.
>I was snapping at my spouse for the first month or so on Effexor. Once it is in the system snapping stops and mood swings stop. At least it did for me. Hope this helps.
Posted by Sulpicia on February 7, 2001, at 16:19:06
In reply to Permanently damaged!!!!!!!!!, posted by kane on February 7, 2001, at 15:00:48
> I came across a post at a message board last night that scared me, I think everyone on Effexor should read these following sites that were givin by this person.
> Matt stated he had done quite a bit of research over the past few years,since his wife was prescribed Effexor with devastating conseqences on his family.He suggest the following sites and will be posting some more info in a couple days,he is getting messages daily from people who are being permanently damaged. He welcomes any e-mails also.
>
>
> www.effexorfx.freeuk.com
> www.breggin.com
> and the e-group toxic psychiatry and drug awareness.Hi Kane --
I can honestly say that I am unfamiliar with the extent of Matt's research and can only extend my sympathies.
I must, however, respectfully point out that www.breggin.com IS NOT a reliable source of information on meds or psychiatry. This man is not a researcher, he does not have privileges at any hospital; he is simply an anti-psychiatry crusader.I came across him when I was researching treatment for my Attention Deficit Disorder. His articles on this disorder are untrue, unfounded, and only focus on hype and sensationalism to further his agenda of bashing accepted and well-studied treatments [in the case of ADD/HD].
I cannot comment on the other sites as I've not seen them but Breggin is NOT a legitimate source of information.
I would suggest the following strategies to Matt [which he may already have done so please don't be offended.
Go to the FDA homepage and search the adverse drug reaction data-base.
Search pubmed for all the trials of the drug in question -- trials generally have to include ALL side effects, especially if it's early on in the drug's appearance on the market.
Search pubmed for the drug per se -- it will generate a ton of stuff but you can sort thru it fairly quickly.
This will generate the sort of scientific info that will make the scientific community take notice if there is a recuring problem with this med.No educated person or member of the scientific community would take anything Breggins says as valid data. In fact, association with him will hurt Matt's cause. If there is a problem, find hard data.
Good luck,
S.
Posted by Simon P on February 7, 2001, at 17:53:59
In reply to Re: im trying to quit, im losing my mind, posted by RL on August 19, 2000, at 23:34:36
Hi !
I read your messages and that get me a bit scared.
I'm 17 years old and I'm a very good student.
About 95% in all courses.Last year, I had several problems in my life. I found out my "ex" was cheating me. I found out my friends were not really my friends.
My head was going at 150 mph searching to understand the life. I discover the world at 17 years somes say !
Having my head constantly thinking got me into a kind of psychological burn-out. I'm experiencing memory problems, concentration problems and fatigue.
Now, I "understand the life" and know what to take and what to let pass but, the physical effects are always there.
I sleep and sleep. I'm always tired.
I saw a psychiatre and after few weeks, he gives me Effexor XR.
I began yesterday and i'm experiencing side effects.
Now is my question: My troubles were due to a situation. Now, I'm okay in my head and I need a little help to get back on feet with my physic.
I read all of you who tried a lot of drugs. Who cannot live without drugs.If I begin to take Effexor XR to help me getting back on feet, will I be stick with it forever ? or after I will be OK, my life will continue like it was ?
I never experienced problems like that and I always had a good mood even in my depress periods. I laugh. I'm joking and talking to people. Never had black thoughts.
Short, all my life long, I was like everybody.
Thank you all,
Simon P
P.S: Sorry if my english contains some mistakes, I'm a french canadian ;)
Posted by DBW on February 7, 2001, at 18:08:23
In reply to Please read Dad personality is changing Effexor XR, posted by Tee on February 6, 2001, at 14:51:21
> My dad recently got on this and we have noticed a huge difference in his personality. He tends to want to snap at people. Is this common with some people. Please post to this board asap so that I can come back and see if anyone is experiencing family members on this that are snapping at them or maybe you are on it and may want to share experiences. I need for him to know that this may be the cause of his personality change. Thanks to all.
>In my own experience with depression, snapping at the people around me--odd as it sounds--has been a sign that the depression is lifting. I think I begin to move from having no fight in me whatsoever, to being a bit more energetic and irritable, then to becoming myself again. Your dad's personality might not be changing; he might just be getting better.
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