Posted by emilyp on December 21, 2010, at 13:53:33
In reply to Pdoc said I have dystonia, posted by Deneb on December 20, 2010, at 22:44:06
I obviously don't know your doctor. But dystonia is a somewhat rare disease. You really need an expert to examine you and hear your story before you are diagnosed. I know a lot about this disease, as a good friend has it and he is a board member of the Dystonia Medical Research Foundation.
You should check out the foundation at http://www.dystonia-foundation.org/
I am not saying your P-doc is wrong in terms of telling you what to do. But do not jump to any conclusion until you see a specialist. Also, there are many different types of dystonia. You may have one variation of it.
poster:emilyp
thread:974167
URL: http://www.dr-bob.org/babble/20101218/msgs/974211.html