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Re: your illness... » Bookgurl99

Posted by bookgurl99 on June 25, 2002, at 8:18:58

In reply to your illness... » Bookgurl99, posted by IsoM on June 24, 2002, at 15:15:07

IsoM, thanks for your post.

I did start everything off with a stroke-like episode; it seemed like suddenly I awoke and my short-term memory was gone, I couldn't find words, I moved very slowly. That lasted for 2 days, and I started improving. I went home for help, and my parents were in major denial. I was much worse 4 months ago. Now I have good days and bad days, usually 1 good day for 3-4 bad. "Bad" meaning more out of it.
>
> Hashimoto's encephalopathy also includes disorientation, psychosis, tremors, jerks in the muscles & lack of coordination, partial paralysis on the right side (don't know why the right side though), & speech problems. In young people & adolescents, there can even be seizures & hallucinations.

I've also had muscle jerks (Though they could be caused by psych drugs), a couple of seizure-like jerks in my neck and arm (could be caused by psych drugs), and disorientation (could be thyroiditis?).

>The fact that you could type out your post & others too is really a good sign that your mental powers & coordination are plenty good still & that you don't have it. Check out some more on this site on it. It's got quite a bit about it & links to PubMed & other sites:
> http://www.thyroid-info.com/articles/hashimotos-encephalopathy.htm

Anyways, thanks for your post -- and suggestion. I suspect that some people with H.E. are not as bad off, and could be caught early. BUT-- you're right; I don't see the dr. until next Tuesday and have to live until then.

The people I live around -- my parents, my girlfriend, etc. -- have all confirmed a change in me, an apparent loss of cognition. My parents hope it's from severe anxiety, although they admit that something in 'uncharted waters' could be happening. (Hopefully just Hashi's.)

Another big fear is that my mom (who's been on Prednisone for 20 years) was put on steroids around my age, and developed a severe autoimmune response to allergies; her throat literally closes in response to food allergies. So I guess I fear having to go on steroids to treat something -- even though I never worried about it before these symptoms showed up.

I miss being who I was.

Thanks for reassuring me, and for the link.

bookgurl99 (Elisa)


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