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Re: Lyme disease and psychological problems » Maria3667

Posted by Phillipa on January 29, 2009, at 12:18:27 [reposted on January 29, 2009, at 22:09:35 | original URL]

In reply to Lyme disease and psychological problems, posted by Maria3667 on January 29, 2009, at 10:24:30

Well you know I'll chime in. As I never knew when the deer tic bit me as was from CT. But then live in VA Beach and a tic bit me in the center of my back the MD that did the physicals on the patients said there was a small red area around the bite. I couldn't see it so he gave me doxycycline for l0 days. Thngs were fine moved to NC and had three big dog tics in hair line not the lyme tic so that was fine. Then about a year later since I'd had a small deer tic on inner arm the pdoc who was an osteopath tested me by Western Blot and it was positive. He never followed up on retesting so was retesting by infection control specialist positive so more l0 days of doxy. Called back as didn't feel right and had had like flu symptoms and autoimmune thyroid discovered at same time. Another year went by and anxiety increased and was hospitalized for med change psych as then they the pdoc consulted infection control specialist who called in a rhematologist who thought I could have what he referred to as a miss mash of autoimmune diseases he mentioned sjornes and even lupus. Mri of head, spinal fluid taps all okay. Western blot came back positive again and the bands in the test were all positive so Iv Rocephin for only 5 days as the pic line and the nurses on that unit didn't know how to admister correctly. So with an ANA of 1:2800 and something with normal being under 1:20 now this was extremely high. Antibiotics for two years biaxin xl given three months at a time and then wait give again. moved here tested again still positive and rheumatologist said I'd had enough antibiotics. So do I feel they could be connected yes I do. Problem is the CDC will not support long term antibiotics for lymes. I also have fear and anxiety as a result my opinion only. I'd google LLMD's as they deal with lymes. Considered by bad names here. Well that's my story. Hope others chime in. Phillipa ps from what I gather there are false negatives but not false positives. Which test did you have Elisa not accurate the Western blot is?

 

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