Posted by raisinb on November 9, 2008, at 10:10:25
In reply to Re: My contention., posted by Dinah on November 9, 2008, at 9:00:26
As Dinah so eloquently put it, every one of us will have individual reactions, from not being concerned to being extremely upset and anxious. I think it's important for us to respect everyone's reaction.
Whatever the reaction, I can't brainstorm any situation in which current babble members won't indirectly be part of a study, relationship, or research that we were not asked to give informed consent to. If we're at least informed of the dates of the study, we can choose whether we want to continue posting during that period, based on the information we have currently. If we're told more about the scope/purpose of the study and our role in it, that may allay anxiety for many babble members, and they may choose to remain when otherwise they wouldn't.
I'm not usually too worried about how information about me is used. But I'm not overstating the case when I say that what I post on Babble is the most intimate, personal, vulnerable stuff I have. So without knowing more about what's going on, my reaction is to simply opt out of Babble until the whole thing is concluded.
But the point is that none of us really need to justify our own reactions. The parameters of our participation here are going to be changing, perhaps radically, and for many of us, it's natural to react strongly. The point is that any such project needs informed consent--whatever individual reactions are.
poster:raisinb
thread:861412
URL: http://www.dr-bob.org/babble/admin/20081003/msgs/861741.html