Posted by sk85 on September 25, 2010, at 10:51:44
In reply to Re: update, posted by sk85 on September 12, 2010, at 3:56:42
Wow. Things have been really great lately. I must say that I have been able to get my tardive dystonia to go into almost a complete remission. I do believe that Seroquel has had a role in this aswell, although there are some important additional factors.
Namely after starting Seroquel I started adding into my regime coenzyme Q10 (3x30mg/day). Initially it excacerbated my symptoms but I was expecting it to do that. There is somewhat evidence from studies (I happen to be a scientist) that dystonia (especially the form brought on by medications) alters metabolism in selected parts of the brain (i.e. basal ganglia) so that the delicate receptor balance there becomes deranged and self-perpetuating.
So in any hope of trying to restore this normal balance it would figure to use metabolic activators such as coenzyme Q10. And so far my own results have been great as after a short period of making my symptoms worse it has now started to suppress them. CoQ10 is also researched as a partial remedy for Parkinson's disease (which is also marked by metabolic derangement in basal ganglia due to lack of dopamine).
Other important factors I consider to have been helpful in achieving improvement in dystonic symptoms are: cutting out caffeine (caffeine upregulates D2 receptors) and avoiding all prodystonic meds (SSRIs etc).
I'm really hoping this remission lasts. However I must emphasize that dystonia is famous of having remission and then making a return later on. So I'm carefully and skeptically monitoring my progress.
poster:sk85
thread:961777
URL: http://www.dr-bob.org/babble/20100917/msgs/963705.html