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Re: Ulcerative colitis--tangent from Legwarmers sorry » James K

Posted by gardenergirl on January 29, 2006, at 14:56:33

In reply to Re: Ulcerative colitis--tangent from Legwarmers sorry » gardenergirl, posted by James K on January 28, 2006, at 23:10:24

> I take Asacol (that name makes me kind of mad) it's a 5 asa or something.

That's it! It's those 5 asa drugs that made him so much worse. And of course he had to try all the various iterations of them before they could figure that out. He lost a ton of weight during that time and was pretty miserable. Glad they work for you.

>
> I also take probiotics acidophilus, and Nitroplex a whey protein powder with glutamine and long chain amino acids and digestive enzymes and crap.

I'll pass this along to him and see what he thinks. Thanks for sharing your routine.
>
> That's really for chronic fatigue syndrome, but it helps (in my opinon) my general health. I have an appointment in May with a big time local rheumatologist to check if both conditions aren't part of the same underlying disorder. My mother has rhem. arthritis.

My husband's family has a number of significant autoimmune system diseases among them. I'm convinced that there is a general process to all of these disesases that must be heritable in some way. I hope your appt. goes well.
>
> Has your husband had the prometheus blood test? Its the best test if there is any doubt between Chrohns and UC. The treatments can be different. Basically, I've been lucky on this. I wish your husband well.

He doesn't recall the Prometheus test, but his dx was determined based on his colonoscopy, and it seems correct. He's been very stable for a few years now, although I worry about the immunosuppressants. He used to never be sick with a cold or flu for more than a day and never missed work. Now he has a hard time kicking a cold. It scares me.

Thanks.

gg

 

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poster:gardenergirl thread:603266
URL: http://www.dr-bob.org/babble/health/20051214/msgs/604167.html