Posted by Racer on May 10, 2005, at 15:33:37
In reply to Finally a name..... Lupus, posted by Spriggy on May 9, 2005, at 22:25:09
I am so glad you have a diagnosis now, Spriggy. That's one less thing to worry about, and worry can exacerbate all the autoimmune things.
Has your doctor given you information about Lupus? It's not as much fun as going to DisneyLand, but there are good treatments out there, and it's a maintenance type disease for most people. There are a lot of sources of good information about it, but keep your salt shaker handy when you first start looking. There are a fair number of hysterical "OH IT'S THE WORST THING EVER!!!" sites on the web. Those are the last thing you need right now, when there's so much good information out there.
Best luck to you, and I do hope you're getting the best supportive care and engagement from your doctors. That makes such a difference when adjusting to chronic disease. (At least, I found that to be true.)
poster:Racer
thread:495823
URL: http://www.dr-bob.org/babble/health/20050411/msgs/496080.html