Posted by CherC68 on February 17, 2004, at 18:15:28
In reply to Re: Reflex Sympathetic Dystrophy » CherC68, posted by john constantine on February 17, 2004, at 17:02:03
Dear John,
I'm in Lansing, Illinois. I just had cp tunnel surgery and am new at RSD. I have not really been put on meds except the 50 mg paxil, 900 mg neurontin and 20 bextra. I am 40 years old and my doctor said i'm too young to start on opioids myself. We are working on the blocks first.
With RSD there is a Treatment Protocol that has to be followed. I try not to blame the doctors because of their lack of giving out narcs that help with chronic pain. The government does breath down the neck of Pain Management Docs for it. They get thrown in jail, etc. Any doc who gives out a narc or Opioid actually leaves a paper trail to be followed by the Government. If that doc gives out too much to too many clients they get whammed then slammed. I'm following a few cases regarding this.
Wow, Trigeminal Neuralgia aka TIC DELA RU (or something like that!) I had Trigemnial Neuralgia when I was only 20 years old. It lasted six months and I contiplated suicide daily. Went to dentist and got a cavity filled on my upper left back side and ended up with Trigeminal Neuralgia on my lower right side of my mouth. I wanted to kill myself daily. I went to the ER once or twice a week, had acupuncture, accupressure, got shots, it was the worst thing in the world. The thing is if someone gets a toothache, everyone feels sorry for them. Many to most of the people in the World have never heard of let alone know what Trigeminal Neuralgia, Reflex Sympathetic Dystrophy or Complex Regional Syndrome is.
When my doc found out I did not have MS he was disappointed! CAn you believe that. MS has meds out there that work and usually ms does not involve the pain that RSD sufferers have. RSD sufferers are 900% more likely to commit suicide than any other disease out there including Aids!
I think it quite weird that you have both too. I wonder if people with emotional stress are more apt to get these neuralgias or if the Neuralgias, RSD, etc. causes the emotional distrubances?
I have always been of average intelligence with a greater strength of mine being common sense and being street savvy, etc. Now, I feel like a complete idiot most of the time. I forget if I have eaten, appointments, did I brush my teeth. I froze my phone recently, once caught myself before I microwaved it. Washed the same load of clothes twice, I stop at green lights until someone honks at me. I forget how to spell words, I forget how to say words or more importantly forget words I use on a daily basis. When asked my name I look at them like they spoke a foreign language. Now that they stopped upping my meds i'm doing better, but the weight gain is hard because my swelling in my hands are horrible.
Thank you very much for taking the time to talk to me. I appreciate hearing your story and don't mind talking to you if you get the time to post on here. I also belong to an MSN Group Aware-RSD which is a group for RSD but you have to sign up for it.
I'm glad you posted on here. I seen the "health" discussion and didn't read much about the it and quickly posted and then realized dang, this is about other types of health issues.
Thanks Again,
Hugs,
Cher
poster:CherC68
thread:303801
URL: http://www.dr-bob.org/babble/health/20040102/msgs/314855.html