Posted by bimini on July 11, 2005, at 9:13:45
In reply to Getting a full complement of blood work done, posted by Dinah on June 11, 2005, at 12:31:25
> The neurologist had several choice words to say about my bringing my hand weakness to my internist, and told me never to do that again. He said it was clearly cataplexy related to narcolepsy and muttered something about fly by night nerve conduction companies.
>
> I'm still skeptical about narcolepsy. The sleep study showed that I entered REM early, but not early enough to qualify as narcolepsy.
I'm glad you wrote what your Neuro uttered there. It took me a while to figure out what I can't tell some of my docs as this is misleading to them. I just wish they (the Docs) could communicate with each other and share their expertise to help the patient. This is like tug of war.I am on narcoleptic drugs and my left hand/arm has been numb since accident 3 years ago. I had a negative nerve conduction test. (I am cracking up laughing, now.)
My heart rate doubled and blood pressure went up, chest pain, trouble breathing, left side has limited strength and mobility, and I went blind for 1/2 hour and lost feeling of one foot for a day. I carefully avoided telling my internist any of this, he jumped to his conclusions from the blood pressure.
I got sent to 5th EKG and then to stress testing, all the while I think this isn't cardiac related, I'm opposite MI profile. I wanted to protest, didn't do much good. At the hospital I was asked why I had this test done and I wanted to say "beats me". Then they ask the same darn questions I can all answer with a "yes but...".
I had to make a change in medication because of bp, neuropsych asked the same questions too. I just glared at her and she understood, then smiled. Now I wish she could communicate with the cardio people and all of them look at the whole instead of the pieces! Exhausted.....
bimini
poster:bimini
thread:511024
URL: http://www.dr-bob.org/babble/health/20050411/msgs/526098.html