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Patient Online Advocacy

Posted by okydoky on December 16, 2009, at 1:38:01

In reply to Re: ISMHO takes members' privacy very seriously » Sigismund, posted by psych chat on October 30, 2009, at 23:24:15

Sorry if I am hijacking the thread but I thought this applicable subject matter.

It is glaringly obvious to me that any mission statement in regards to this site would have nothing to do with the well being of its "members"(better definition perhaps "contributors")

Trying to research and have some minimal understanding of web site hosting and design, exploring this sites "FAQ" I goggled something about it and found a link to this thread.

I cannot thank you enough for the intelligent well informed information!

Why not have a member driven/ administered self help mental health site, a patient administered/designed online mental health support forum, its mission one of advocacy?

Among a lot of other positive things it could be empowering.

Is there enough interest and serious minded people with the knowledge and time to do the work proposed?

(Maybe this has already been done and I am unaware?)

I think it could be useful to use the underlying principles (democratic) of the "Clubhouse", a psychosocial rehab, as a starting point to develop an online member driven web site.

See:
http://www.parecovery.org/services_psychrehab.shtml

After defining the mission statement and doing the work of finding a web host and/or web design, calculating the seed money needed and ongoing funding, finding a trusted fiduciary, patients would have developed the "bones" to write funding proposals to philanthropic/charitable organizations.


I realize this is a daunting and time consuming task.

Of course there is much more involved, some I probably have not even articulated to myself, beyond my intellect.

I am curious. Am I being a realist or an idealist?


oky


 

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