Posted by Bob Grozier on January 21, 2013, at 2:41:23
In reply to Xyrem (GHB) - Why isn't anyone curious?, posted by utopizen on May 30, 2003, at 18:50:22
I have been on xyrem for 6 years due to a chemically induced brain injury by two urologists. I've been on disability for 11 years - when I was injured and for those first 5 years slept maybe 2 broken hours per night. I was psychotic. Now my company is changing all disabled and retirees from the good group insurance we had with medico to crappy medicare based aarp insurance who won't pay for xyrem unless you have narcolepsy. I am fighting at every stage of appeal and even hiring an expensive lawyer. My doctor uses it off label for brain damaged severe insomnia - the FDA allows docs to use medication off label. But the damned insurance is making this very almost impossible. I think if I have to go back to those 2 hour sleep nights, I will end my life. I cannot live like that anymore. I will be 54 in a few weeks and I am tired of suffering from the bad drug reaction for 11 years caused by two idiot doctors. I cannot carry the weight of the agony without sleep - the most important need in a brain injury. The meds given to me that destroyed my brain 11 years ago were Cipro (a powerful quinolone antibiotic) along with Vioxx (a powerful NSAID) . It is well documented quinolones given concomitantly with NSAIDS causes severe central nervous system injuries - PLease never even take a quinolone they are VERY dangerous. I may have to learn how to make GHB from someone who understands chemistry. I know it's simple, but I would pay someone to go through it with me once.
poster:Bob Grozier
thread:230314
URL: http://www.dr-bob.org/babble/20130112/msgs/1035932.html