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Re: Special Needs Trust

Posted by PeterJ on March 23, 2012, at 23:34:50

In reply to Re: Special Needs Trust, posted by billyho on March 23, 2012, at 22:27:04


>
> I am in the process of having a special needs trust set up so i can take care of my cousin who has CP for when my aunt passes... It is stressful to say the least. Would it be a family member who will be in charge or an "advocate" set up by the trust administers?

We have tentatively decided that my two siblings will be the trustees. A professional trustee would charge a percentage fee, which would eat up too much of the trust money. They are the only two family members who would be able to do it.

I have mixed feelings about this. We have a typical degree of sibling rivalry and they have not always been sympathetic about my illness. So I don't like being dependent on them in this way, although I am grateful they have agreed to be trustees. I also worry about the possibility of conflict and disagreement about issues that will arise as well as the complexity of making expenditures from the trust. I wonder how workable it is in practice.

But without a trust I would lose access to SSI and Medicaid which means I would have to buy private insurance which would be very hard to afford.

Peter


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