Posted by Phillipa on January 1, 2010, at 20:24:30
In reply to Re: What Would you do if doc refuses to treat no Recla » 2nd xylophone, posted by Maxime on January 1, 2010, at 15:51:48
Talking about osteoporosis since found out in November saw three docs this one being first osteoporosis and osteoarthritis doc who also did my lymes testing when moved here. Saw him as my new results of lymes test I requested from PA came back positive again. And he had my chart. And previous results. Lymes is an issue that had been put to rest for me. He also did work at Yale in the lymes clinic years ago. So he did another bone Dexa Scan said he expected to see a train wreck after what the orthopedic doc said but didn't just some mild scoliosis and my spine was the same as the last Dexa he himself had done on me. Dexa Scans should be done on the same machine found that out in researching. Hence the two scans differed a lot. He wasn't concerned with spine just hip so said the reclast targeted the hip. Said I won't charge for second Dexa Scan. He did numerous blood testing and 24 hour urine to see if my kidney would not fail with this med as kidney excretion of calcium. Appointment was Dec 17th had Greg check on calendar. Then the blood testing. No results were sent to me as the doc wanted me to review and research the med and said had to schedule before end of month. So a week ago we literally drove to the office and got the results. At that time had to literally beg the RN to talk about the med as the Iv lab the infusers knew nothing about the med. The doc had said we will discuss the med before scheduling and go over labs this never happened. Saw the RN and received the labs last Friday and was told to call on Monday by RN to schedule infusion. Two days to research????? I think not. No doc I've ever ever seen pdocs included ever set a time frame on deciding if wanted a med. I'm very through having done malpractice for nursing and testifying in court so I know how to research. I have three books in my room at this time all new additions on osteoporosis and all lead back to hormones and lack of estrogen, progesterone and testosterone. Concensus of the real live people I know is they would never take the med without researching. Too much at stake. Some who worked and were well prior to the infusion now are on bedrest. One study found today on FDA site said I think it was 538 had died from the med and hundreds hospitalized. This is a med for bone mets also and Pagnets disease. I would not be an advocate of my own health care if I did the opposite of what taught to teach patients when in school. So it's possible the hormones are my best option. When done researching will report back. Uh uh two days with labs and no second consult with the doc doesn't sit right with me, husband, family. Love Phillipa ps also stopping the med isn't possible as it's in your system for over l0 years, atrial fib is also a frequent side effect, and was told that a lot of the infusion nurse's work for the drug company. And also massive amounts of D3 and Calcium with lots of fluids are protocol and this protocol was not discussed with me.
poster:Phillipa
thread:931820
URL: http://www.dr-bob.org/babble/health/20081212/msgs/932049.html